My she-ro, Ruth Bader Ginsburg, died on Erev Rosh Hashanah, which makes her Tzadik (person of righteous deeds), according to Jewish tradition. May her memory be a blessing.
Like many RBG followers and her neighbors, who posted sidewalk sign “If you won’t wear a mask to protect your friends and family, do it to protect RBG,” I worried that she might get COVID-19. Earlier this month, reports circulated about 87-year-old RBG officiating a wedding – outdoors, but no masks worn and no distancing for harm reduction—just two weeks after her latest hospitalization for cancer, a co-morbidity that raised her risk for severe COVID-19 if infected. Very disappointed: The bride’s careless tweet, “don’t worry, we tested negative!” sounded like President Trump’s testing only strategy, providing absolutely no reassurance, as false-negatives occur. RBG’s death was reported as due to “complications from pancreatic cancer.”
I mourn the
loss of RBG, who modeled how to fight for causes: Her pragmatic, incremental approach enabled laws to catch up with social movements over time, leading former
opposers to join her. RBG’s monumental Olmstead decision (1999) makes possible my encore career advocating for community living/aging in place,
and her fight for gender equality has my eternal gratitude. RBG brilliantly applied Americans with Disabilities Act (ADA) and Equal
Protection Clause for inclusion of people with mental disabilities and both
genders, previously denied rights and opportunities due to discrimination.
I paid tribute
to RBG, along with Mister Rogers, when their documentary films were released two years ago. They are so inimitable that I have not seen
actors imitating them in Hollywood films, On the Basis of Sex and A
Beautiful Day in the Neighborhood. However, I plan to listen to Derrick Wang’s Scalia/Ginsburg comic
opera via WNED Classical radio on Nov. 7 @ 1 pm EST.
You can’t
have TRuth without Ruth!
“When
you write a dissent, you’re writing for a future court that will see the
error into which your colleagues have fallen.”—RBG, “In Her Own Words,” Elle
(Oct. 2014)
I will miss
RBG’s reasoned voice of dissent (for liberal minority), especially in
these times when shouting and interrupting pass as debate. RBG’s style was subtle like dropping
“respectfully” before “I dissent.”
Retirement
After RBG’s
death, I was appalled at the meanness of people blaming RBG for not retiring 7 years ago during Obama’s 2nd term so he could nominate a younger
replacement to prolong “liberal” legacy. Why the fixation on life expectancy, based on risk factors like age and disease?
To address partisan battles, consider judicial term limits instead of pressuring octogenarian
justices to retire?
At the
funeral of Justice John Paul Stevens (JPS), who died from a stroke at age 99
last year, RBG shared her exchange with JPS in the last week of his life when
they attended a conference in Lisbon:
RBG to JPS: My dream is to remain on
the Court as long as you did.
JPS to RBG: Stay longer!
JPS retired
at age 90, after serving 35 years in the U.S. Supreme Court, and then went on
to author 3 books, including 560-page memoir!
Thankfully for RBG’s retirement dissent, she became Notorious RBG at age 80. RBG epitomized the Power of Oldness!
With a lifetime appointment to the U.S. Supreme Court in 1993 (at age 60), why would RBG retire from a meaningful job that she loved after only 20 years? Sure, she had health issues, including 5 bouts of cancer, heart surgery, fractured ribs, etc. but nevertheless, she persisted with “full steam.” Nothing affected RBG’s brain or ability for legal reasoning. Grateful for her fierce work ethic and commitment fighting to protect our rights to the very end! Working Longer Solves (Almost) Everything: The Correlation between Employment, Social Engagement and Longevity.
American Society on Aging (ASA) CEO Peter Kaldes hosted The Four Pillars of the New Retirement: Dramatic Changes for Aging and Aging Services, based on study prepared by Ken Dychtwald of Age Wave (pictured with his Medicare statement, which he said needs to be more user-friendly), and Ken Cella of Edward Jones, finding that people of all ages are reimagining the pillars of retirement: health, family, purpose, and finances.
This was a
more holistic approach than traditional retirement planning, based on 3-legged
stool of employer-sponsored retirement plans + personal savings + social
security (safety net). Yet, since study was sponsored by financial services company, lots of messaging
how people are not financially prepared to retire and need to start saving/retirement
planning while younger...and send $$$$ to professional investment managers to collect fees! Same old, same old messaging when I worked in financial
services/retirement plans until Great Recession.
No surprise older generations (Silent Gen, Boomers) have remained more emotionally/psychologically resilient than younger generations (Gen Z, Millennials, Gen X) during COVID-19 pandemic. Ken D mentioned safety net helps mental health. Yes, thank compassionate ageism for facilitating old-age welfare state!
Almost 70% of Americans who plan to retire in the next 10 years say they have no idea what their healthcare and long-term care (LTC) costs will be in retirement. This graph might help: expect 10 years in poor health for Americans who live to age 78.5.
Thought about this chart after learning about two singer-songwriters who died yesterday at age 78.5+: Helen Reddy of “I am Woman” (1971), my empowerment theme song forever (relate to “wisdom born of pain,” but not so much “I am invincible”), died in MPTF nursing home, no cause of death reported but she had dementia during last 5 years; and Mac Davis of “In the Ghetto” (1969), social justice song about vicious cycle of poverty, died after heart surgery.
This month,
89-year-old Chuck Feeney, described to be “in poor health” and living with his
wife in rented SF apartment, set aside $2 million for their retirement after donating
more than $8 billion to various charities (including UCSF Global Brain Health
Institute) via Atlantic Philanthropies. Way
to go, Giving while Living, Chuck!
Family and community are important to living well with purpose. Research found definition of family broadened, mostly driven by younger generation, to include "families of affinity” (66%) and related by blood/marriage/legal adoption (34%). Majority (67%) of Americans say pandemic brought family closer together. 72% of retirees say one of their biggest fears is becoming burden on families; 71% of retirees willing to offer financial support to family, even if this could jeopardize their own financial future. Wonder if this is reciprocal: Would adult offspring be willing to offer financial support to their retired parents, even if this could jeopardize their own financial future?
U.S.
Government Accountability Office published Older Women Report Facing a Financially Uncertain Future (Sept. 24, 2020), based on focus groups with older women
mostly age 70+. Highlights: concerns
about future of safety net (Social Security, Medicare), costs of health care
and housing, lack of personal finance education negatively affected ability to
plan for retirement, etc.
Cost of retirement living highest in Hawaii, New York and California.
Things to
care about (lead others to join): Long-term care
At ASA Public Policy Town Hall, journalist Jay Newton-Small moderated audience poll and panel discussion with Charlene Frizzera, consultant (retired after 30 years at Centers for Medicare and Medicaid); Kathy Greenlee, JD, consultant (and former U.S. Assistant Secretary for Aging, 2009-16); and Kevin Prindiville, JD, Executive Director of Justice in Aging. ASA Public Policy Committee asked U.S. Presidential candidates about policy initiatives to meet needs of older adults: Trump has not responded yet, Biden’s response posted on ASA advocacy site.
In LTC
reform, 79% of audience supported nursing homes that are “reimagined” as
smaller, more home-like settings. Kathy added systemic changes needed for
nursing home staff to be paid more; private rooms for residents; Medicaid paying
for LTC impact on state budgets; disability community needs more options; more
attention to health equity/intersectionality.
Nearly 62% of audience polled preferred to receive information electronically, followed by 26% talking with someone. Charlene said COVID has been opportunity to force older adults to use digital tech; Kevin viewed information access as equity issue; Kathy added access needs to consider cognitive impairment, non-English, ADA, facilitation for telehealth.
When it comes
to monitoring and/or analyzing legislation, Kathy recommended looking to trusted
experts who can do this for a living (yes, subscribe + donate to Justice in Aging!), at federal level sometimes it’s not about legislation but (agency) regulation, focus
on budget driving programs so need “people on the ground” locally talking to
legislators back home to advance budget items.
Whether
candidates for elected office fully understand issues faced by older adults and
are offering coherent policy recommendations, 94% of poll think candidates
“need improvement.”
After mentioning that her father hid his Alzheimer’s diagnosis for 10 years due to stigma fears, Jay noted how Presidential candidates seemed to weaponize age and mental acuity, and asked is it appropriate to ask whether someone is sharp enough to be President at a certain age? Kevin replied this was inappropriate as ageist and ableist.
(University
of Illinois longevity researcher Jay Olshansky found that 77-year-old Biden and
74-year-old Trump are likely “super-agers,” who maintain their mental and
physical functioning and tend to live longer than the average person.)
Jay read my question
(submitted anonymously) on whether candidate with narcissistic personality disorder (NPD) can properly hold public office? Long silence, then finally Kevin
responded in politically correct manner, “is there such a candidate? All kinds
of people with all different kinds of abilities can represent our country.” I dissent, submitting that people with
NPD lack empathy needed for leadership and NPD might explain failure to model COVID-19 public health orders like mask
wearing!
When Jay
asked about cancel culture, Kathy mentioned she turned age 60 (making her
eligible for Older Americans Act programs 😊), recognized term political
correctness renamed cancel culture can be taken to extreme to shut down people,
which she believes is a symptom, not cause, of distrust and lack of
conversation. For example, when she created
Administration for Community Living to combine disability with aging, she
worked hard to earn trust from disability field, asked “am I saying this
correctly?” to learn her way, doing more listening than talking. (According to
POLITICO survey, Gen Z and Millennials favor cancel culture more than Gen X and
Boomers.)
Ken Stern of Longevity Project, in collaboration with Stanford Center on Longevity, hosted Longevity and the Pandemic: A Look Back, A Look Ahead, virtual panel discussion with Laura Carstensen, Stanford Center's founding director (pandemic accelerating changes underway like addressing equity); Andrew Scott, London Business School economist/author of self-help book, The 100 Year Life: Living and Working in an Age of Longevity (2016) (pandemic as “viral attack on aging” and reveals which countries equipped to deal with aging society); Jack Rowe, Columbia Professor and Successful Aging co-author (need “complete redesign” of LTC, more intergenerational spaces via tax breaks and incentives, telemedicine paid by Medicare and insurance here to stay per stock market). Perhaps in response to my question about diversifying panel in July, this program included pre-recording from John Eu-Li of National University of Singapore (discussed Singapore’s success with infection control, Seniors Go Digital program).
Gray Panthers SF convener Art Persyko moderated meeting on Nursing Home Crisis and Struggle for Aging in Place:
·
Marilyn
Albert, Registered Nurse (retired) and advocate with Healthy California Now, explained problem out
in open with 76,270 COVID-19 deaths in LTC facilities: private equity consolidation of for-profit hospital system invaded nursing home system to the
detriment of health care quality.
·
Pat
McGinnis, Executive Director of California Advocates for Nursing Home Reform
(CANHR), recommended lawsuits for nursing home deaths, take profit out of
nursing homes; prioritize keeping people out of nursing homes by creating more affordable
models to stay at home; get more legislators to care about issue than wait
until their own family member needs LTC; non-profit Front Porch + Covia senior living
communities.
·
Jodi
Reid, Executive Director of California Alliance for Retired Americans (CARA),
discussed successful fight against state cuts to Home and Community Based
Services (HCBS) and advocacy for HCBS Long-Term Services and Supports (LTSS) in Master Plan on Aging (MPA).
Coronavirus Commission on Safety and Quality in Nursing Homes released
its final report, with lone dissent by Justice in Aging Directing
Attorney Eric Carlson due to its imbalance: recommendations for federal
government, but not enough to make nursing homes responsible for resident
safety and quality of life.
National Academy of Social Insurance (NASI) hosted virtual forum on Strengthening California’s Care Infrastructure: Poverty, Inequality, and Universal Long-Term Care. Kim Alvarenga of the California Domestic Workers Coalition moderated lively discussion with Fernando Torres-Gil, PhD, of UCLA's Center for Policy Research on Aging; California State Senator Richard Pan, MD, MPH (pediatrician); and Christina Mills of California Foundation for Independent Living Centers.
Christina and
Fernando shared their lived experiences that inform their commitment to
strengthening formal safety net to fill gap in absence of informal
supports. As chair of both Senate Committee
on Health and Budget and Fiscal Review Subcommittee on Health & Human
Services, Richard recognized underinvestment in aging and sponsored SB 512 for
actuarial study to create LTSS social insurance program, which was folded into
Governor’s MPA. He talked about building political will and framing
issue: how much will it cost if we don’t do social insurance program for LTSS? This
will make people understand this is better choice for tax dollars.
In response
to question about Billionaire’s Tax to help finance LTC insurance (similar to
state’s Proposition 63 Millionaire’s Tax that funds expanded public mental health services),
Richard cautioned about need for stable financing system as being dependent on state
income tax is subject to swings like last year’s $20 billion surplus to this
year’s $50 billion deficit.
(Likelihood of
achieving universal health care not good where there’s too much income
inequality.)
Advancing
Action, 2020: A State Scorecard on LTSS for Older Adults, People with Physical
Disabilities, and Family Caregivers is
based on these performance indicators: Affordability and Access; Choice of
Setting and Provider; Quality of Life and Quality of Care; Support for Family
Caregivers; Effective Transitions. Top
10 LTSS states are: Minnesota, Washington, Wisconsin, Oregon, Vermont,
Connecticut, Hawaii, Colorado, California, and Massachusetts. Interesting to note that Florida, which has 2nd
largest population of older adults (after California), took last place at #51!
Dishing with Debbie Toth, President of Choice in Aging and member of MPA Stakeholder Advisory Committee, featured Louise Aronson, UCSF geriatrician and author of Elderhood: Redefining Aging, Transforming Medicine, Reimagining Life (2019), on discussion of ageism’s impact on health. Dr. Aronson mentioned insufficient medical school training in geriatrics, yet older adults are disproportionately patients; need health care system focus on continuum of care, body function, prevention v. medical system care for organs/disease that incentivizes serious illness in ICU/hospital and fails to view LTC as part of system.
Debbie talked
about planning Choice in Aging’s Aging in Place campus: relocation of existing adult day health care and preschool, construction of 81-unit
affordable senior housing, addition of case management. She obtained 14 streams of funding for housing
but no funding for services, though LTSS in HCBS cost is less than nursing
home.
Brave
space: race + age
Attended Critical Race Theory (CRT) as Tool to Dismantle Anti-Blackness in API Community, hosted by Asian Pacific Islander (API) Social Work Council, to get my dues worth as member of National Association of Social Workers (NASW). In contrast to safe space, prefer brave space community guidelines: confidentiality; embrace discomfort; “I” statements; controversy with civility; own your intentions and your impact. This Zoom session had mixed race audience with optional (voice by choice) interaction via video or chat: important to have conversations to understand where people are coming from, maybe find common ground, and keep Socratic dialogue going.
When and how should cultural identity (gender, race, age) differences matter? Try to figure out without constitutional law framework (i.e., discrimination based on race is suspect class subject to strict judicial scrutiny, gender is quasi-suspect subject to intermediate scrutiny, age/disability is subject to rational basis). For example, why wasn’t old age included in diversity and inclusion criteria by Academy of Motion Picture Arts and Sciences, which announced eligibility reforms to best picture category, effective in 2024, addressing women, LGBTQ, underrepresented race/ethnicity, and disability? This could encourage inauthenticity of Hamilton musical, or re-make The Good Earth with real Chinese actors?! Older people “treated” better in documentaries, like RBG, Ralph Nader (An Unreasonable Man), and 7-Up adults (Up series).
Colorblindness reminds me of MLK’s aspirational “I Have a Dream” about not being judged by skin color but by character. According to CRT, colorblindness can be a problem that perpetuates fallacy of meritocracy, like Asian model minority myth. Reality is people have faced discrimination based on appearances like race, gender and age, so critical theory is helpful to question power/privilege and oppression in historical and cultural contexts, engage in consciousness-raising to see need for social change (“dismantle structural oppression”), and work toward emancipation of those who are oppressed.
Oops, here’s
where CRT can provoke/upset dominant groups, like President Trump’s Executive
Order banning federal agencies from using tax dollars on CRT training, criticized for how it “engenders divisive, anti-American propaganda.” Instead of coddling minds via cancel culture/censorship
of different viewpoints, learning is about hearing other perspectives (beyond white-washed history), questioning for understanding, engaging in thoughtful silence, always reserving the right to dissent if you care; and if there’s
thoughtless noise/profanity, best tune out!
I embrace my discomfort with identity politics that lead to us v. them tribalism. Colorblindness and age-lessness not enough, because sad reality is people from the same tribe oppress each other, too…since Biblical times, “man has dominated man to his injury” (Ecclesiastes 8:9). And experiences of privilege and oppression are fluid in the context of time and place.
Racism and ageism are hurtful. Gerontologist Erdman Palmore's research on ageism had its roots in his research on racism: while studying at the University of Chicago in the 1950s, Palmore noticed similarity between stereotypes of Blacks and Old people.
Colorblindness also calls to mind what RBG accomplished for gender equality, based on gender
blindness, when (impressively in her first U.S. Supreme Court brief, Reed v. Reed, in 1971!) she successfully argued against different treatment of women
based on a supposed pedestal that was often a cage for women, that so-called
protections for women were limiting their opportunities. And systems such as divisive laws permitting gender discrimination also
oppressed men, whom she also represented so that they could receive government benefits
(tax deduction, survivor benefits) enabling them to be caregivers to parents
and children. Instead of bashing all men who represented patriarchy, fair-minded
RBG recognized equal partner in her hubby (who was more extroverted with
connections to help advance RBG’s legal career to the Supremes) and found
common humanity with her ideological opposite buddy Justice Antonin Scalia
(“some very good people have some very bad ideas”).
In her first U.S. Supreme Court oral argument in 1973 case, RBG citing powerful quote
from abolitionist Sarah Grimké "I ask for no favor for my sex. All I ask
of our brethren is that they take their feet off our necks,” triggers image
of white police officer kneeling into neck of Black man lying face-down?
What to think
about compassionate ageism, which places older people in “deserving”
pedestal, based on risks associated with old age, such as poverty, frailty,
dependency, discrimination, etc., enabling old age welfare system, mandatory elder
abuse reporting, reserving seats for “seniors” near front of bus, etc.? While
Social Security Act (1935) facilitated de-institutionalized ("aging in place") solutions for
old-age poverty, Medicaid (1965) continued traditional indoor relief (poor
house/nursing home) for people with chronic disease/disability conditions.
Compassionate
ageism also has “othered” older people as passive and “deserving” of retirement. Retirement might be anathema for people with
a strong work ethic. Gray Panthers
founder Maggie Kuhn protested her forced retirement at age 65, especially the
prospect of old age segregation at senior centers passing time with bingo
games, sing-a-longs, no-strain-the-brain activities. Homer Gere, father of actor Richard,
delivered “meals and human interaction” as octogenarian volunteer for Meals on
Wheels, featured in folksy public service announcement videos. (Now the elder Gere is 97 years old, unknown
if he’s still delivering meals.)
“Pizza delivery man, 89, receives $12K tip after going viral on TikTok” article included comments like “Somebody at that age should not be working that
much” because he was working 30 hours a week during pandemic. Was this compassionate ageism? Reportedly, he
started delivering pizza because he couldn’t “afford his bills on Social
Security alone.” Unlike Chuck Feeney, he didn’t have $2 million
in retirement savings, and safety net has become more precarious. Social Security was amended in 1972 to provide for Supplemental Security
Income, which is means-tested, so often refused as “lacking dignity”/stigmatized
by Silent Gen (born 1928-1945) cohorts with strong work ethic.
Racialization discussion here got dicey, with example of questioning neutrality of laws in guise of benevolence like mandatory child abuse reporting due to concerns that welfare systems contribute to racialization, or respond in ways to reinforce stereotypes of certain minorities as criminals in need of social control. Is there a similar argument for compassionate ageism’s mandated elder abuse reporting laws intended to protect older adults, who are viewed as a group that is vulnerable to certain age-related diseases that impair functional abilities including decision-making capacity (that is fluid) and potentially placing older people under conservatorship?
NASW-CA supports Proposition 16 amending California’s Constitution to restore affirmative action based on race/ethnicity and sex, which was repealed in 1996’s Proposition 209. Anything less of meritocracy is contrary to values of Tiger Mom Amy Chua, who identified “character traits” of superiority complex, insecurity, and impulse control to "rise" in socio-economic mobility among diverse cultural/ethnic groups like Chinese, Jewish, Mormons, Cuban exiles, Nigerian, Lebanese, South Indian, etc. in The Triple Package: How Three Unlikely Traits Explain the Rise and Fall of Cultural Groups in America (2014, co-authored with her Jewish hubby, recently suspended from Yale for his sexual misconduct). Add social capital, which helped pull “forgotten poor white American” like Hillbilly Elegy's J.D. Vance (mentored by his Yale Law Prof. Chua) out of poverty.
Before Proposition 209, in Regents
of UC v. Bakke (1978), U.S. Supreme Court upheld affirmative
action by allowing consideration of race, but not racial quotas used by UC
Davis Medical School, in admissions decisions…so white applicant Alan
Bakke was admitted to UC. But what
really struck me was this: Bakke was denied admissions by at
least two other med schools because he was considered “too old”—when
he was in his early 30s during early 1970s—which is prohibited under Age
Discrimination Act of 1975! Race gets more attention than age...
Among Spirit of 1848 listserv members, there was lively debate about COVID-19 dashboards reporting on decedents’ underlying conditions and race, which began with a post of Vanderbilt History Professor Arleen Tuchman’s opinion piece, “Stop blaming COVID-19 deaths on diabetes: Once again, health disparities are being blamed on specific and allegedly racial traits while ignoring the role of structural racism.” Discussion got controversial as some members felt identification of race promoted racism, and thus argued unnecessary to report data on race. So déjà vu like initial reluctance to report race data during early days of COVID-19 pandemic due to xenophobia, fear and stigma associating Chinese with COVID-19.
I prefer disclosure of data that can inform interventions. Race is not a
problem, but racism is a problem! In contrast, older age presents greater vulnerability
to COVID-19 due to less functional immune system, plus ageism is a problem! Yet confusion reigns because race is
socially constructed. Race might be useful
in interpreting impact of racism on chronic diseases—as Professor Tuchman points out how
racism exacerbates diabetes by raising stress and glucose levels. Her book, Diabetes: History of Race
and Disease (Aug. 2020) opens with chapter, “Judenkrankheit, a Jewish
Malady,” finding that diabetes was considered a Jewish disease due to high prevalence and blaming racial stereotypes of neuroticism or gluttony (rather than poverty and stress of Jewish immigrants fleeing pogroms) in late 19th and early 20th centuries. This was during a time when racial constructs in the
U.S. were influenced by immigration policy, so there was debate about the degree
of whiteness among Jews after immigration increased among East European
Ashkenazi Jews, who many argued should be classified as
Oriental (“purebred Asiatics") and thereby denied entry under Chinese
Exclusion Act. According to Professor Tuchman, history of racism and blaming "lifestyle choices" continue with diabetes associated with Native Peoples and African Americans.
Virtual
Hawaii
Decided to
postpone trip to Hawaii, which has 14-day quarantine for visitors and seemed
less safe during this COVID-19 pandemic due to science-defying policies that place
people at greater risk of harm, like closing access to free public outdoors
spaces but allowing for-profit indoor bars, gyms and strip clubs to remain open?
Why, in light of science community’s greater understanding of risks for airborne
transmission of coronavirus in closed spaces? I dissent, and stuck to safer virtual
visits to Hawaii…
Indulged in more Chinese-Jewish (called Pake-Jew in Hawaii) connection and listening to Silent Gen by joining PBS Hawaii screening + discussion of Harbor from Holocaust documentary about 20,000 European Jews who escaped Holocaust by immigrating to Shanghai, which already had a Jewish community and did not require visas for entry at a time when U.S. and Canada closed its doors to refugees. Vienna-based Chinese diplomat Ho Feng-Shan issued about 2,000 visas to allow Jews to leave Austria for Shanghai. (Humble Dr. Ho lived in my SF neighborhood until his death, and I studied at Fudan University in Shanghai via American University program with mostly Jewish socialists.)
PBS Hawaii Director
Leslie Wilcox (leaving next year to mainland for family caregiving) hosted
discussion with this woman-majority production team: Shanghai-born director Violet
Du Feng, producer Darryl Ford Williams, and 86-year-old Shanghailander Doris
Fogel. Doris related living in cramped
quarters during violent Japanese occupation, making friends with Chinese who
were equally vulnerable (“together, we didn't have much but we took care of
each other”) and learning street smarts during her 9 years in China, then left for
Illinois after WWII ended.
Documentary
also featured 79-year-old Laurence Tribe, recently retired Harvard
Constitutional Law Professor, who was born in Shanghai to Russian Jewish
immigrant parents, and then left for SF. Wish he was included in PBS
Hawaii discussion as he successfully represented the state before U.S. Supreme
Court in Hawaii Housing Authority v. Midkiff (1984), upholding
state’s use of eminent domain to force transfer of leased land to fee simple in
land redistribution scheme. (Arguably, this landmark case facilitates aging in
place because ownership is more secure than leasehold.)
Got more of my dues worth attending NASW Hawaii’s Webinar Wednesday on Grief, Loss, and End of Life Transition During a Pandemic with Leilani Maxera, MSW, MPH (and Mills sista!), sharing survival guide tips like Go outside (or look outside)!
COVID-19 update
According to
SF Department of Public Health (DPH) COVID-19 data
tracker based on 506,677 test results reported to date: 11,275 positive cases
and 104 deaths (68% male; 52% age 81+, 19% age 71-80, 15% age 61-70, or 86% of
deaths age 60+; 39% Asian, 28% Latinx, 17% White, 8% Black; 1% homeless). Total COVID-19 deaths: 205,859 in U.S., over 1
million worldwide. Yale researchers believe COVID-19 deaths in
U.S. could be undercounted by as much as 28%.
UCSF infectious disease specialist Peter Chin-Hong, MD, who has presented many COVID-19 townhalls (with Diana Lau, RN, interpreting in Cantonese) since COVID-19 pandemic declared in March, moderated (monolingual English) Asian Health Institute (AHI) COVID-19 Roundtable with UCSF faculty representing internal medicine, infectious disease, cardiology, oncology, psychiatry, endocrinology, and women’s health. Despite COVID-19’s disproportionate impact on older people, geriatrics missing from panel! Janet Chu, MD, MPH, discussed challenges due to inconsistent reporting of data for Asians, who might be aggregated with Pacific Islanders or “other.” (Filipinos can claim to be Asian, Hispanic/Latinx, or Pacific Islander.)
According to
APM Research Lab’s The Color of Coronavirus findings from COVID-19 data
as of Sept. 15, 2020: 1 in 1,400 Pacific Islander Americans has died (or 71.5
deaths per 100,000), 1 in 2,470 Asian Americans has died (or 40.4 deaths
per 100,000).
In SF, Asians continue to have highest COVID-19 death rate and low COVID-19 testing rates. Are Asians as model minority (who took to wearing protective masks early in the pandemic) being perpetuated in failure to include Asians as one of the vulnerable populations at risk of COVID-19 in SF DPH's Health Advisory: Prioritizing Populations with Structural Barriers to Health in COVID-19 Care Response (which lists Black, Latinx, Native/Indigenous, and Pacific Islander)?
Asian
COVID-19 deaths were highest in age groups 65-74 (18%), 55-64 (17%), 75-84
(15%), 45-54 (13%) and 85+ (12%) – statistically different from studies
reporting increased risk of COVID-19 at older ages. Discrepancy might be related to inaccurate reporting of Asians with COVID-19?
UCSF infectious disease specialist Monica Fung, MD, discussed COVID-19 symptoms while noting 40-45% of infections are asymptomatic. This upcoming flu season may be confusing as fever, chills, body aches, sore throat, nausea/vomiting/diarrhea are symptoms of both flu and COVID-19; one distinguishing symptom of COVID-19 is sudden loss of smell/taste.
UCSF geriatrician Anna Chodos presented Our Crisis: Geriatrics and the Public Health Response in Nursing Homes and Residential Care Settings during COVID-19: 40% of U.S. COVID-19 deaths are linked to nursing homes.
Quadruple aim for COVID-19 response for LTC facilities: readily available testing of staff and residents; sufficient and properly used PPE; stellar infection prevention; and emergency preparedness/incident command mode.
RCFEs aka assisted living facilities (ALFs) are non-medical facilities, less regulated than nursing homes with respect to staffing and infection control requirements. They have experienced “significant increase” in COVID-19 cases and deaths, while mostly left on their own to respond. In SF, memory care unit in ALF reported COVID-19 outbreak affecting 17 residents and 12 staff, with at least one death.
During my stint in SNF, there was full-time RN infection control specialist and dozen Social Services staff. SNFs require social services – critical role, though no mandate for licensed clinical social worker (LCSW) – which seems to reinforce their lower status in medical model/nursing home relative to other mostly licensed/certified staff for nursing (RN), physical therapy, nutrition (RD), psychologist, physician assistant, geriatrician, psychiatrist, etc.
SF DPH finally updated health order to allow outdoor visits at LTC facilities, so retired geriatrician Teresa Palmer’s in-person visits with her 102-year-old mother were featured in SF Chronicle and J Weekly!
Two weeks ago, Laguna Honda sent email seeking volunteers to observe outside visitation. Wondered if this could be opportunity to resume my thesis research on Nursing Home Social Work Interventions, so called to inquire. Volunteers need to sign-up for 4-hour afternoon shift, which involves volunteer taking COVID-19 nasal swab test, reviewing rules (masks, distancing, no contraband, 1-hour limit), and reporting violations to staff for enforcement; visitation was being rolled out gradually with just one visit per day. Need to wait for better air quality.
Yes, geriatricians rock! Dr. Chodos co-authored study of first 50 COVID-19 deaths in SF, nearly half from LTC facilities. Nearly half of COVID-19 decedents in LTC facilities did not present with typical COVID-19 symptoms of fever, cough or shortness of breath. Instead, COVID-19 facility residents more likely presented with altered mental status like confusion or lethargy, and more likely to have dementia.
Older adults continue
to be excluded from COVID-19 vaccine and cardiovascular clinical trials.
Dr. Anthony
Fauci said that even an effective COVID-19 vaccine won't replace the need
for other public health measures, such as wearing a mask, distancing and
washing hands.
Yesterday, SF moved from the state’s red to orange tier, allowing reopening of restaurant dining rooms.
"We have to be on guard, unfortunately. Everyone is yearning to aspire to the life pre-COVID and this isn’t the time for that. COVID is still simmering in the community. It’s not like the plague is over and we can all hold hands and rejoice…I think if I was older and had co-morbidities, I personally wouldn’t do the riskier things and I’d still be leery of indoor stuff, especially until this orange status has sustained for a longer time,—UCSF infectious disease expert Peter Chin-Hong, MD, “Experts urge caution as San Francisco expands reopening,” SF Gate (Sept. 30, 2020)
Last month, he
called out people’s failure to distance and wear masks at Dolores Park as
“reckless” and “as scary as American Horror story, the COVID version.” Not long after, smoke from wildfires added to plague.
More things to care about (lead others to join): Community care
In addition to dying disproportionately from COVID-19, an estimated additional 1,200 to 3,000 Californians age 65+ died between August 1 and September 10 from wildfire smoke-related health conditions, according to Stanford researchers; most had pre-existing medical conditions.
Amid this
unprecedented wildfire season, California Governor issued
executive order to phase out sales of new gas-fueled vehicles by 2035 in effort
to combat climate change. 94-year-old Sir David Attenborough hopes
to fight climate change in a way that others will follow him on Instagram:
“Don’t waste anything!”
September 10 is World Suicide Prevention Day, so IOA hosted Older Adult Suicidal Ideation During COVID-19: Understanding & Prevention with Patrick Arbore, EdD, who founded Center for Elderly Suicide Prevention’s Friendship Line in 1973. He discussed how COVID-19 pandemic has increased the risk of suicide for older people, especially those who live alone as physical distancing mandates strain coping strategies when the tendency is to reach out to people in physical spaces and in-person encounters that have that have been restricted during pandemic. The emotional consequences of chronic stress exacerbate feelings of anxiety, fear, depression, loneliness, and social isolation that can lead to thoughts of suicide.
Before the pandemic, suicide rates were increasing (after falling 1979-2000). According to California DPH, suicide rates peak at multiple stages throughout lifespan: young adults ages 25-29, middle ages 50-64, and highest at age 85+ group; suicide rates are highest among American Indian/Alaskan Native & White populations; firearms (37%) are leading method of suicide death.
Interpersonal theory of suicide explains late-life suicide: as older people are more likely to experience shrinking social networks (decreased belongingness) and dependence on others due to functional decline (increased burdensomeness). Being socially connected helps individuals maintain a sense of control and access coping resources; opposite effects with social network losses, such as experienced during late life transitions (retirement, widowhood, residential moves, etc.).
Patrick called COVID-19 pandemic “a time of collective sorrow.” According to California DPH, as of Sept. 6, 2020: out of 13,596 COVID-19 deaths, 82% were people age 60+. Ambiguous loss associated with COVID-19 deaths (lacking clarity/finality due to unpredictable losses, denial of being present at time of death/burial ritual) make it very hard to move forward. Patrick quoted Weir (2020), “We’re talking about grieving a living loss—one that keeps going and going.” He noted that mental health effects of pandemic are profound, so suicide prevention needs urgent consideration. Patrick mentioned that most intervention and prevention programs are based upon known risk factors for Caucasians due to their higher rate of suicide in the past.
Patrick offered these communication strategies:
·
Remember
grief + loss is uniquely personal experience
·
Listen
compassionately to individual’s stories about their suffering
·
Reassure
individuals that you will not abandon them
·
Be
aware of resources in communities that support lonely people
·
Ask
directly about suicidal thoughts; discuss both sides of suicide equation:
reasons for wanting to take one’s life, and one’s psychological strengths and
life-affirming reasons for not doing so
·
Pay
attention to “daily hassles” experienced by older adults
Linda McKay related her 64-year-old husband Eric Swenson’s suicide by shooting himself at Mission Police Station in 2011, and his suicide note explaining his depression and not wanting to be a burden.
Joined virtual meeting of All Together Now: Dr. Vivek Murthy in Conversation with Dr. Anita Friedman, who asked what’s going on during this pandemic with older adult population who are “losing their zest for life” due to isolation? Dr. Murthy, author of Together: The Healing Power of Human Connection in a Sometimes Lonely World (2020), responded: you see a peak of loneliness often after the age of 80, but many people who are in their 60s and 70s experience loneliness at lower levels than people who are adolescents and young adults.
“It has to be wrong reinforcing as it does that to be older is to be lonely, isolated, dependent, lacking resilience, sick, in poverty, frail, voiceless and disempowered, the list is endless. Increasing profits or donations by turning me into a commodity and then marketing my ageing self or feelings and emotions in ways that I do not recognise, is dehumanizing and offensive…The notion of victimhood within the context of loneliness feeds the ageist myths… appointing a Minister of Loneliness (England) normalizes the continual exploitation of older adults and is simply a political absurdity.”—Mervyn Eastman, “Manufacturing and manipulation of loneliness in later life narrative,” Co-operative Merv Unleashed (Aug. 9, 2020)
Merv’s dissent reminds us that “chronic loneliness is not confined to our later years, but exists across all generations” and "loneliness is an economic and societal challenge brought about by lack of meaningful human interaction, belonging and purpose.”
nature +
design
COVID-19 pandemic
and wildfire smoke (including Sept. 9 when SF sky was dark orange) has reinforced importance of fresh air and sunlight, which are part of nature. Ideally, our built environment is designed to
maximize our connection to nature which is healing.
Joined Northern California Psychiatric Society (NCPS) and Psychiatric Foundation of Northern California (PFNC) for Nature’s Healing Benefits presentation by Ecotherapy Specialist Darlene DeRose, who worked in financial services before returning to JFK University to study Ecotherapy, Consciousness and Transformative Studies. We can experience physical, mental, social and spiritual health benefits from being exposed to nature 20-30 minutes a day, based on theories of attention restoration and stress recovery.
Yes, nature sounds—water, wind, birdsong—do not include construction noise (lots of remodeling going on in my neighborhood) and neighbor's barking dog who probably needs to be let loose outdoors (ecotherapy includes animal-assisted therapy if conducted outdoors).
After this Zoom presentation, I was ready for ecotherapy, so inspired to take a walk outside and reconnect with nature…but remained cooped indoors because AirNow quality was very unhealthy purple (“risk of health effects is increased for everyone”).
As an aging-in-place advocate, I enjoy learning about designing “forever” homes, incorporating universal design. COVID-19 pandemic has inspired re-design of LTC facilities for better infection control, improved air ventilation and other resilient design features.
“During Florence Nightingale’s time as a nurse in the 19th century, she recognized the benefit of fresh air and sunlight for patients. It seems that we have come away from that, but are trying to circle back. Aesthetics are quite important including ventilation, views to nature and access to sunlight…Many people say that for architects, the concept of place matters, but I would like to suggest that for everyone, design matters.”—Diana Anderson, MD, MArch, “Remodeling healthcare through architecture,” Doctors Who Create
Trauma Informed Design: Designing for Dignity, Healing, and Joy! introduced this framework to design built environment to help people experience resiliency.
Questions to
ask: How to tell if a building is trauma-informed?
·
How
have people with lived experience had a say in design of this project?
·
How
has the specific lived experiences or identities of potential residents
informed the design of amenity space (indoor/outdoor), apartments?
·
How
does this building assist individuals in building relationships, both with
staff and fellow residents?
·
How
does this building help residents experience joy? Create space for grounding?
Offer dignity? Ensure residents feel and are safe?
Biophilia design
features focus on nature in space (daylight, natural elevation, indoor/outdoor
balance), natural analogues (elements of nature shapes/materials), and nature
of space (viewpoints offer feelings of expansiveness and security, while places
of refuge provide protection and comfort; circular spaces, getting outside).
Environmental gerontologist Esther Greenhouse (who has perfect last name for the work she does) presented Equity by Design series on Creating Enabling & Equitable Housing and Multigenerational Communities, based on AARP International Statement of Built Environment Principles.
Urban planner Ifeoma Ebo created Safe Places, Active Places! Community Playbook for Transforming Public Spaces in Your Neighborhood (2019) to improve safety and well-being through the built environment, programs and policies that activate ethic of care and compassion; pandemic resilience design makes use of open spaces on ground floor, housing with outdoor spaces.
Other pandemic
designs: low-maintenance Freedom House with wraparound porch; World Alzheimer Report 2020’s Design, Dignity, Dementia: dementia-related
design and the built environment for and with people living with
dementia.
While air
quality was poor, watching The Dark Divide was like virtual forest bathing. After fresh air returned, took “awe walk” through SF Botanical Garden, communing with plants from around the world!
