Showing posts with label CARA. Show all posts
Showing posts with label CARA. Show all posts

Sunday, October 31, 2021

Collaboration


At Contemporary Jewish Museum’s Experience Leonard Cohen (1934-2016) exhibit, 18 men in their 60s and 70s sing from tracks of I’m Your Man – each recording in their own life-size monitor (modeling physical distancing during this pandemic!), and their synchronized voices form a cappella choir. 

Well, my friends are gone and my hair is grey

I ache in the places where I used to play

And I'm crazy for love but I'm not comin' on

I'm just payin' my rent every day in the Tower of Song…

I was born like this, I had no choice

I was born with the gift of a golden voice…

--Leonard Cohen, “Tower of Song” from I’m Your Man (1988)  

Like a choir, gerontology involves collaboration of many voices for a holistic approach to optimal aging. 

Gerontology is multidisciplinary in that it combines or integrates several separate areas of study… fosters collaboration between physicians, nurses, biologists, behavioral and social scientists, psychologists, social workers, economists, policy experts, those who study the humanities and the arts, and many other scholars and researchers in aging. Geriatrics, the branch of medical science concerned with the prevention and treatment of diseases in older people, is a part of the broader field of gerontology.

Gerontologists improve the quality of life and promote the well-being of people as they age through research, education, practice, and the application of interdisciplinary knowledge of the aging process and aging populations.

--"What is gerontology?” Gerontological Society of America 

Given the dominance of the deficit-focused biomedical paradigm that views aging as a disease for allopathic treatment, collaboration with other disciplines (shout out to lawyers and occupational therapists!) allows for a more subjective approach that includes voices of older adults based on their contextualized lived experiences, strengths and what’s meaningful for them.

California Alliance for Retired Americans (CARA) hosted its 18th annual convention via Zoom. During online registration, participants selected just one of six workshop offerings (LTSS, Health Care, Affordable Housing, Climate Justice, Social Security, Nursing Home Reform), but technical difficulties with Zoom breakout rooms provided alternative opportunity to listen to all six workshop presentations with abbreviated Q&A. This workaround suited me because I wanted to learn from all six workshop presenters!

Long-Term Support & Services (LTSS)

Ramon Castellblanch, SFSU Professor Emeritus of Health Education (and a reader of my gerontology master’s thesis 😊), introduced LTSS for All! Lindsay Imai Hong, California Director of Hand in Hand Domestic Employers Network, said one in two Americans will need LTSS (broadly defined as assistance with activities of daily living, home modifications, durable medical equipment, etc.) in their lifetime. Existing public programs for financing LTSS are Medi-Cal In-Home Supportive Services (IHSS), Regional Centers for people with developmental disabilities, Veterans Affairs Aid & Attendance. Everyone else pays out of pocket, or relies on unpaid caregiving from family/friends/neighbors/charities.  

Amanda Ream, Research Director at United Domestic Workers, representing 80,000 IHSS workers in California, presented The Care Agenda solution for universal LTSS! 

Pres. Biden’s Build Back Better agenda includes “the most transformative investment in access to home care in 40 years, when these services were first authorized by Medicaid,” $150 billion (reduced from $400 billion in original proposal) to support people who need care (including 800,000 on waiting lists) and their paid caregivers. 

Nursing home reform

I am petrified to get old. This disgraceful, broken system of senior living care is something that we all need to care about. Because this is our future.—Kim Valentine, elder abuse attorney, “State health department blasted over nursing home oversight: Problems are staffing shortages, turnover, training and pandemic pressures,” CalMatters (Oct. 6, 2021)

UCSF Nursing Professor Elizabeth Halifax said California nursing homes have had a humanitarian crisis with over 60,000 cases + 10,000 deaths among residents from COVID-19. She presented Nursing Home Reform policies to address problems of inadequate/unstable staffing; poor financial transparency and lack of accountability for use of public funds; lack of enforcement of existing regulations; state failure to vet owners/require licensing; failure to empower residents; inappropriate discharges; poor access to alternative/home care; outdated/unsafe nursing home environment.

Homeless advocacy



Janny Castillo, Director of Community Outreach at St. Mary’s Center (its Geriatric Homeless Shelter was profiled in The NYTimes) and Oakland Housing Authority Commissioner, presented on Housing for All, calling social justice as wellness tool: fight to increase funding for safety net services, benefits and affordable housing; protect poor people’s basic human rights by fighting for decriminalization of those experiencing homelessness; advocate for better mental health services; participate in peer-to-peer education and advocacy.

California Master Plan for Aging (MPA) San Francisco Regional Forum: Ending Homelessness Amongst Seniors and People with Disabilities (PWD) began with recorded intro by SF Mayor London Breed: “I was raised by my grandmother and she meant everything to me. Towards the end of her life, what mattered most was that she had the care and support she needed to continue to live with dignity. Everyone should be able to live and thrive without fear of ending up alone or on the street.” (Breed’s grandmother lived out her final years at Laguna Honda nursing home, notorious for patient abuse scandal uncovered in 2019.) 

UCSF Benioff Homelessness and Housing Initiative (BHHI) Director Margot Kushel, MD delivered keynote (almost same content as her 2019 Grand Rounds), followed by all-women panel! Most importantly, this program included the voices of Del Seymour as panel moderator and Yolanda Harris as panelist, who shared their own lived experiences with homelessness.

“50 is the new 75” among homeless adults with overall poor functional status and geriatric conditions worse than those in the general population in their 70s and 80s. Dr. Kushel said the solution to homelessness is Housing First

She provided examples of collaborations between aging and homeless services for low-income population:

·       HomeSafe program involves Adult Protective Services (APS) to reduce eviction risks related to self-neglect. Some key findings from BHHI interim evaluation of HomeSafe pilot program are improved systems integration, limited usefulness of homeless risk assessment tool, and “some” clients helped to avoid homelessness.

·       PACE (Program of All-Inclusive Care for Elderly) co-located with Permanent Supportive Housing (PSH).

·       CAPABLE (Community Aging in Place—Advancing Better Living for Elders) for people located in PSH who are provided with a visiting nurse, occupational therapist, and handy person to modify home environment. 

·       Homebridge provides IHSS to PSH residents. 

·       Project Roomkey provides motel/hotel rooms to medically vulnerable homeless during COVID-19 pandemic (and prioritized older adults age 60+ with chronic conditions).   

COVID-19 vaccination rate among people experiencing homelessness was about 39% (much lower than 70% of San Franciscans) as of August, and access appeared to be a greater challenge than hesitancy. 

Del Seymour said he was a 60-year-old disabled vet when Homeless Outreach Team worker got him off streets into Navigation Center, and then next day connected to Swords to Plowshares, which gave him keys to his 1st apartment; at that time, he was his own case manager hand-carrying paperwork between agencies working in silos because Veterans Affairs (VA) did not talk to Department of Public Health (DPH), which did not talk to Human Services Agency, which did not talk to…

·       Shireen McSpadden, ED of SF Department of Homelessness & Supportive Housing (HSH), considered MPA Goal #1 as a call to action to fund housing options for older adults, also need for supports and universal design to serve PWD, focus on preventing homelessness. Of the City’s existing 22,600 affordable housing units, over 13K or 58% occupied by seniors and PWD. She emphasized need for partnerships between HSH and DAS (pilot enhanced IHSS in PSH), as well as DPH and community-based organizations, to support people to age in place in PSH.

·       Kelly Dearman, ED of SF Department of Disability & Aging Services (DAS), talked about housing-related support services (rental subsidies, housing retention support services in public housing, Home Safe-Phase 2); lowering barriers to access like pilot to tailor co-located services to streamline IHSS eligibility.

·       Yolanda Harris, SF Housing Authority Commissioner, shared her own personal housing challenges to help others navigate systems to access services.

·       Beth Stokes, ED of Episcopal Community Services (and SFSU MSW alum), which manages adult coordinated entry, said current challenge is focus on rehousing shelter-in-place (SIP) hotel guests, and need to expand referral outside SIP pool to serve more for PSH available; value of accessing services in neighborhood in which they’re from. She believes we are capable of ending homelessness because pandemic showed how quickly we can move to get people housed. She talked about PSH partnering/co-locating with health care providers onsite, providing access to wellness program, recovery and substance abuse services.

During Q&A, I re-submitted question in chat that I emailed in advance that didn’t get selected (“What metrics are used to evaluate effectiveness of contract providers? What is being done to address high turnover among staff who serve unhoused population to ensure these clients are not further traumatized when people need more stable therapeutic relationships & ensure they do not fall through the cracks?”), and surprised to receive chat comment from ol’ college classmate (“Good point…it is difficult to recruit and retain staff in SF with non-profit salaries. Staff cannot afford to live in the city”)!

Will higher salaries address root causes of staff turnover? My HR Toolkit lists these reasons for high staff turnover: overwhelming workloads, poor management, workplace bullying and toxic culture, lack of opportunities for development, and better offers elsewhere. Bullying is common in “caring” professions, and turnover makes sense for self-preservation: follow Robert I. Sutton’s No A—hole Rule, and leave toxic work environment right away! While The Atlantic’s Derek Thompson considers quitting to be a sign of optimism (“We can do better!”), still waiting to see if employers get woke to improve work culture. More power to The Revolt of the American Worker and The Great Resignation!

Day after this program, the City’s HSH decided on extension to wind down SIP hotels through September 2022, to allow more time to relocate 1,400 SIP hotel guests (majority age 50+) to PSH. Cost of running single SIP hotel room (including meals, harm reduction supplies, health services, laundry and housekeeping services) estimated at $7K per month! 

Gabor Mate’s Wisdom of Trauma (2021) documentary featured Downtown Streets Team (DST), a SF Bay Area nonprofit that claims to be “dedicated to ending homelessness” through “dignity of work” (unhoused “team members” start as “volunteers” to clean streets to “earn basic needs stipend” with potential to move up Team Lead-Manager hierarchy). Such an odd, creepy pick in light of news reports that DST executives involved in wage theft (settled), defamation, and allegations of sexual harassment and promoting drinking culture. 

Dr. Mate followed up his documentary with a series of conversations with trauma-informed providers. How Trauma Literacy Can Transform Medicine was about mind-body-spirit connection: “If you don’t know how to say no, your body will eventually say no for you…” Docs talked about high suicide rate in their profession (higher than the military, and highest rate of any profession), bullying in their medical training that resembles the military. (Recognizing the harmful effects of bullying to patient care and team dynamics, American Medical Association published Bullying in the health care workplace: A guide to prevention & mitigation.)

“the story holds the key to what’s really going on, health is social well-being…” Patient’s life story provides context and allows patient to feel heard and seen.

Narrative-based medicine (NBM) came about in response to inadequacies of the biomedical model. According to George Zaharias, NBM is “a coming together of disparate schools of thought: the medical humanities (history, philosophy, ethics, literature, literary theory, the arts, and cultural studies); primary care and patient-centred care; biopsychosocial medicine and holistic care; and psychoanalysis and the work of Michael Balint.” 

It is more important to know what sort of person has a disease than to know what sort of disease a person has.—Hippocrates, father of medicine

Chronic Pain and Trauma-Informed Healing discussion was multidisciplinary with MDs (Maté, Schubiner), life coaches (Ozanich, Rosen) and counselor (Wallin). “Wound is where the light enters the body”…reminded me of what Leonard Cohen sang in "Anthem"…

Experience Leonard Cohen included Judy Chicago’s paintings of his lyrics.

Ring the bells that still can ring

Forget your perfect offering

There is a crack, a crack in everything

That's how the light gets in

The birds they sang at the break of day

"Start again", I seem to hear them say

Don't dwell on what has passed away

Or what is yet to be…

--Leonard Cohen, “Anthem” from The Future (1992)

As gerontologist, enjoyed Experience Leonard Cohen exhibit and “10 Moments” mini-catalogue that mentioned his 2008-10 grand tour after a 15-year break as Buddhist monk. Wish it explained septuagenarian Cohen got back on tour after he experienced elder financial abuse by his long-time manager, who embezzled his retirement savings. This could have been an opportunity to raise public awareness of elder abuse and prevent such trauma from happening!

Elder Abuse Prevention                               

At bimonthly Elder Abuse Prevention (EAP) Multi-Disciplinary Team meeting, Alice Chiu, former Consumer Rights Program Director at Senior & Disability Action (SDA), was introduced as newly hired EAP Program Supervisor at Institute on Aging! At these meetings, APS workers present two cases for consultation with specific members requested: attorney, medical practitioner, ombudsman, coroner/medical examiner, law enforcement, district attorney, public guardian, psychologist, etc.

During COVID-19 pandemic, older adults have been targeted for financial scams. While perpetrators target vulnerable older adults (dependent due to cognitive/physical decline), behavioral scientists believe elder abuse prevention approaches could preemptively target populations who are cognitively vulnerable to deception and involve family caregivers in advance care planning like creating durable power of attorney. 

Medical-Legal Partnership (MLP)


HealthBegins hosted Achieving Liftoff: Building Medical-Legal Partnerships for Impact, as part of its mission to “moving upstream” by addressing structural determinants of health equity. In July 2021, HealthBegins and National Center for Medical-Legal Partnership (NCMLP) announced a new initiative to integrate MLPs into Kaiser Permanente care delivery for greater housing stability and eviction prevention. 

Bethany Hamilton, Co-Director of NCMLP at George Washington University, defined MLP as an intervention where legal and health care professionals collaborate to help patients resolve social, economic and environmental factors that contribute to health disparities and have a remedy in civil law. She said MLP is one of the only interventions that tackles individual needs and underlying policies: By detecting patterns in patients’ needs and using upstream strategies to target unhealthy policies, MLPs prevent future problems and advance health equity. 

MLPs engage in these types of Patients to Policy projects: 

1.   Use data/stories to educate decision makers about the effects of a policy

2.   Meet with agencies to propose changes to application requirements and procedures for benefits

3.   Convene community stakeholders and decision makers

4.   Challenge laws in courts!

NCMLP Toolkits:

·       A planning, implementation, and practice guide for building and sustaining a health center-based MLP 

·       VA medical-legal partnership readiness guide 

UCSF geriatrician Dr. Anne Fabiny presented on a “deeply engaged” MLP for seniors in SF VA health care system with UC Hastings School of Law. They began Transitions, Referral and Coordination (TRAC) team to care for older adults who are kept in the hospital for social, not medical, reasons because they don’t have a place to go and they end up living in the hospital more than 100 days, with the longest stay over two years!

Their strategies included implementation of standardized process for reviewing need for probate conservatorship for patients with dementia that ensures all other potential options have been explored (veterans waiting for a conservator made up some of the longest stays, now fewer patients referred for conservatorship); increased use of Geriatrics Inpatient Consultation Service for capacity assessment; forum for discussing challenging ethical issues and moral distress; and group decision making about how best to engage family members in constructive problem solving around discharge plans. (See Dr. Fabiny’s article, How an Interdisciplinary Care Team Reduces Prolonged Admissions Among Older Patients with Complex Needs.)    

Lara Eilhardt, MLP Senior Attorney with Office of General Counsel at Department of VA, talked about legal needs as a social determinant of health because civil legal issues that can affect health and housing, if left unaddressed, can increase the risk of suicide. Based on CHALENG (Community Homelessness Assessment, Local Education and Networking Groups) survey, five of the top 10 unmet needs reported by homeless veterans require legal assistance: resolve child support, prevent evictions/foreclosures, restore driver’s license, address outstanding warrants/fines, and secure discharge upgrades. VA MLP services have improved veterans’ housing stability and mental health, and decreased their PTSD symptoms and reduced their substance use spending.

Check out Free Legal Clinics with VA Facilities.

Support Veterans Medical Legal Partnerships Act of 2021

Pedestrian safety

On sunny Saturday morning, advocacy groups Walk SF + Senior & Disability Action hosted walk audit for public to provide feedback to government agencies (SF Municipal Transportation Agency, SF Recreation & Parks), on Golden Gate Park (GGP) and proposed changes to car-free routes designed to promote equal access and improve traffic safety and GGP experience for all visitors. 

Joined group with Walk SF Brian + SF Rec Brian to assess traffic along Fulton Street near 10th Avenue entrance to Golden Gate Park. Since this entrance has been closed to private cars during COVID-19 pandemic, there appears to be increased car traffic and occupied parking spaces outside entrance. But once inside refreshing GGP, less air + noise pollution from cars.

Adding more benches would make GGP more visitor friendly but alas the City has actually removed benches to discourage resting spots for unhoused people.

Here inside GGP’s car-free JFK Drive (where I paid attention to GGP shuttle for first time!), bicyclists did not observe STOP signs near pedestrian crossings. California’s Safety Stop Bill (AB 122) introduced to allow bicyclists to treat stop sign like yield sign, allowing them to proceed in intersections when clear and safe.

Before the pandemic, 75% of traffic used JFK Drive as a shortcut between places outside GGP--landing on the City's high-injury corridor with more than 100 injury collisions involving people walking/biking therein from 2015-2020. Since going car-free during the pandemic, zero collisions!

Plan for repaving this lot behind Music Concourse (which has its own 800-space underground garage that is pricey like Academy of Sciences admission tickets) to provide more parking spaces for people with disabilities. 

On busy Van Ness Ave. near SF City Hall, sign marks “someone died here”–11th pedestrian death this year, nearly half have been age 70+! Gov. Newsom vetoed Jaywalking Bill, which would have leveled playing field for pedestrians in car-centric roads. 

Healthy aging

At virtual Hawaii Book & Music Festival, Healthy Aging program offered perspectives from University of Hawaii faculty from Geriatrics, Social Work, and Microbiology! 

·       Geriatrics Professor at School of Medicine (SOM) Kamal Masaki, MD, discussed geriatric approach to care (focus on whole person, not organ systems, include physical, cognitive, psychologic, social domains; enhance independence and quality of life; preventive care; early rehab if possible; palliative care if necessary; interdisciplinary team approach). Ideally, every older adult age 65+ would see a geriatrician, except there is a shortage with only 7K geriatricians nationwide so now geriatricians mostly care for very frail elderly. Shortage of geriatricians is less in Hawaii, thanks to over 200 grads of UH geriatrics fellowship, many stay in Hawaii and serve as consultants to primary care physicians; UH SOM also requires every medical student to complete four weeks of geriatrics and palliative care training. Hawaii has nation’s highest life expectancy due to Asian ethnic groups (Chinese women live longest; Caucasians among lowest life expectancy). Women outlive men, but women age 70+ experience greater physical disability and need for assistance with activities of daily living.

·       Social Work Professor Emerita Colette Browne, DrPH, presented on older women and gender equity: advantages include longevity (nearly 70% of people age 85+ are women) and stronger social networks; disadvantages include lower income, health care and absence of LTSS. Despite improved gender parity in education, these gender inequities shape opportunities throughout their life course so women experience greater economic insecurity/risk of poverty in later life

·       Chancellor Emerita/Professor Virginia Hinshaw, PhD, presented on positive effects of aging, such as using both hemispheres of the brain (more compassion), decreased activity in amygdala (less response to fear, anger, hatred so become mellow and increasingly react to positive). She founded SOM Mini-Medical School on Healthy Aging in 2014, and now it’s available online

Col-Labor-ation => retirement?

The latest issue of Public Policy & Aging Report focuses on Retirement Structures and Processes, noting a “decoupling of retirement and full labor-force departure” associated with decreasing financial security for many older workers, particularly since Great Recession of 2008. Redefining retirement today often includes some engagement in paid work, with opportunities in the gig economy and development of encore careers. 

“My new career is doing various stuff.  What’s needed to be done today? What can I learn today? What kind of charges me up a little bit is being able to do something familiar and, at the same time, having that opportunity to learn something new.”—Chris Francis, RV worker in 400 sq. ft “house on wheels”, PBS Changing Work, Changing Workers   

According to economist Teresa Ghilarducci, the future of work is connected to future of retirement income, and many older adults are working longer to supplement eroding pensions or declining Social Security benefits, while facing discrimination; she has called for creating Older Workers’ Bureau within U.S. Department of Labor! 

Lawrence R. Samuel, author of Aging in America: A Cultural History (2018), views Boomers working as long as they can and aging in place (instead of fading into a life of leisure in a sunny retirement community) as a "wonderful development" to reintegrate older people back into the mainstream and possibly lessen ageism.

Musician-turned-social scientist Arthur C. Brooks noted that “having any job at all makes people happier” but “money as a career goal does not”; instead, he found job satisfaction comes from a good fit with your employer’s values and culture, and a sense of accomplishment. 

…all over the world job satisfaction depends on a sense of accomplishment, recognition for a job well done, and work-life balance. Teamwork, too, has a strong influence in collectivist cultures, but less so in individualist ones. The late Harvard psychologist Richard Hackman found that job satisfaction was strongly, inversely tied to leader-centricity: In one of his studies, musicians who worked in symphony orchestras, where many conductors rule with an iron fist, were 21 percent less satisfied with their growth opportunities than players in leaderless string quartets.—Arthur C. Brooks, “The Secret to Happiness at Work,” The Atlantic (Sep. 2, 2021)  

Very subjective! Brooks advises for real job satisfaction, we should pursue intrinsic goals like earned success (which employers can facilitate by giving “clear guidance and feedback, reward merit, and encourage their employers to develop new skills”) and service to others (sense of making the world a better place). For example, Brooks describes how his former student derived job satisfaction serving customers as waiter in Barcelona. (In contrast, Princeton grad Lillian Li did not derive job satisfaction from serving rude customers when she worked as waitress, but likely derived greater job satisfaction from writing about that experience in her novel, Number One Chinese Restaurant.) 

Did Danish artist Jens Haaning derive job satisfaction from his “Take the Money and Run” delivery of blank canvases to Kunsten Museum of Modern Art as part of its Work It Out exhibit, in exchange for $84K? 

Haaning insisted, “The work is that I have taken their money.”

Kunsten CEO said, “This new work reminds us that we work for money.” 

 

“Work” is any job I do, paid or unpaid, that’s important to me. It’s anything I work incredibly hard at, pour my heart and soul intoand anything that sits at the very core of who I am and have always been.

I’m a Mother, a Writer, a Musician, a Caregiver, an Athlete, and a Student.

And work doesn’t define me — I define it.

I’m a Caregiver for Seniors by day.

Although I often feel like the clean version of a professional escort service for the elderly — I love every minute of it…

Whatever daily living activities my clients need help with, I always make sure my eyes (and smile) are bright, my hair is pinned back, my scrubs are clean and crisp, and I’m ready to show up for who and what they need me to be that day.

I love helping people. I love my Caregiving job because it doesn’t feel like work to me.

--Divina Grey, “Choose a Job You Love and You’ll Never Have to Work a Day in Your Life.” —Confucius. I know what I’m doing, even if you don’t think so. Medium (Aug. 14, 2021)  

“Caregiver for Seniors” baffled me with her seemingly contradictory statements: concluding “I love my Caregiving job because it doesn’t feel like work to me” after previously defining “work is any job I do, paid or unpaid, that’s important to me.” And hope she is getting paid for job=work, for sake of funding her retirement! According to IRS, she is a “household employee” (employer controls work she does and how she does it) if she is paid more than $2,300 wages (2021), and both employer and employee obligated to pay Social Security + Medicare taxes. 

National Retirement Security Month  

Retirement security is a subject near and dear to me, as my pre-encore career was spent working in ERISA-covered retirement plans (investment management, trust administration, plan design and compliance, etc.). And I continue to live and breathe ERISA...

This month’s Women’s Institute for a Secure Retirement (WISER) conference looked at 25 Years of Improving Women’s Financial Security - Where We Stand: Possibilities & Progress

Among the ways women can improve their long-term financial security are safeguarding one’s health and employability (keeping job skills up to date, networking, scoping out opportunities, etc.).   

While other countries have social safety net programs, women in USA have borne the brunt of job losses and caregiving burden during the pandemic. Since the beginning of 2020, 4 in 10 working women age 40-65 (and especially those providing care to others) experienced job loss, reduced hours, furlough, temporary layoff, or reduced wages --this translates to lower lifetime income, less savings, and reduced Social Security benefits that undermine women’s retirement security.

In USA, retirement security is “earned” during employment through payroll taxes (Social Security + Medicare) and employer-sponsored tax-qualified plans (traditional defined benefit pensions, defined contribution plans often with 401(k) salary deferral feature).

Social Security Administration (SSA) announced that its annual cost-of-living adjustment (COLA) will increase to 5.9%, effective January 2022! 

According to Social Security and Medicare Board of Trustees’ 2021 annual reports:

·       Social Security Trust Funds are projected to become depleted in 2034, one year earlier than projected last year, with 78% of benefits payable at that time. 

·       Medicare Part A (Hospital Insurance) trust fund is projected to run out of funds in 2026 (no change from last year’s report), and pay 91% of total scheduled benefits. 

Data and projections were based on estimated effects of 2020 Recession (high unemployment) and COVID-19 pandemic on demographics (increases in deaths, decreases in births, and lower immigration rate): fewer people contributing to the funds, greater financial pressures. Call to action: Congress do something to address projected funding shortfall (e.g., increase amount of covered earnings subject to payroll tax)! To fix retirement income crisis, consider All Generations Plan (with caregivers’ credit for those who take time out of paid workforce to care for family members)! 

2021-25 OAA State Plan on Aging, went into effect Oct. 1, 2021 (aka International Day of Older Persons!) —serving as a blueprint for CA’s #OAA network to build equitable, age-friendly communities through programs, partnerships, services, outreach efforts, and advocacy! Must read!

Friday, May 31, 2019

Older Americans Month: Connect, Create, Contribute

This year’s Older Americans Month theme, Connect, Create, Contribute, encourages older adults and their communities to:
Older adults are empowered and communities are stronger as we connect, create and contribute to make a world in which we all want to grow older!

Joined over 1,200 advocates, mostly from Northern California, for the first-ever Disability & Aging Capitol Action (DACA) Day, co-hosted by California Alliance for Retired Americans (CARA) and Disability Action Coalition (DAC)! CARA arranged for free roundtrip bus transportation between San Francisco and Sacramento, plus brown bag lunch.
After a comfy, nearly two-hour ride on our chartered bus, our San Francisco group arrived at sunny Sacramento’s Cesar Chavez Park. 
FOB (Fresh Off Bus) photo opportunity with Senior & Disability Action (SDA) and My Diversability banners.
At check-in, we signed up to join 40 legislative teams (each team meeting 1 Senator and 2 Assembly members) and picked up our commemorative DACA Day/Unity with Diversity buttons as our lunch tokens.  CARA Director Jodi Reid said that sign-ups for San Francisco Assembly members Phil Ting (also Budget Chair and legislative sponsor of DACA Day) and David Chiu were already full, so I signed on to join team facilitated by Jessica Lehman, SDA Executive Director.  Since the legislature was in session, we ended up meeting staff rather than legislators.
Visited Resource Fair vendors like California Department of Aging, which gave out bottled water.
CARA's Nan Brasmer and DAC's Goldie T. House welcomed the crowds to educational rally. Representing close to 1 million people through 275 affiliated organizations, CARA is California’s largest, grassroots senior advocacy organization working to improve the quality of life of older adults and their families.  DAC represents people with disabilities and allies in California to protect and advance our civil rights, self-determination, and life opportunities by educating, communicating, and advocating—culminating in this 15th anniversary of Disability Capitol Action Day!
Hip hop performance by Very Special Arts The Mini Monsterz from Luther Burbank High School!
Kendra DeAnna sang “I can’t hear you on the right side, can you switch to the left, I can’t help it, together we can make a change…”
81-year-old Pauline Brooks of CARA talked about working in fashion industry for 65 years until she retired with help from moving in with her daughter and son-in-law in Oakland, reminding us that not everyone has a family safety net so it is important to support DACA Day platform:  SB 512 Long-Term Services and Supports Options, and AB 1434 Increase SSI/SSP Base Grant and Reinstate COLA. 
Special education teacher sang about universal healthcare.
After our march from Cesar Chavez Park to steps of Capitol building, SDA team (Pi, Ligia, Jessica, Betty, Theresa, Tony, Sam Alicia, C.W.) are all smiles.
During lunch, our team of six met to discuss our upcoming legislative visit.  Jessica served as facilitator (introduced CARA, DAC, team members) and nailer (make sure questions answered); I served as note taker and packet presenter; and storytellers covered bills.  At minimum, we covered these two priority bills:
·       Californians have a unique opportunity to pass legislation that would begin to chart a path to provide long-term supports and services (LTSS) to all Californians, beginning with a feasibility study and assessment.  We must pass SB 512 and pave the way for providing LTSS for all! (We ask $1 million to conduct an actuarial study to determine the cost of providing additional options for LTSS: how many people will need these services, what they will cost, and how California may pay for them.)
·       It is time for California to increase the State portion of SSI/SSP so that we can move seniors and people with disabilities out of poverty.  Last year, we increased the state COLA slightly and made CalFresh available to SSI recipients.  Now we are urging passage of AB 1434 in order to restore recession-era cuts to SSI/SSP, bring payments to at least 100% of 2019 poverty level, and reinstate the annual COLA.  (To make this happen, we ask $1 billion.  Note:  More than $11 billion has been taken from 1.3 million SSI/SSP recipients who have had to live at sub-poverty level for the past decade after Governor Schwarzenegger made cuts to balance the state budget in 2008.) 
Team members also chose to present on following DAC policy platform bills
·       AB 715 Increase Medi-Cal Aged and Disabled Program Income Level to 138% of Federal Poverty Level ($1,396/month for individuals, and $1,892/month for couples).
·       SB 338 Senior and Disability Justice Act to strengthen law enforcement response to abuse of elders and adults with disabilities, with training and detailed policies and procedures based on model San Diego County Elder and Dependent Adult Abuse Blueprint.
·       SB 10 Establish state certification process for peer providers of mental health services and require Department of Health Care Services to submit Medicaid State Plan Amendment to add peer support specialist services as reimbursable Medi-Cal benefit.
After more than 30 minutes of waiting in line to enter State Capitol building, passing security check, and then waiting for an available elevator… we met with Israel Landa, Legislative Director for Assembly member Monique Limon (Democrat, 37th Assembly District representing Santa Barbara and Ventura counties).  Though we could not get commitments from this office, we picked up cool blue tote bags with yellow letters reading, “Everything is Better #con LIMON!” 
Squeezed into reception area to meet with Gianna Rogers, aide to Assembly member Jordan Cunningham (Republican, 35th Assembly District representing San Luis Obispo and portions of Santa Barbara counties).  He said he would deliver our messages to Cunningham, who authored legislation to increase access to health care and strengthen public safety.
Assembly member Cunningham’s father showed up during our visit!
Nora Lynn, Legislative Director for Senator Hannah-Beth Jackson (Democrat, 19th Senate District, representing Santa Barbara and western Ventura counties), made our day when she (they) said Senator was committed to supporting our priority bills! She (they) wore DACA Day button and posed with our team of happy campers.  (As Chair of the Senate Judiciary Committee, Senator Jackson introduced gender-neutral language.) 

During the March to State Capitol building, chants included “Seniors and Disabled, need a seat at the table” and “Our homes, not nursing homes!” 


“Live in your home, not a nursing home” is the motto of Center for Elders’ Independence (CEI), which celebrated grand opening of its Downtown Oakland Day Center, sharing this historic 1922 building with administrative offices upstairs.  Modeled after San Francisco's On Lok, CEI is a Program of All-Inclusive Care for the Elderly (PACE) organization that supports East Bay seniors age 55+ with multiple health challenges to live safely at home.


CEI CEO Linda Trowbridge thanked regulators who allowed CEI to separate the day center from PACE clinic about 5 miles away.  The former dark, dance club was renovated to this bright space that features a lounge area that opens into an activity center, 1,200 square foot fitness gym staffed with physical and occupational therapists for individual therapy and group exercise, computer lab, “tranquility room” for participants who want peace and quiet, outdoor courtyard with shaded seating and landscaping, etc.


Hors d’oeuvres at open demonstration kitchen, designed for participants to make their own snacks with dietitians during activity time.


Participant performs Korean dance to live piano.


Ribbon-cutting.
San Francisco Supervisors introduced a November ballot measure, Mental Health SF, which would build a new Mental Health Service Center to facilitate universal mental health care for anyone to access psychiatrists and other providers of mental health/substance use treatment, and establish a new Office of Coordinated Care to bring the City’s mental health systems under one network.  This initiative would be funded by a surcharge on local companies whose CEOs make more than 100 times the median income of their workers. 

Given the history of stigmatizing and institutionalizing people with mental illness, many older adults do not actively seek out stand-alone mental health care services and thus are underserved. For many older adults, primary care remains the entry point so I would prefer to see integrated behavioral health clinics to meet people where they are.  Further, as noted in Dr. Marc Agronin’s Therapy with Older Clients: Key Strategies for Success (2010), common medical conditions can impact mental illness; for example, joint pain and immobility of arthritis can lead to social isolation, insomnia, increased anxiety over falling; steroids used to treat rheumatoid arthritis can lead to confusion, anxiety, and depression.  Therefore, treat the whole person=mind+body!
Psychological First-Aid for Neighborhood Emergency Response Team with Elizabeth McMahon, PhD, who provided these tips to mentally prepare for an emergency to reduce stress and trauma reactions:
·       Adapt interactions based on diversity in community: Observe (cues), Ask (what is appropriate), Respect (differences)
·       In stressful situations: Stop (take “4 for Calm” belly breaths), Slow (for moment), Think (about situation—our role, what’s needed, possible reasons for someone’s actions/emotions, what’s best action available), Act (in most calm, caring and competent way you can).
·       If stress reactions begin to impact judgment/interactions: say “Time to Take Five” (cue to step away and practice self-care: eat, hydrate, do “4 for Calm”)
·       During emergency, connect with others: Set Tone Nonverbally (calm, caring, competent) and Verbally (soothing tone, lower pitch, adjust volume as needed, slower pace, short and simple phrasing); See the Need, Say the Need (“You can’t find your pet. You’re worried. You want your pet found”); Get a “Yes” (agreement to cooperate; e.g., “I’m here to help.  Are you willing to let me?”)
·       Assess needs (medical, practical, social, psychological) and know what resources are available
·       Direct: state simply what to do and why (“I need you to stay here because someone is coming to help you”)
·       Self-care after disaster: allow time to deal with reactions, use stress management tools, maintain social connections-talk with others who understand, create positive environment, limit media viewing, write about what learned from experience; always get support for suicidal thoughts, substance overuse, or violent activities
Historical trauma: As part of Asian Pacific Heritage Month and this year’s 70th anniversary of China’s Communist Revolution, Helen Zia discussed her new book, Last Boat Out of Shanghai: The Epic Story of the Chinese Who Fled Mao’s Revolution, with journalist Sherry Hu at SF Main Library.  Helen’s latest book was 12 years in the making, involving interviews with over 100 people, after her mother in her 70s finally shared her story of abandonment by her parents and exodus from Shanghai. Helen explained that her book is the only one in the English language about the exodus from Shanghai because people who survive trauma are not willing to share their experience right away, and many of her interviewees were talking to Helen, a stranger, for the first time sharing their whole stories.  Helen advised to keep asking because at some point people might be ready to tell their story, like her own mother who finally “felt strong enough” and then sensed a release of shame in the process.  Helen believes the World War II generation have post-traumatic stress syndrome.  
During her book tour, Helen said the Chinese government would not allow distribution of her book, but e-book available online; in Shanghai, Helen’s talk title was changed to “Four Young Shanghai People Leave and Go to America.” 
At Civic Center Plaza, Lest We Forget Holocaust Remembrance Project, by German-Italian photographer and filmmaker Luigi Toscano, included huge portrait of Gloria Lyon, who survived seven concentration camps, was rescued by the Swedish Red Cross and immigrated to the United States in 1947.  SF resident Gloria has shared her World War II experience in documentary, book, and Yom HaShoah service.