Tuesday, March 31, 2015

Aging in America 2015 conference highlights

Last week I attended American Society on Aging (ASA)’s Aging in America (AiA) conference, held in Chicago for the second time in three years. I was happy to return to Chicago, former headquarters of Andersen (brand name was revived last fall—almost ten years after the Supreme Court overturned the firm’s 2002 criminal conviction) and where I attended annual training during my Arthur Android (“think straight, talk straight”) years...so I associate Chicago with learning, nowadays through ASA, which will be back in Chicago for 2017 AiA conference.  

Kudos to ASA for making this annual conference accessible by offering free registration to student volunteers (new!) and discounted registration to other volunteers (very helpful to those of us who work in nonprofits with limited training budgets)!
Day 1
For 2015 AiA conference, I took a red-eye flight (using frequent flyer miles), returned to stay at Hostelling International ($32 per night)...and then trekked a mile through snow, rain and sleet to the conference site at Hyatt (avoided $219 per night) for Monday morning’s mandatory volunteer orientation to reacquaint myself with the floor levels by colors:  silver, blue, green, bronze and gold.  New this year was scanning name badges (instead of sign-in sheets) for continuing education credit so session attendees received credit only if they entered session room within 15 minutes after start time to be scanned in, and then remained to be scanned at end of session. Also new was at least one men's restroom temporarily converted for gender-neutral use (with black curtain hiding urinal stall), which was very practical because more women attend conference. 
 
Rock and Roll Legends Reflect on Aging, Making Music and Living Life: With youtube clips, Roy Earnest (Corporation for National and Community Service, Oakland) talked about intergenerational connectedness (Adele’s cover of Bonnie Raitt’s “I Can’t Make You Love Me”; Grateful Dead bassist Phil Lesh performing with his two sons in his San Rafael restaurant; Carlos Santana functioning from center of his heart “so he’s never out of style"); Janice Blanchard (Aging Better Together, Denver) discussed ageism and female rockers (contrasting 56-year-old Madonna and 60-year-old Annie Lennox “acting your age” at last month’s Grammy Awards, which reminded me of continuity theory of aging; 82-year-old Yoko Ono responding to critics, “Please don’t stop me being the way I am.  I don’t want to be old and sick like many others of my age”); and Pamela Braverman Schmidt (Bunker Hill Community College, Boston) explored rock musicians branching out into other creative genres (Patti Smith’s photography, David Bowie’s acting, Neil Young’s environmentalism, Bob Dylan’s poetry). 
 
Shame in Aging: psychiatrist Angela Smith reviewed aging in a developmental context, noting the most intense psychosocial drivers are avoid shame (appearing old, asking for and receiving help, and feeling useless as a result of marginality) and desire for connection; social worker Paula Seefeldt and volunteer support director Denyse Kapelus talked about Irene Zola’s founding of Morningside Village (New York) enlisting volunteers to offer friendship and informal help to elderly neighbors free of charge (unlike other village models that charge membership fees).  Their Lifeforce in Late Years (LiLY) website includes a wonderful resource on How to Build an Eldercare Village.
Chicago-based Mather’s More than a CafĂ© Chorus performed at the opening general session. ASA Chair Lynn Friss Feinberg welcomed 3,000 registrants from all 50 states plus Puerto Rico, and 15 countries. 
Jennie Chin Hansen received ASA Hall of Fame Award for her advocacy and leadership to improve the lives of older adults—notably her almost 25 years at On Lok in San Francisco, where she led push to enact 1997 federal law that incorporated On Lok’s long-term care model into the Program for All-Inclusive Care for the Elderly (PACE), a Medicare and Medicaid program now operating in more than 30 states!
 
In Disruptive Aging, AARP CEO Jo Ann Jenkins said instead of aging, focus on living—sounding much like Ilya Mechnikov, who said “We must continue living, not age-ing.” 
In Maturity Re-Imagined, Age Wave CEO Ken Dychtwald said maturity is about more than aging, but purpose and legacy (giving back).  His survey indicated that health is the most important ingredient to achieve a happy retirement. 


Day 2
My volunteer assignment as room monitor on Day 2 helped reduce overchoice dilemma and broaden my horizons to attend sessions that I had not previously considered.
Vital Involvement in Affordable Senior Housing: The Creative Approach:  after meeting at an ASA conference, Linda Duncan of AHEPA Management Company (Indiana) and Helen Kivnick (Minnesota), co-author of Vital Involvement in Old Age (1986)began a collaboration to enhance creative wellness among 4700 residents of HUD 202 housing based on the minimax principle: minimize obstacles by maximizing supports for and emphasize resident’s strengths to focus on what the person has and can do. AHEPA Services Coordinator Betty Montgomery provided an example of this strengths-based problem-solving: 
  1. identify personal need/problem: lack of movement among residents with arthritis and their lack of exercise that increased pain when moving
  2. identify gaps/obstacles in environment: misinformation about managing arthritis pain 
  3. identify supports in environment: Service Coordinator invited arthritis pain speaker who provided solid information to dispel myth that people with arthritis should avoid exercise
  4. identify personal skills/interests/values: residents wanted to be more active and involved in daily life so they learned movements and exercise strategies to maximize muscle strength and to minimize pain
Use of Online Dementia Care Training in a Live Classroom Setting based on Alzheimer's Association essentiALZ® certification through CARES online (available 24/7 on staff’s own time with compensation) and in-classroom (not more than 30 minutes, face-to-face interactions, group problem-solving, Q&A).
Open Windows: Older Adults Sharing Life Experiences presented by Senior Learning Network founders Ellen Ervin and Lynne Beachner incorporating Zoom video meetings with Sheila Finkelstein, author of Technology for Seniors Made Easy, Melva Stein (former Peace Corps volunteer in Malawi), and Bibi (“Belgium Anne Frank”). 
Took a quick break to see Ai-jen Poo, author of The Age of Dignity: Caring for a Changing America (2015), since I missed her book tour in San Francisco last month.
How to Use Technology for a Positive Aging Experience:  Arthur (former CPA) and Bonnie Kupperman (former journalist) demonstrated their website, My Senior Portal, originally developed for Arthur’s 95-year-old father, to engage (create and maintain personal records and information), enjoy (participate in online games, read jokes), and educate (learn health information, housing and caring services).
The Upside of Aging: A New Culture of Health, Productivity and Purpose: Paul Irving was an attorney who launched his encore career as Harvard Fellow and then became Chairman of Milken Institute Center for the Future of Aging and author of The Upside of Aging: How Long Life Is Changing the World of Health, Work, Innovation, Policy and Purpose (2014).  
Pinchas Cohen, a pediatrician before he became Dean of USC Davis School of Gerontology, discussed making personal and societal changes to improve health: smoking (stop), sedentary lifestyles (“sitting is the new smoking”), diet (legislate labeling, though don’t know best diet), and Alzheimer’s risk (avoid by diet, exercise and staying engaged).  
His healthy aging advice was not “one-size-fits-all,” but personalized aging, and suggested a longevity calculator to calculate biological age.  Fernando Torres-Gil, Director of the Center for Policy Research on Aging at UCLA, commended session’s pharmacy sponsor for going tobacco-free last year. 


Day 3
National Perspectives on Mental Health and Aging Policy:  SAMHSA Project Officer Marian Scheinholtz, ACL Administrator Kathy Greenlee, Rush University Director of Health and Aging Robyn Golden, and Leaders Engaged on Alzheimer’s Disease (AD) Executive Director Ian Kremer.  SAMHSA and ACL have partnered to provide resources addressing behavioral health needs of older adults.  Robyn noted that historically AD was not part of mental health discussions; according to Alzheimer's Association, AD is not a mental illness but can cause symptoms related to mental health.  
Spirit of ’45 recognized the Greatest Generation including 95-year-old Elinor Otto, a “Rosie the Riveter,” who built the planes flown by these three Tuskegee Airmen.  She said work gave her a reason to wake up, and only recently retired when Boeing plant closed.
In Disabilities in Aging: A Future Redesigned, Fernando Torres-Gil said most of us are “temporarily abled” who may soon face the vicissitudes of the aging experience that include impairment.  Chicago-based Access Living CEO Marca Bristo talked about her own experience when she became paralyzed at age 23 after diving into Lake Michigan, and changing from the medical to social model so disability is a normal part of the human condition.  UC Berkeley Visiting Scholar Wanda Lieberman presented show and tell of universal design architecture examples. 
Legacy Film Festival on Aging founder and director Sheila Malkind of San Francisco at poster session. 
Gerijoy’s Victor and Brittany Wang of San Francisco married after meeting at last year’s ASA conference. 

Helping Lower-Income Seniors Maintain Financial Independence: Consumer bankruptcy attorney Eric Olsen founded HELPS http://www.helpsishere.org/ (Help Eliminate Legal Problems for Seniors) Nonprofit Law Firm to provide seniors who are judgment proof and with protected income (social security, disability, veterans benefits, ERISA retirement) an attorney who communicates with debt collectors to prevent collector harassment. 
Using Information and Technology to Improve Healthcare for Older Adults in the transition from episodic care to population health, presented by Jaewon Ryu of session sponsor Humana.  General sessions were opportunities for attendees to win a free ipad or AARP RealPad.
Gray Panthers’ Intergenerational Action Model: A Strategy for Social Movements and Change featured intergenerational panelists Jarmin Yeh (UCSF doctoral student), Brooke Hollister (UCSF Institute for Health and Aging), Carroll Estes (Board Chair of National Committee to Preserve Social Security and Medicare Foundation), and Paul Nathanson (Justice in Aging Special Counsel).  
In solidarity, we formed circle for Gray Panthers’ Growl: stand and raise both arms (reach toward peaceful world), open eyes wide (envision suffering and need), open mouths and stick out tongue (cry out against injustice), and growl three times!!! 
Martha Holstein, who attended Gray Panthers' session, provided promo code 4M15HLSTN, for 30% discount on U.S. orders of her new book, Women in Late Life: Critical Perspectives on Gender and Age (2015).
California Association for Adult Day Services received 2014 Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Award for Policy and Advocacy, based on its Success Through a Unified Vision: the Fight to Preserve Alzheimer's Care in California, which saved Adult Day Health Care (ADHC) from elimination as a Medi-Cal benefit in 2011 through a concentrated effort utilizing public interest litigation, grassroots advocacy and persuasive media stories.  


Day 4
In On the Rise: Prescription Drugs and Substance Abuse Addiction Among Elders, Certified Master Addictions Counselor Steven Moore (Houston) said that baby boomers have had more exposure to alcohol, tobacco and illegal drugs in their youth; prescription drug abuse is present in 12-15% of elderly who seek medical attention; more patients age 60+ are admitted to hospitals for alcohol connected problems than for heart attacks; 85% of older adults take prescription medication.
Let’s Talk Senior Poverty: What Are We Doing About It? same title, description and speakers as last year’s session.  Presenters Paul Nathanson (Washington, DC) and Kevin Prindiville (Oakland) from Justice in Aging use the power of law to strengthen government safety net programs like Medicare, Social Security, Medicaid and SSI to fight senior poverty.
In Transforming Communities for an Aging Society, Debra Whitman talked about creating "great neighborhoods for all ages," including age-friendly NYC's example of designating seniors-only swimming pool hours, in response to seniors who weren't comfortable splashing with younger ones.  She and Rodney Harrell introduced AARP Network of Age Friendly Communities and AARP Livability Index coming April 20th! 
In The Hidden Male, Friendship Senior Options Director of Lifestyles Michael McCann (Schaumburg, IL) explained The Male Journey, based on Joseph Campbell's Hero Myth Cycle and Richard Rohr's male spiritual journey, with three outcomes: Foolish, Angry or Wise.  When given freedom during retirement, men who "suck it up to be a man" seek opportunities to "explore, hunt and continue to grow." Activity programmers might get these men in the door by offering beer, steak and sports, and then engage them to get deeper in the aging process like naming highlights/celebrations and detours/disappointments in life journey, etc.
San Francisco Long-Term Care Coordinating Council member Cathy Spensley presented on Making San Francisco Age and Disability Friendly: A Collaboration Across Sectors  
Community Gardens in Senior Living with Kavod Senior Life Resident Care Coordinators Elizabeth Dubinsky and Dre Dufford showed us a video of their Denver retirement community garden and later engaged us in hands-on gardening activity. Though Kavod's vision was an intergenerational horticultural therapy program, its older gardeners did not want to share with children.  They primarily grow foodstuffs to use for congregate meals. 
Seed ball recipe: 1¼ cup dry terracotta clay + ¾ cup dry organic compost + ¼ cup assorted seeds + enough water so mixture binds together but doesn’t stick to hands; roll into penny-sized round balls & completely dry in sun, then throw seed balls into garden, water to allow seeds to germinate. Seed balls were a traditional method of planting for many Native American tribes.
Facing the Challenges of Oral Health Care for Seniors with Leonard Brennan, dentist and Co-Director of Harvard Geriatric Dental Fellowship Program, and his daughter Kathleen, a family practitioner (Maine), discussed age-prevalent oral conditions such as candidiasis (fungal infection) and xerostomia (dry mouth), which are associated with medication side effects.


Day 5 
National ForumSocial and Health Disparities in Aging Authors from the latest (Winter 2014-15) Generations journal appeared in person! 
UCLA Public Health Professor Steven Wallace on Equity and Social Determinants of Health Among Older Adults, and Health Foundation of South Florida's Martha Pelaez on Ending Health and Social Disparities (legislate access and resources to ensure tools and culturally appropriate support to manage health).
SAGE Executive Director Michael Adams on its National Resource Center on LGBT Aging, University of Washington Social Work Dean Emeritus Nancy Hooyman on Gender Inequities in LTC (caregiving's low status perpetuates gender-based health disparities across the life course; poverty and poor quality of life in old age is the price women pay for other people's dependence on them for caregiving, which is seen as a private duty rather than a service with "public value"; take Fair Care Pledge), and UW Social Work Professor Karen Fredriksen-Goldsen on Promoting Health Equity Among LGBT (still need protection from discrimination in employment, housing and public accommodations).
University of Hawaii Social Work Professor Colette Browne on culturally competent community programs (Ha Kupuna National Resource Center for Native Hawaiian Elders received ASA's Award for Excellence in Multicultural Aging), Willy Valencia on Diabetes in Older Hispanic/Latino Americans, Tim McNeill on African-Americans, and SFSU Gerontology Professor Darlene Yee-Melichar on Perspectives from Asian-American Communities.


March is National Nutrition Month:  Chicago Meat-In 
Cold weather burns calories, so I ate often to replenish calories lost due to Chicago cold.  Chicago-style food (hot dog, deep-dish or stuffed pizza, Italian beef) is hearty, though lacking in fresh local fruits and vegetables during December to April.
Hostel's DIY Chicago Dog Dinner: sport peppers and dash of celery salt
 
Farmer’s Fridge North Napa Salad ($7 for jar containing napa cabbage, mixed greens, avocado, organic red grapes, pistachios, dried tart cherries & balsamic vinaigrette) and “Fried Rice” (not pictured, but $3.75 for cauliflower, local peas, carrot, garlic, egg whites).
Exhibit Hall Reception 
Gilbert Award Reception 
Good Stuff’s Michelle Melt Free Range Turkey Burger ($6.98 included caramelized onions, swiss cheese, ruby tomato, lettuce on wheat bun with southlawn herb garden mayo) 
Al’s Italian Beef dipped in au jus ($4.55): Chicago food legend since 1938
Garrett Mix of sweet CaramelCrisp and savory CheeseCorn (free sample): Chicago tradition since 1949

Art in Bloom

Foliage loss due to snowy weather in Chicago had me yearning for horticultural therapy, so I headed over to a department store's flower show on its 9th floor ...perhaps closest I could get to being Up on the Roof ("it's peaceful as can be, and there the world below can't bother me," as Carole King sang).  







My love of gardening comes from my grandfather, a strong, silent type who seemed to express affection through gardening activities and eating together.  Being close to nature (plants) makes me reflective, so I reflected on conference remarks about seniors wanting their own time and space in NYC’s swimming pool and Kavod’s community garden.  I thought how different my grandparents were because we lived in an intergenerational household with no age discrimination.  I vividly recall accompanying my grandmother as her underage guest to a wedding and being told “no kids allowed” but my grandmother prevailed, and I found the wedding to be PG-rated except for alcohol. 

Five years ago, I re-lived that “no kids allowed” experience when I set foot in a senior center for the first time: when I walked through the entrance door with a sign stating that the facility was for seniors age 55+, several seniors approached me at the door asking for the purpose of my visit.  After I explained that I was visiting the nutrition class offered through City College, they approved.

Because I chose to attend the conference’s Health Disparities Forum, I missed the Senior Centers Summit scheduled at the same time.  However, for my gerontology class, I wrote a paper about reinventing senior centers for baby boomers, who are more involved with their children to stay young, and less comfortable with the age segregation of their parents’ generation.  Offering different models that include multigenerational community or wellness centers so there is something for everyone is vital.
Landmark Chicago Theater, Beaux-Arts style building from 1921.

Thanks to Marie-Louise Ansak scholarship, I completed an independent study on horticultural therapy to share with On Lok's adult day care program participants. Earlier this month in sunny and dry San Francisco, I presented my hands-on horticultural therapy project: container garden (intended for windowsill), infusion and sachet activities using organic herbs from the mint family to promote memory (lemon balm, rosemary, sage), relaxation (lavender, lemon balm) and digestion. Aromatherapy uses essential oils from herbs that can be inhaled and absorbed into lungs and nasal passages, entering the bloodstream and activating centers in the brain that affect mood, emotions and immune function.

Selected herbs originate from Mediterranean region, which has climate similar to San Francisco Bay Area: dry summer, mild winter.  Plant care is relatively low-maintenance SWAN:
  • Sunlight:  5 hours per day
  • Water:  once a week
  • Air:  ventilated to avoid powdery mildew
  • Nutrition:  feed fertilizer once every 6 weeks

Saturday, February 28, 2015

Advocacy

To advocate for aging services, Coalition of Agencies Serving the Elderly (CASE) urged members to attend monthly meetings of San Francisco Commission on Aging, which oversees the budget for Department of Aging and Adult Services (DAAS).  CASE represents 37 agencies and their 20,000+ elderly constituents in San Francisco 
At February 4 Commission meeting, seated from left to right, in photo above, are Commissioners Samer Itani (dentist), Katie Loo, President Edna James (nurse/health educator/gerontologist and nonprofit OMI Community Action Organization President), Kaushik Roy (nonprofit Shanti Project Executive Director), Neil Sims (executive search firm partner), and DAAS Executive Director Anne Hinton. 
Public comment by CASE Secretary Valorie Villela (also 30th Street Senior Center Director), a tree hugger who suggested less printing of agenda which is sent out to regular attendees. 
Anne and Edna congratulated DAAS Employee of Month, who received a desk clock in appreciation.  
Municipal Transportation Agency Board member (and DAAS Manager) Tom Nolan reported last month’s approval of free Muni for low-and moderate-income (up to $67,950 for single person) seniors (age 65+) and persons with disabilities (PWD), effective March 1, 2015...thanks to grassroots advocacyTom reported 20,000 seniors and PWD had already applied, and anticipated 25,000 to sign-up.  He said Muni is for everyone, but especially those who need it most.   
Marie Jobling reported Community Living Campaign launched Tech Council (public-private partnership to expand technology access) the previous day, and Long-Term Care Coordinating Council will hold tenth year celebration this year. 
CASE Co-Chair Michelle Alcedo (also Openhouse Programs Director) presented CASE advocacy platform requesting funding to: 1) increase staffing for community services, 2) increase staffing for Aging and Disability Resource Centers (ADRC, which has lacked Tagalog speaking staff since July 2014 though Tagalog has been certified as third language for City communications), and 3) pay more “equitable” salaries for case management positions because nonprofit agencies struggle to recruit and retain talent when County salaries are “much higher.”  In addition, CASE seeks to extend free Muni to include group van and ADA transportation and 4% cost of doing business increase for FY 2015-16. 
DAAS Program Support Analyst Monte Cimino requested authorization for additional funds to Mental Health Association of San Francisco (MHASF) for expanding hoarding support services to non-English speakers. Commissioners responded with ayes.
DAAS Nutritionist Linda Lau had longest presentation requesting authorization of $5 million in add-backs for nutrition, including three new meal sites and expansion of Choosing Healthy and Appetizing Meal Plan Solutions for Seniors (CHAMPSS, which is healthier than CalFresh Fast Food Restaurant Meals Program).
  
“Good end-of-life”
 
Katy Butler, journalist and author of Knocking on Heaven’s Door: The Path to a Better Way of Death (2013), was speaker at this month’s meeting of San Francisco Bay Area Network for End-of-Life Care (SFEOL), co-chaired by Nate Hinerman. Now a Dean at Golden Gate University, Nate was my former SFSU Professor who taught Death and Dying in Contemporary Society.

Katy discussed the contrasting experiences of her parents’ final years: medical technology interventions to keep her dying father alive for “five terrible years,” and her mother’s determination for a better death so she decided to stop eating and drinking after a second heart attack brought her to a hospice wing. (The legal status of such "voluntarily stopping eating and drinking" by advance directive is untested.) She said it takes moral courage to say it’s the end-of-life, which she recognized in her father’s “benchmark” statements:
  • “I don’t know who I am anymore” (lost capacities)
  • “I am not going to get better” (progressive illness)
  • “I’m living too long”
According to Katy, “bad (painful) deaths” are so common because doctors don’t know how to talk to us, insurance pays for the wrong things (cure v. care), and treatments don’t stop until someone just says no (because medicine’s default is to offer all reimbursable treatments). 
Katy recommended Dr. Angelo Volandes’ The Conversation: A Revolutionary Plan for End-of-Life Care (2015), for patients, family members and doctors to honestly discuss the following:
·         What kinds of things are important to you in your life?
·         If you were not able to do the activities you enjoy, are there any medical treatments that would be too much?
·         What fears do you have about getting sick or medical care?
·         Do you have any spiritual, religious, philosophical, or cultural beliefs that guide you when you make medical decisions?

Katy’s presentation reminded me of The New York Times' recent Opinionator piece, “Dying Shouldn’t Be So Brutal,” in which Dr. Ira Byock proposed Safe Dying Act with these components: 1) train “young” (new?) doctors to assess and treat pain, listen to patients’ concerns and collaborate with patients and families in making treatment decisions, 2) require nursing home companies to double staffing of nurses and aides, and hours of care for each resident, 3) set minimum standards for palliative care teams within every hospital, 4) routinely publish meaningful quality ratings for hospitals, nursing homes, assisted living, home health and hospice programs for people to use in choosing care, and 5) repeal the Medicare statute that forces incurably ill people to forgo disease treatments in order to receive hospice care.

Also on my reading list is Atul Gawande’s Being Mortal: Medicine and What Matters in the End (2014), which was excerpted in Slate and featured in this month’s PBS Frontline

Community of Voices
At this month's CASE meeting held at Project Open Hand, Community Music Center (CMC) Program Director Sylvia Sherman spoke about her organization’s partnership with UCSF School of Nursing’s Institute for Health and Aging and DAAS, to form Community of Voices research involving a dozen senior choirs throughout San Francisco.  Funded by a five-year grant from National Institute on Aging, this study is in its third year to demonstrate health benefits (lung capacity, balance, coordination, memory, moods) on seniors (age 60+) who participate in a community choir.  Check out video, Can Singing in a Choir Improve the Health of Older Adults? 
  
Caregiving
Another reason to thumbs-up “like” Kevin Winge even more: he’s got his priorities in order, resigning as Project Open Hand (POH) Executive Director to return to his home state of Minnesota to provide care to his sisters who are critically ill.  I liked Kevin’s memoir, Never Give Up: Vignettes from Sub-Saharan Africa in the Age of AIDS (2006, reminded me of my own experience as Global Service Corps volunteer in Tanzania), his monumental decision to remove the soda vending machine (ostensibly to cut unnecessary electricity costs), expansion of POH meals to include clients with ten additional diseases (beyond traditionally served clients with HIV/AIDS and cancer), Food=Medicine Pilot Study with UCSF, expansion of senior congregate meal sites, etc. Kevin will be missed more than the in-house production of peanut butter and beloved macaroni and cheese, which he also removed from POH menu.

Let’s Kick ASS (AIDS Survivor Syndrome) hosted Who Is Going to Care For Us As We Age? A Discussion on Options for Long-Term Care, at LGBT Conference Center with elder law attorney Daniel Redman and NEXT Village Director Jacqueline Zimmer (JZ) Jones.  Daniel provided an overview of the continuum of care (in-home, assisted living, continuing care retirement communities, skilled nursing) from low-income (SSI/Medi-Cal/IHSS) to private pay options, and San Francisco's proposed LGBT Long-Term Care Facility Residents' Bill of Rights. JZ shared the benefits of joining NEXT Village, which serves residents in San Francisco's north east, and tips for LGBT community to start a village of neighbors helping one another so all can successfully age in community.  

Dementia care
 
Preparing for the Changing Horizon: Dementia Awareness and Caregiving for LGBT Older Adults from Diverse Communities included roundtable discussion with keynote presenters David Coon and Karen Fredriksen-Goldsen (author of The Aging and Health Report: Disparities and Resilience among LGBT Older Adults), two caregivers and Michelle Alcedo of Openhouse.  LGBT older adults are more likely to live alone and depend on “families of choice” for caregiving, yet such friends or non-families of origin as caregivers lack legal recognition by the health care system.    
Alzheimer’s Association Director of Diversity Edie Yau moderated panel discussion on Sharing Lessons Learned: Integrating Cultural Values, Beliefs and Practices into Dementia Care of LGBT Older Adults, with Geoffrey Kerchner (Alzheimer's researcher), Lou Bordisso (retired therapist with early-onset Alzheimer's), and two caregivers.  LGBT seniors may fear disclosing their sexual orientation/gender identity and not access services out of fear of discrimination, and few providers have received training to celebrate (not just tolerate) LGBT. Alzheimer’s Association has LGBT Caregiver Concerns brochure and Family Caregiver Alliance has LGBT Caregiving: FAQs.

At AgeSong Guru Project’s Biomedical Convention, psychiatrist and Pacific Institute board member Richard Patel welcomed psychologist (retired) Richard Taylor and geriatrician Allen Power for a discussion about wisdom in changes associated with aging and forgetting.

Richard Taylor, author of Alzheimer’s From the Inside Out (2006), has been sharing his experience since receiving his diagnosis of dementia ten years ago.  He described the disengagement process, and finding the “disease” answers in the medical model do not help.  Rather than being defined by deficits to be fixed, it takes time to find out what he can do and the brain is always trying to figure out, Who am I? What’s going on? Why am I here? He repeats because he wants answers that he can’t hold in his short-term memory.  To understand “problem behavior” (negative label) is to understand who the person is, including unique ways of expression, rather than project needs to quiet behavior with psychotropic drugs.  Richard's call to action is: "Stand up! Speak up! Do not victimize yourself with your own silence.  How will anyone really know what it's like to live with dementia?"  He encouraged us to sign-up for his newsletter at http://www.richardtaylorphd.com/. (Another resource is Dementia Alliance International, established in 2014 and the first international group of, by and for the people with dementia engaged in advocacy to eradicate stigma, isolation and discrimination.) 

Allen Power, author of Dementia Beyond Disease: Enhancing Well-Being (2014), discussed 7 domains of well-being: 1) identity, 2) connections, 3) security, 4) autonomy, 5) meaning, 6) growth and 7) joy.  He cautioned that if you view someone as less than a complete person, then you give less care; and that too much focus is on finding a cure for dementia rather than promoting well-being.
 
Singalong at AgeSong’s Forget Me Not CafĂ©: music + cognition.
SFSU gerontology classmate Brittany plays flute at AgeSong’s University campus during Guru Launch Gala.
Psychotherapist Nader Shabahangi, founder of AgeSong and Pacific Institute, moderated discussion of the AgeSong Guru Project, a one-year initiative to “focus on comprehensive care partnerships with elders to understand need-driven behaviors and minimize risky use of psychotropic medication.” 

AgeSong Care Planning Liaison and Pacific Institute Clinical Psychology Ph.D. student Stephanie Rothman’s interest in “what matters in life” led to working with elders, whom she finds more authentic.  She described her disillusionment while attending last year’s Alzheimer’s Association International Conference in Copenhagen that was akin to a pharmaceutical convention.  Instead of drug treatment to make persons with dementia more like us inside, Stephanie seeks depathologizing dementia and psychosocial treatment to see the real person from his/her perspective: we learn from feistiness because we are better off when needs are expressed and supported.

Richard said humanity increases with dementia because you become more of who you are when pretense fades away and you get in touch with your needs for esteem, love and belonging, which you are more willing to express as you get older; forgetfulness gets you closer to humanity because you stay in the present moment to understand now instead of past; instead of looking back at "who I was," now time is spent working on "who I am."  Allen echoed those thoughts about getting to the essence when one is more honest and transparent with fewer agendas, and advocated for an abling perspective so people feel allowed to be.

After the panel discussion, I met Eveline Wu, GCFP, who co-authored the UCSF study on Preventing Loss of Independence through Exercise (PLIE) for Older Adults with Dementia, a non-drug intervention that focuses on training procedural memory for basic functional movements, while increasing mindful body awareness and facilitating social connection.

Hospital discharge
 
At Hospital to Home: A Community Forum on Hospital Discharge, held at 30th Street Senior Center's dining room, DAAS Director Anne Hinton provided an overview of San Francisco’s Long-Term Care Integration Strategic Plan.
 
Senior and Disability Action (SDA) Executive Director Sarah Lehman moderated the panel of speakers:
  • Carrie Wong, DAAS Director of Care Transition Operations, explained San Francisco Transitional Care Program (SFTCP) provides services (transportation including medication pick-up, 14 days of meals, 6 hours of homecare) for 4 to 6 weeks, at no cost to eligible San Francisco residents with Medicare Parts A and B who are referred by one of eight partnering hospitals to prevent unnecessary readmissions.  
  • Donna Willmott, SDA Consumer Advocate, reminded us that Medicare covers the first 20 days in an approved skilled nursing facility, only if one first has at least three full days of "inpatient" Part A hospital care. However, hospitals are placing more patients under “observation status” to protect themselves against new policies that penalize hospitals for unnecessary admissions.  Therefore, Medicare patients should ask whether they are considered inpatients or outpatients each day they are in the hospital as status can change.  More tips in SDA’s June 2013 newsletter
  • Marcia Peterzell, Community Living Campaign Connector, discussed Connections for Healthy Aging workshop that covers hospital stay and advocacy.  She distributed Vial of Life kits for us to complete personal identifying information, medical history and information, and emergency contact. 
  • Ken Hornby shared his personal experience and the need for self-advocacy to make sure one is heard to get the help needed.  Medicare has Discharge Planning Checklist.
One attendee shared her experience of having her service dog stay in the hospital with her.  (Some institutions recognize doctor’s orders for pet visits.) There were more providers than consumers at this event, which was scheduled at the same time as Ai-Jen Poo's book tour talk on Women, Leadership, and the Future of Care.

“Old is gold”: telephone community

After taking online classes like Coursera’s Living with Dementia: Impact on Individuals, Caregivers, Communities and Societies, conveniently accessible 24/7 with power point presentations, taking classes via telephone seems so quaint.  But a recent Telegraph article, “Why low-tech living is back” declared, “old is gold” with the popularity of printed books, vinyl records, typewriters, retro-phones, and Polaroid instant photo cameras.
 
Staying Engaged for a Lifetime gerontologist Hope Levy introduced Susan Lee Lindeman, Program Manager of Senior Center Without Walls, a “statewide telephone community” serving about 300 older adults age 60+ in California.  SFSU gerontology alum Terry Englehart founded this award-winning nonprofit in 2004 to connect homebound, isolated seniors via telephone in activities such as bingo, improvisation, armchair travel, singalongs, health presentations, book clubs, support groups, etc.  To participate or volunteer, call 877-797-7299.