Saturday, November 30, 2013

Quality of life

According to Chinese Medicine’s Five Element (WuXing) system, the autumn/fall/harvest season is associated with metal (element) and old age (life stage).  As an introverted old soul, I identify with the metal element and embrace old age with its potential for gerotranscendence:

“These typically include a redefinition of the Self and of relationships to others and a new understanding of fundamental existential questions. The individual becomes, for example, less self occupied and at the same time more selective in the choice of social and other activities. There is an increased feeling of affinity with past generations and a decreased interest in superfluous social interaction. The individual might also experience a decreased interest in material things and a greater need for solitary "meditation". Positive solitude becomes more important. There is also often a feeling of cosmic communion with the spirit of the universe, and a redefinition of time, space, life and death.” --Lars Tornstam, author of Gerotranscendence: A Developmental Theory of Positive Aging

I crave private moments to experience nature in solitude.  It’s about knowing how to be with “aliveness and newness moment by moment,” according to ancient Taoists, if we can experience energetic balance (qi flow) as we become one in harmony with our natural environment, and privacy gives one the freedom to be.

In this era of online social networking, I can seem like a Luddite because I
I don’t participate in friending, tweeting, LinkedIn, etc.  I value privacy, freedom of being off-the-grid and maintaining my small circle of confidants.  These cherished values inform my support for aging in place since an institutional alternative would diminish privacy and freedom that I believe to be so essential to quality of life. 
Social butterflies don’t have deep friendship connections (Butterflies & Blooms exhibit at Conservatory of Flowers), but social introverts do J.

Maslow’s theory of motivation suggested that our most basic needs must be met before attaining self-actualization (gerotranscendence). 

Physiological: gimme shelter & food
Senior & Disability Action (SDA) Housing Organizer and POOR Magazine co-editor Tony Robles and Housing Rights Committee of SF Tenant Rights Advocate Jennifer Willis at last month’s SDA meeting focused on Public Housing.  Jennifer said that SF Housing Authority is in the process of purging its Section 8 waiting list of 30,000 persons (some have been on this list for 10 years!) through the end of November, so it’s important to respond with current address: if letter is returned to sender, then person is removed from wait list.  Housing Authority wait list has been closed for years, and expectation is to purge 10,000 from current list and then re-order based on preferences such as disability or no permanent address.

The median age of America’s rapidly aging homeless population is 53.  Homelessness and the stressful conditions of living on the streets can take a heavy toll on health, and life expectancy on the streets is about age 64

At times, it seems like legislation tackles the problem of homelessness as a quality of life issue that jeopardizes public safety and aesthetics for NIMBY residents.  Homeless advocates view the effect of San Francisco "quality of life" ordinances that make it illegal for persons to sleep in public parks (which are now closed from midnight to 5 am) and in oversized vehicles parked overnight in certain neighborhoods as criminalizing homelessness and poverty. 

Why pick on vulnerable people who are already suffering (sleeping in vehicles are the last refuge from ending up on the streets), and why can’t we be just like Mister Rogers’ Neighborhood where neighbors peacefully work out their differences with compassion?  If we view homelessness as a symptom of poverty and the larger problem of wealth concentration (99% of Americans subject to the wealthiest 1%, who control more than 40% of the nation's wealth), then perhaps we can look to rich countries, like Sweden and Japan, that distribute their income the most equally have the longest life expectancy and the highest quality of life.

California Alliance for Retired Americans supports AB 5, Homeless Person’s Bill of Rights and Fairness Act.  According to the Bill’s author Assemblymember Tom Ammiano, “This bill is really about basic justice.  People who are homeless not only have to struggle with life on the street, [but] the indignity of being treated like criminals because they have nowhere to eat, sit or sleep except in public.”

San Francisco has the highest median rent in the nation.  The economic recovery, fueled by the latest tech boom (thanks to tax breaks and other corporate welfare incentives), has raised concerns that new, young workers willing to pay more for housing are displacing long-time, older residents on fixed incomes who are losing their homes because they can’t afford rent increases and Ellis Act evictionsMore LGBT elders are homeless on the streets of San Francisco.

Inclusionary housing isn’t just about affordability but universal design access for all ages.  This month the Long-Term Care Coordinating Council endorsed the Mayor’s Disability Council Resolution #2013-01 Recommending Guiding Principles for the Construction, Maintenance and Financing of Permanently Affordable and Accessible Housing for People with Disabilities and Seniors.

On Election Day (November 5), Tenderloin Neighborhood Development Corporation hosted Home Matters for Health symposium as part of a campaign to raise national awareness about the connections between home and health:  the impact of stable affordable homes on health, the value of supportive housing with health services provided at home, and the cost effectiveness of health care that prevents homelessness.
Mayor Ed Lee talked about San Francisco Department of Public Health’s Direct Access to Housing that provides on-site supportive services to low-income residents who were homeless or at-risk; last year’s creation of the $1.5 billion Housing Trust Fund for affordable housing to low- and middle-income residents over the next 30 years; tripling the funding to Human Services Agency to provide homeless prevention and eviction defense services; “re-envisioning” public housing by working with HUD on repairs (including elevators) to expand on SF HOPE model of community development; the opening of Veterans Commons with on-site supportive services for senior veterans; and emergency services with strong housing connections by expanding Project Homeless Connect to Every Day Connect. 
According to Dr. Joshua Bamberger (only male on panel, pictured above), San Francisco Department of Public Health’s Medical Director for Housing and Urban Health, living in “more beautiful” housing is associated with better health outcomes and even lower mortality rates--“self-efficacy and beauty make the difference.”  After the symposium, I asked Dr. Bamberger for his definition of “beauty” – did he mean housing that includes therapeutic landscapes, perhaps feng shui design? In response, he sent photos, which are posted online, but the interior spaces are not visible so I couldn’t see the inner beauty.

One in four San Franciscans is food insecure, or lacks access to healthy food, according to the San Francisco Food Security Task Force, which presented its 2013 Assessment of Food Security in San Francisco report to the Board of Supervisors this month.  The report notes that low-income households with seniors, children or a single parent are especially vulnerable, yet the report covers for 2010 and 2013 feature photos of young children only.

This month SNAP (Supplemental Nutrition Assistance Program, formerly known as food stamps and now branded as CalFresh in California) benefits were cut by 5% due to expiration of stimulus funding.  I volunteer at Project Open Hand, which prepares nutritious “meals with love” to 18 senior congregate meal sites in San Francisco, so I wanted to participate in its SNAP Challenge from November 21 to 28, by spending no more than $4.56 per day on food, which is the average amount received by 4.1 million SNAP beneficiaries in California.  
This SNAP Challenge week coincided with my attendance at the Gerontological Society of America (GSA) annual meeting in New Orleans, where I couldn’t resist all the receptions and then the Oak Street Po-Boy Festival, where I enjoyed this amazing sweet potato, kale and pesto po-boy from Slow Food NOLA that cost me $5—exceeding the average daily SNAP food budget.

For my Aging & Social Policy class assignment to propose a budget-neutral policy, I presented my poster on Improving CalFresh for Seniors by addressing food security and nutrition.  While my classmates didn’t object to my plan for targeted outreach and marketing to enroll more seniors eligible for CalFresh, I nearly got chewed out for suggesting a waiver from USDA’s Food and Nutrition Service (which administers SNAP) to apply WIC-like standards to promote nutrient-dense foods v. empty calories for low-income seniors, who have special nutritional needs like the WIC population (low-income pregnant/nursing mothers, infants and young children).  Of course, it didn’t help that I criticized SNAP rules that allow purchase of “junk food” items (e.g., soda, candy, chips, etc.) that my own classmates were eating in the classroom during my two-minute presentation.  Yet, proper nutrition is especially critical for senior health promotion and disease prevention, as malnutrition in seniors leads to chronic conditions (heart disease, diabetes), slower healing rates, increased hospital stays, premature nursing home placement, etc. that impair both quality and quantity of life.

Safety (net):  Social Security & Medicare
National Committee to Preserve Social Security & Medicare Foundation (Board Chair Carroll Estes, pictured above, provided introductory remarks) and Openhouse (Executive Director Seth Kilbourn seated in middle) hosted Know Your Rights and Claim Your Money: Social Security and the LGBTCommunity at the San Francisco LGBT Center.  This forum focused on the aftermath of the U.S. Supreme Court’s rulings in June, which cleared the way for federal benefits for same-sex married couples (finding Defense Of Marriage Act’s Section 3 unconstitutional) and for same-sex marriages to resume in California (rejecting Yes on Proposition 8 appeal).  The panel urged same-sex married spouses to file an application for Social Security spousal benefits now since eligibility date is triggered by the filing date of application. Because Social Security law looks to the state of residence in determining whether a same-sex couple is married, it’s not clear what happens to same-sex spouses who move to a non-marriage equality state. 
At JCCSF’s The Art of Financial Well-Being, Carroll Estes discussed how the proposed “chained” CPI (Consumer Price Index) for making COLA (cost-of-living adjustments) to Social Security benefits will hurt seniors by reducing benefits based on lower estimates of inflation.  The current COLA already undercounts the higher inflation experienced by seniors who spend a higher percentage of their spending to health care costs.  Instead, Estes supports a more accurate inflation measurement for the elderly, the CPI-E that was developed in 1982 to reflect the different spending patterns of consumers age 62+, with a greater weight on health expenditures that continue to rise faster than other expenses. 
Kenneth Gardner of the Centers for Medicare and Medicaid Services presented Medicare 101.  Medicare focuses on acute care (doctor visits, drugs, brief hospital stays) and short-term services for conditions that are expected to improve – not chronic conditions, so Medicare does not cover long-term (custodial) care.  Instead, Medicaid is the dominant source of payment for long-term care, followed by out-of-pocket payments by individuals.  The odds are 1:2 whether one will need LTC; in 2012, the national average cost of one year in a private nursing home was $90,520.  
SFSU Health Education Chair Mary Beth Love moderated New Era of Healthcare Panel, noting that the Affordable Care Act (ACA) endorses a public health or ecological model: 
  • California Pan-Ethnic Health Network Executive Director Ellen Wu hailed ACA’s policy to improve quality and access to health insurance coverage, with an expansion of the insurance marketplace (e.g., Covered California) and some states expanded Medicaid eligibility.  ACA improvements to Medicare coverage include expansion of preventive services such as free annual “wellness” visits.
  • City College of SF Community Health Worker (CHW) Program Coordinator Alma Avila discussed integrating CHWs, housing and employment services in community.
  • SFSU Holistic Health Institute Director Adam Burke (also a licensed acupuncturist) discussed the role of low-tech Complementary and Alternative Medicine in health promotion and wellness, recognizing that consistent killers are lifestyle factors (exercise, nutrition, smoking, alcohol, stress) that can be managed with self-care. 
Health care v. insurance: “Medicare for all ages” is the motto for a single-payer system, while Obama’s attempt at universal health care via ACA appears to be a form of corporate welfare because it subsidizes the private health insurance industry by mandating that individual Americans buy its product.  Under ACA, pediatric dental and vision care services are mandated as “essential health benefits”—is this ageism? Aren’t dental and vision care (also not covered by Medicare) essential for all ages?

Social:  community building

One-third of older Americans live alone, mostly out of personal preference; women over age 60 who live alone report more happiness than married women the same age.  Moreover, older adults who live alone are more likely than their married counterparts to spend time with friends and neighbors.  LGBT Aging Task Force found that 58% of gay seniors in San Francisco live alone, but they often are reluctant to use public services for the aging because they don’t feel welcome due to their sexual orientation so informal support (family, friends, neighbors) is important.
 
Community Living Campaign presented its 4-week Connections for Healthy Aging workshop series focused on challenging myths about aging and normalcy, fostering inclusiveness through People First Language, building social networks of care to survive a hospital stay/discharge; documenting health care decisions (vial of life kits, advance health care directive) to make your wishes known to others, etc.

Esteem

Education and advocacy can empower persons against ageism and ableism.

“My moral opposition to prenatal testing and selective abortion flows from the conviction that life with disability is worthwhile and the belief that a just society must appreciate and nurture the lives of all people, whatever the endowments they receive in the natural lottery.” –Adrienne Asch, 67-year-old bioethicist, died this month 
Future Past: Disability, Eugenics and Brave New Worlds symposium was an opportunity to examine the debate favoring the value and contributions of all persons versus discrediting those “not worth living” in a utopian effort to “improve” human breeding via eugenics (like Nazi genocide, euthanasia, sterilization, prenatal selection, etc.).
 
In her welcoming remarks, Cathy Kudlick, Director of SFSU’s Paul K. Longmore Institute on Disability, rejected the notion that disability can or even should be erased; rather, disability remains despite scientific breakthroughs, which allow persons with disabilities to live longer.  By accepting disability and valuing disabled persons as worth preserving, Kudlick said we approach disability as a “generative force for productive conversations” and consider the fundamental questions to advance social justice: “What does it mean to be human? How do we respond ethically to difference? Who gets to decide? What do the answers reveal?”  
WHAT? Eugenics and Disability: Past and Present panel featured
Alexandra Minna Stern, SFSU alumna and author of Eugenic Nation: Faults and Frontiers of Better Breeding in AmericaMarcy Darnovsky, Center for Genetics and Society; Glenn Sinclair, Living Archives on Eugenics in Western Canada and sterilization survivor; and Nicola Fairbrother, Neighborhood Bridges

Eugenics is based on the medical model that attempts to diagnose, manage, control and prevent differences from “normality” by reducing persons who don’t "fit in" to labels (like defective, imbecile, mentally retarded, etc.) and then segregating them, with disparate impact on minorities and poor.  Instead of this misguided science dependent on value judgments, a social model that offers improved access to disability-friendly resources promotes inclusion. 
After listening to each panel, participants at each table engaged in small-group discussions based on materials introduced by Milton Reynolds of Facing History and Ourselves, and then voluntarily reported back to everyone in the conference room. 
 
SO WHAT? The Consequences of Misremembering Eugenics
Rosemarie Garland-Thomson, Emory University, stated “the presence or absence of a disability does not predict quality of life.”
Troy Duster, UC Berkeley Chancellor’s Professor of Sociology, considered the conditions under which society determines “what kind of people you don’t want”—disruptive socio-economic transformations that categorize people as “makers” or “takers” in the struggle for resources—create fertile soil for eugenics.
Rob Wilson, University of Alberta , talked about his institution’s complicity in the sterilization program yet has never apologized.
Marsha Saxton (moderator), World Institute on Disability, mentioned the challenge in funding research for drug treatments that could improve quality of life (like one based on a drug for Alzheimer’s to help “normalize” learning and memory in persons with Down syndrome) that compete against prenatal testing (to prevent Down births). 
NOW WHAT? Looking Ahead to Brave New Worlds
Patricia Berne, co-founder and director of Sins Invalid, showed video clips of her performance art project that celebrates artists with disabilities and other marginalized groups within a social justice context.
Milton Reynolds, Facing History and Ourselves Senior Program Associate, highlighted the role of education, such as California’s Fair, Accurate, Inclusive, Respectful (FAIR) Education Act that requires teaching LGBT, disability and other traditionally underrepresented cultural groups, in transitional justice processes that include institutional reform, cultural response, judicial response, reconciliation, restitution and reparations, and truth commissions.
Gregor Wohlbring, University of Calgary Professor of Disability Studies, who joined the conference via skype, noted that both negative (sterilization of those deemed “unfit to breed,” selective abortion after genetic testing reveals “undesirable” traits) and positive (somatic and germline therapy, human enhancement beyond norm) eugenics are based on ableism (disability discrimination/oppression).
Kate Wiley, SFSU alumna and Lick-Wilmerding High School teacher, talked about her students creating an online petition asking the State of California to include California’s history of eugenics in its public high school curriculum. 
In closing remarks, Emily Smith Beitiks, Assistant Director of SFSU’s Paul K. Longmore Institute on Disability, expressed her hope that in the future we will not need to hold a conference to make the argument that certain people have the right to exist. 

Joanna Fraguli of the Mayor’s Office on Disability (MOD) was one of the presenters at SDA's 4-week Disability Survival SchoolIn addition to SDA staff presenting on the history of disability rights movement, community organizing, health care and housing, we were introduced to representatives from Independent Resource Living Center for assistive technology and fair housing, SF Municipal Transportation Authority, Department of Rehabilitation for employment, Health Insurance and Counseling Advocacy Program (HICAP) for Medicare counseling, and AIDS Legal Referral Panel for reasonable accommodations.

San Francisco is the place to be happy, healthy and fit!

Saturday, October 26, 2013

Coming out: disability awareness

Nearly 1 in 5 Americans has a disability, the nation’s largest minority.  Fewer than 15% are born with their disabilities; if you live long enough, you’re likely to acquire a disability. 

The U.S. has a long history of discrimination against persons with disabilities, keeping them out of public view via institutionalization.  As a result, most Americans may have learned about disabilities through popular media’s distorted images.  For example, disability portrayals feature younger persons more often than older adults, who actually represent the largest group of persons with disabilities.  Instead of perpetuating ableism and ageism, it’s time to learn from the experts—actual persons with disabilities!

Superfest: The Dissies

“Whether films take us somewhere far away outside or deep down inside, they involve an intimate dance between projection and reflection, a giant flickering mirror, not just back to us, but to the society and culture we live in.  They shape how we see ourselves individually and collectively, how others see us, and how we see others.  This is why movies matter, why they occupy a key intersection where entertainment, psychology, and social justice meet.” – Why the Dissies, by Catherine Kudlick, SFSU Professor of History and Director of Paul K. Longmore Institute on Disability 
SFSU’s Paul K. Longmore Institute on Disability  and SF LightHouse for the Blind and Visually Impaired provided an empowering opportunity to critique disability portrayals in their joint presentation of Superfest International Disability Film Festival to a full house at the Women’s Building in the Mission District. This event was fully accessible beginning with the program brochure, which was prepared in both large print and Braille.  The program included ASL interpreter on stage with closed-captioning (for hearing challenged), audio description of video clips (for visually impaired), and ample space for wheelchairs/walkers/canes.
Culture! Disability!Talent! passed Superfest Torch to Bryan Bashin of SF Lighthouse for the Blind and Catherine Kudlick of the Paul K. Longmore Institute on Disability. 
Superfest Committee member Emily Smith Beitiks (Longmore Institute) and Judge Todd Higgins (SFSU’s Disability Programs and Resource Center) mingled with guests, enjoying drinks + popcorn before show began.
Being volunteer usher was an awesome experience for a behind-the-scenes look at putting together a fully accessible event for persons of all abilities! “Bossy” Corbett O’Toole showed me the best seats for the hearing impaired to be close to ASL interpreter, center aisle for those in wheelchairs, back seats for guests with service dogs, etc.
This year’s Superfest featured The Dissies, a one-night retrospective of the “worst of the worst” film clips portraying cringe-inducing disability stereotypes in mainstream movies.  The audience, or experts, then voted by sound ("howl, heckle and hoot") and movement (“have a seizure”).  After a panel of three judges declared the winners, Vannas presented Tiny Tim statuettes to leaders from the disability community who took the stage to deliver fake acceptance speeches.
Master of Ceremonies Lawrence Carter-Long, founder of disTHIS! Film Series (and in his second week as a furloughed federal government employee at the National Council on Disability), watched 230 films to whittle down to 22 contestants.  Based on expert opinion, the winners were (drum roll . . .):  
Worst Portrayal of a Disability by a Non-disabled Actor awarded to Gene Hackman as a blind hermit in Young Frankenstein (1974) for cluelessly ladling soup on his guest's lap and then shattering a wine mug while toasting.  Hey, what happened to a blind person compensating with an acute sense of hearing?! asked Carter-Long. UC Berkeley English Professor Georgina Kleege accepted the award on behalf of Hackman for his representation with such effect that no one would want to come to a blind person’s home for soup.

So Sweet (that They’re Not) honor went to Shirley Temple in Heidi (1937) for urging Clara to walk without crutches “if only you try hard enough.”  This category was a tough call as contenders—other nominees were Mary of The Secret Garden (1987) and Pollyanna (1960)—featured almost indistinguishable "cute, little white girls" helping “pathetic” disabled. 
The Most Amazing Miracle award went to paralyzed Allan Mann of Monkey Shines (1988).  This was another close call with Forrest Gump (1994) for Run, Forrest, Run! scene when Forrest’s leg braces fall off as he sprints like an Olympic track and field athlete away from the bullies. Scientist Joshua Miele put on eyeglasses to get in character for his hilarious acceptance speech, noting that he was “drinking beer earlier and the fact that he didn’t miss his mouth one time was amazing. . . you people are so inspirational” and then thanking the “differently crippled, or whatever.”
The Most Tragic win was Million Dollar Baby (2004 Academy Award Best Picture) for its "better dead than disabled" scene of the former boxer, depressed over her sudden quadriplegic state, asking her coach (played by Clint Eastwood) to put her down like her family’s old dog instead of fighting to change her situation and environment.  Big audience applause when award acceptor Victor Pineda noted that the film’s protagonist would have been better off without Eastwood character.

Audio Eyes (mostly spoken by blind actor Rick Boggs) deserved honorable mention for audio description of video clips.  For example, after The Most Tragic nominee Al Pacino, who played a blind and retired Army officer, in Scent of a Woman (1992), attempts suicide saying, “I got no life! I’m in the dark here!” the sarcastic audio description says he “closes his useless eyes.” 

The Worst Disabled Villain:  Peter Sellers as Dr. Strangelove (1964) who has alien hand syndrome and uses a wheelchair

Crips Gone Wild! (And Ruining Everything):  Danny in Blind Dating (2006)

Hey, only we can laugh at that!: The Ringer (2005)
I enjoyed this view of the stage from the balcony, which was mostly standing-room. After the last laugh, there seemed to be a collective cathartic release from confronting tiresome tragic/heroic stereotypes of disability.  I’m looking forward to next year’s Superfest showcasing more diverse and complex representations of disability culture—as Carter-Long told us, “No handkerchief necessary, no heroism required.”
  
Mental health disabilities

At The Dissies, Glenn Close in Fatal Attraction (1987) was nominated for Worst Portrayal of a Disability by Nondisabled Person.  At the White House Conference on Mental Health this past June, the actress came out to apologize for her portrayal of the obsessive spurned lover who boiled the bunny to death.  Portrayals of persons with mental health disabilities as having suicidal and homicidal tendencies contribute to the stigma that silences those who need support toward recovery to regain control over their lives.

This October 31 marks the 50th anniversary of the Community Mental Health Act, which helped de-institutionalize persons with mental disabilities back into the community.  Yet, the three largest mental health providers in the nation today are jails

Depression is a leading cause of disability.  Women, who tend to ruminate on sources of problems rather than solutions, are twice as prone to depression as men. Depression can cause cognitive impairment: executive function deficit, slower processing speed, psychomotor slowness, attention problems, and lower working and verbal memory.  Depression is emotional suffering, as opposed to apathy, which is loss of motivation that is typical in Alzheimer’s disease or dementia.
Depression actually declines with age, but is the most common emotional problem among older adults.  Yet many older adults are reluctant to talk about depression, seek psychological help, and tend to be noncompliant with medications.  At the SF Main Library, I attended gerontologist Hope Levy’s Brain Fitness class featuring guest speaker Charles Vella, who recommended SPEAK UP for self-care:
Schedule: sleep, eat
Pleasant activities: fun, people
Exercise
Avoid alcohol/drugs
Kind thoughts: challenge negative thinking
Unwind: relax
Practice assertiveness

In addition to self-care, Dr. Vella said that depression can be treated through medications, patient education, cognitive behavioral therapy, and relapse prevention.    

Dr. Vella also discussed suicide = permanent solution to temporary crisis:
·         Elderly make up 13% of U.S. population, but 16% of suicides
·         Most at risk for suicide are older white males; contributing factors are depression, chronic health problems, difficulty adjusting to life change, isolation
·         79% of all firearm suicides are white males age 85+ 
·         61% of gun deaths in America are suicides (50% of all U.S. households admit to having firearms, which is risk factor for completed suicide)
·         Firearms remain most common method of suicide: 46 Americans commit suicide with guns everyday.  Firearms are used in only 5% of suicide attempts, but almost always fatal.
·         Suicide completion rate for men is 4x higher than women
·         50% of completed suicides are done under influence of alcohol, which is a depressant

Suicide Prevention
SFSU hosted Suicide Prevention Regional Conference’s We All Matter: Creating a Community of Caring.  Keynote speaker was Kevin Hines, author of Cracked, Not Broken: Surviving and Thriving After a Suicide Attempt.  As a 19-year-old college student with a recent bipolar disorder diagnosis, he attempted suicide by jumping from the Golden Gate Bridge.  As a survivor, he advocates for a suicide barrier and mental health wellness.
 
In the closing keynote, clinical psychologist Wei-Chien Lee shared her Reflections, or casual sayings that can make depressed persons feel worse – reminding us that “the symptoms of our people are the symptoms of our culture.”  For example, do people really care or mean what they say, “How are you? Let’s do lunch.”  How do predominant American cultural values like rugged individualism (pull yourself up by your own bootstraps) and the exaggerated pursuit of happiness (“don’t worry, be happy” at the expense of other emotions like “smile and the world smiles at you, cry and you cry alone”) affect our well-being?  She concluded her presentation with a sincere Small Actions Count (El Llanto), similar to random acts of kindness philosophy.
Active Mind’s Send Silence Packing is a traveling art exhibit of over 1,100 backpacks that represent the number of students who die by suicide each year. 
Much of the conference and accompanying exhibit focused on suicide prevention among younger adults, but I spotted this backpack about Grandmother.  In addition to stories on some backpacks, white poster boards carried messages like:
Stigma is shame, shame causes silence, silence hurts us all
We may often suffer in silence, but we do not suffer alone
Each suicide produces as many as 100 survivors or people left to grieve

By the way, the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) eliminated the two-month bereavement exclusion so now people who grieve the loss of a loved one can be diagnosed with depression, making anti-depressants more readily available. 


Nihil de nobis, sine nobis (Nothing about us, without us)

As I reflect on disability awareness month, I think about having the cultural humility to meet people where they are, instead of imposing the medical model of disability.  For example, it’s disturbing that the American Psychiatric Association (APA) attempted to pathologize introversion in its DSM-5.  Instead, let people who are the experts in their own lives define their needs; respect the individual and provide a supportive environment.  In this social model, disability is a social construction:  the problem resides in the environment that fails to accommodate people with disabilities, and in the negative attitudes of people without disabilities.  

Sunday, September 29, 2013

Mindfulness

In this age of 140-character tweets, my biggest academic adjustment over the past year has been to adopt the “SF State of Mind,” which seems to emphasize brevity, or KISS (Keep It Simple Sweetie, as one gentle professor reminded my class): course assignments were typically 2’ x 3’ posters; research papers ranging from 5 to 8 pages (like executive summaries); and oral presentations allowed only 2 to 5 minutes on average, and 10 minutes maximum.  

For an introvert like myself, who prefers gray matter – complexity versus black/white simplicity, deep discussions versus chit-chat or sound bites, I had to constantly remind myself to be less intense and think like a blogger instead. . . Now in my second (and, I hope, final) year in graduate school, I felt rewarded upon learning that my culminating experience assignment would be 30 pages! 

Outside SFSU, I use this blogspot for freely wandering and wondering -- without paying attention to length and time restrictions :-)

Senior & Disability Action: Putting the "D" in SDA! Mind your manners

SDA staff use popular education in this skit to cover what to do and what not to do in interactions with persons with disabilities.
Moderator Donna held up a STOP sign to de-brief after each scenario of Jessica (in wheelchair) and Tony (standing as her companion) when they encounter Sarah and James at a meeting.
  • Don’t treat a person in a wheelchair as though she's not able to speak for herself 
  • DO speak directly to the person in a wheelchair, on the same eye level if possible
  • Don’t assume low expectations of a person in a wheelchair by making over-the-top comments like “wow, it’s so inspiring how you actually got up and left the house to come here,” as if doing everyday activities is exceptional
  • DO remember the person is not a disability
  • Don’t be patronizing or pity a person in a wheelchair by offering to “pray so you can be a whole person”
  • DO treat all persons with respect and dignity

Aging While Black Forum
Deloris McGee and Marie Jobling of Community Living Campaign organized their second annual Aging While Black Forum at I.T. Bookman Community Center.  OMI Community Connector Deloris initiated last year’s Forum in response to her community’s request for a culturally sensitive program in the OMI community because blacks are “sicker, poorer, and have more issues to deal with when born into a pre-existing condition of racism and discrimination.” 
Highlight was hearing from Dorsey Nunn, Executive Director of Legal Services for Prisoners with Children (LSPC), who didn’t find humor in a previous speaker’s “joke" about sending seniors to prisons where they can get their basic needs met including video monitoring and guards.  Some audience members actually laughed at this "joke," which made me uncomfortable to think that the invisibility of persons in institutions like prisons and nursing homes might lead to insensitivity and ignorance about true conditions.

Formerly incarcerated as a 19-year-old, now 61-year-old Nunn said that depicting prison as a luxury vacation is like characterizing slavery as good for jobs – the reality is no freedom in prison and slavery.  He invited us to celebrate LSPC’s 35th anniversary next month with Michelle Alexander, author of The New Jim Crow: Mass Incarceration in the Age of Colorblindness, which presents evidence that more Blacks are enslaved behind bars today than were enslaved on plantations in 1850, a decade before the Civil War began and the Emancipation Proclamation was signed.

Nunn also talked about the realities of aging in prison, like a 70-year-old struggling to climb to the top of a bunk bed, defecating on himself, not being able to defend against younger prisoners who play loud hip-hop, falling inside a cell with no one to check on him, etc.  Read LSPC’s report, Dignity Denied: The Price of Imprisoning Older Women in California, by Heidi Strupp and Donna Willmott (note: same Donna as the SDA moderator above).  Consistent with the program’s theme of community building, Nunn also brought attention to the recent prisoners' hunger strike to protest solitaryconfinement.  


On Lok Lifeways Sustainable Long-Term Care: Matter Over Mind?  

Mind matters! Raised in the holistic (mind-body connection) practice of Traditional Chinese Medicine (TCM), I find the Cartesian mind-body split puzzling.  I also find puzzling the notion of emotions being either “positive” (encouraged) or “negative” (discouraged).  According to the Nei Jing (Chinese medical text), the seven emotions—joy, anger, sadness, grief, pensiveness, fear and fright—all appear in healthy individuals, and cannot be separated from the physical.  In TCM, moderation and balance are key, so emotions are acknowledged and expressed appropriately; but when an emotion is either excessive or suppressed, then this disharmony results in compromised health. 
On Lok Lifeways CEO Bob Edmondson welcomes 300+ conference attendees

When I received this year's invitation to the 6th annual On Lok Sustainable Long-Term Care Conference focused on “the latest developments and innovations in meeting the mental health needs of older adults,” I was intrigued by the “Matter Over Mind?” theme, but somewhat disappointed that this emphasis on the “latest” meant there was no presenter representing the “traditional” Chinese medicine perspective.  (Nonetheless, I registered for the conference—just as I did last year because I couldn’t resist the student discount rate!) 

After all, the holistic Chinese perspective influenced On Lok to pioneer the model of coordinated care for older adults with chronic care needs in community settings, rather than institutions, in San Francisco’s Chinatown over 40 years ago.  Based on traditional Chinese “it takes a village” and preventive health services model, On Lok (which means “peaceful, happy abode” in Cantonese) provides high-quality, culturally appropriate one-stop shopping:  medical and social supportive services, like nursing and physical, occupational and recreational therapies; meals; nutritional counseling; social work; home health and personal care; prescription drugs; respite care, etc.  On Lok’s model was so cost-effective while reducing nursing home admissions for participants that it was replicated under a new name, Program of All-Inclusive Care for the Elderly (PACE), in 1987 and then made a permanently recognized provider type under the Medicare and Medicaid programs in 1997.  (In 2006, On Lok renamed its PACE program to On Lok Lifeways.)  
AgeSong CEO/Founder Nader Shabahangi's conference moderator role was rather limited to introducing presenters and fielding questions from the audience.  I thought he would be an interesting presenter himself – especially as I was interested in learning more about AgeSong’s new partnership with University Mound Ladies Home.
Pop psychiatrist Daniel Amen on Preventing Alzheimer's Disease - Former X-ray technician Dr. Amen said the important question is: how do you know what’s going on in the brain unless you look?  He uses single-photon emission computed tomography (SPECT), a form of nuclear imaging test that measures blood flow to the brain.  His belief is that the brain does not deteriorate, but behavior can accelerate or deteriorate the brain, so we have a choice how fast the brain ages and can reverse brain damage.  But often we do not care because we can’t see.  Dr. Amen said we need to start by knowing the health of our brain, as revealed by SPECT scan, and losing belly fat because “the obesity epidemic is the biggest brain drain.”  The rest of his presentation was common-sense advice to reduce risk factors (avoid anything that hurts brain, engage in regular brain-healthy habits).  Yet, Dr. Amen remains controversial due to his use of SPECT to diagnose individuals, and the lack of peer-reviewed studies of his work. 

The next two speakers provided an interesting counterpoint with their emphasis on peer-reviewed research.  Psychotherapies are about as effective as medications in reducing symptoms of clinical depression or anxiety disorders, but without meds’ side effects. 
UCSF clinical psychologist Patricia Arean, on Behavioral Interventions for Late Life Depression, Anxiety and Chronic Illness Management, talked about the evidence-based research to support psychotherapy for older adults: cognitive behavioral therapy, interpersonal therapy, and problem-solving.
On Lok Lifeways Chief Medical Officer Jay Luxenberg on Drugs and Other Therapies for Mental Illness in the Frail Elderly: What is the Evidence?
Next up was a more touchy-feely presenter, Khatera Aslami, who is President of the Board of Directors at Copeland Center for Wellness and Recovery, on Wellness and Recovery Action Plan (WRAP) and Eldercare.  WRAP is a strengths-based approach founded on the principles of hope, personal responsibility, education, self-advocacy and support.  WRAP includes wellness tools, daily maintenance, action plans for triggers/early warning signs/when things are breaking down, crisis planning and post-crisis planning.  Aslami didn’t really address eldercare, other than to briefly mention that Alzheimer’s might prevent new learning to make good decisions about lifestyle, relationships, health care, leisure, etc., and isolated older adults might find it more challenging to have at least five key supporters to call upon when needed.  But her presentation was a good WRAP review as last year I took an introductory class on this recovery model at City College of San Francisco, where I continue to take coursework in its Community Mental Health Worker program
Engineer Joseph Choi founded TheraBaby, life-sized baby dolls that serve as companions for seniors living with dementia.  His own mother, who had late-stage Alzheimer’s disease, had dramatically improved her quality of life after bonding with the first TheraBaby, which also sparked social interaction among other residents.  In July 2012, Choi launched TheraBaby as a social good project by finding sponsors to adopt TheraBaby into senior care organizations in the Bay Area and Hawaii.  At this time, TheraBaby appears with blue eyes only, though Choi says he would consider different looks as his project grows.
Brain-friendly Mediterranean lunch of salmon on bed of greens: what's good for the heart is good for the brain
Psychiatrist Roberto Mezzina on An Open Door/No Restraint System of Care for Recovery and Citizenship in Trieste, Italy, reported that Trieste was able to dramatically reduce hospitalization/institutionalization with community services to promote aging in place, even when more than 27% of the population is over age 65! 
Stanford research psychologist Philippe Goldin on Science and Practice of Mindfulness Meditation, began a meditation exercise when I excused myself to head over to my late afternoon gerontology research class at SFSU.   

I also missed the last presentation on Harnessing Neuroplasticity of the Older Brain to Enhance Cognition, by UCSF neuroscientist Adam Gazzaley.  However, I’d read about Gazzaley’s study suggesting that older adults can improve cognition by playing video games, which are fast-paced and unpredictable, adaptable in difficulty, and challenging to working memory, attention and processing speed.  Sure, this might be one of the “latest developments and innovations,” but I prefer to engage my brain from traditional social interactions in the real world rather than games in the virtual world.  The former is intrinsically rewarding, while the latter is just a means to an end—much like how I prefer getting my nutrition from traditional whole foods, rather than supplements or fortified foods.

Brain Fitness
Psychologist Charles Vella presented Aging, Dementia and Brain Health in gerontologist Hope Levy's popular Brain Fitness series at the Main Library through City College of San Francisco's Older Adults Program.  Here are Dr. Vella’s Ten Commandments for Brain Fitness:
1.     Thou shall exercise daily.
2.     Thou shall minimize risk factors for cerebrovascular disease (hypertension, hyperlipidemia, diabetes, overweight, smoking)
3.     Thou shall eat Mediterranean diet.
4.     Thou shall choose thy parents wisely.
5.     Thou shall maintain intellectual engagement throughout life.
6.     Thou shall cultivate and sustain friendships and good company.
7.     Thou shall obtain restful sleep.
8.     Thou shall enjoy only one drink of alcohol.
9.     Thou shall manage stress effectively.
10.Thou shall not text or use cell phone while driving.

Mindful Eating 
Neuropsychologist Nancy Hoffman on Food and Mood: How the Food You Eat Affects the Way You Feel, at Life Planning Network meeting, hosted by Lee Abel, at AgeSong's rooftop garden.  Hoffman based her talk on nutritionist Elizabeth Somer’s book, Food and Mood, focusing on food sources of neurotransmitters like mood-enhancing dopamine (meat, milk, eggs, fish, beans, tofu), calming serotonin (tryptophan with complex carbs), pain-killing endorphins (high protein, daily exercise) and acetycholine for memory/new learning/attention (egg yolk, wheat germ, soy, cauliflower, chicken).  It was very similar to Marin County psychotherapist Julia Ross’ The Mood Cure, which I read while studying holistic nutrition.

Moving Meditation 
I get my qi flowing during Da Yan Qi Gong class at Botanical Garden inside Golden Gate Park.