Tuesday, March 31, 2020

Age of coronavirus

"Shouldn’t we be moving from the concept of self-care to a broader, more inclusive notion of collective care?...
While looking after yourself is great, self-care is still an idea rooted in a neoliberal tradition of looking out for ourselves, rather than seeing ourselves, our health and our fates as inextricably linked to our fellow human beings.
Wouldn’t it be great if this decade we took the self out of self-care and strived instead for communal care?
Self-care is saying “I need to look after me”, while collective self-care is saying “we need to look after each other”…
Communal care can include things like being a better neighbour, making yourself available for people who may need support, communities supporting each other emotionally and practically during crises such as the bushfires, to larger, more macro reforms and structural changes in society, such as advocating for universal health care, …”—Brigid Delaney, “We need to move on from self-care to something that cannot be captured by capitalism,” The Guardian, Jan. 30, 2020 

Self-care is so passé from last decade of 2010s, something Millennials may have absorbed from Boomer parents who came of age during the narcissistic Me Decade of the 1970s? Millennials and Boomers continue to be divided, with the former calling the 2019 novel coronavirus disease (COVID-19) “boomer remover” (referring to higher mortality among older adults infected with coronavirus), and accusing each other of ignoring public health guidance.

Seems this neoliberal pursuit of self-interest motivated governments in framing their response to the rapidly evolving COVID-19 pandemic as a binary choice between saving vulnerable human lives and “saving the economy”?  U.S. Senators were quick to engage in insider trading, selling off holdings in retail stores and airlines, buying up Personal Protective Equipment (PPE) and telework software companies. 

"There's a choice we're making,
We're saving our own lives,
It's true we'll make a better day, just you and me”
--Michael Jackson & Lionel Richie, “We Are the World” (1985) 

Political correctness (fear of racism charges) was blamed for Italy government’s slow response to COVID-19.  Notably, left-wing Florence Mayor Dario Nardella began “Hug a Chinese” campaign on Twitter last month, calling for “unity in this common battle,” and a video was posted showing a street demonstration by Chinese (“I’m not a virus. I’m human. Eradicate the prejudice.”) man wearing a face mask that is removed by a hugger! 
  
Public health emergency => collective care

In response to the global COVID-19 threat first identified in Wuhan (China), San Francisco Mayor London Breed encouraged supporting Chinatown business after she declared a state of emergency on February 25 to mobilize resources (federal and state reimbursement $) toward containment of any outbreak, and its proactive Department of Public Health (DPH) had been monitoring people returning from travel in China.  Last month, experts were more concerned about flu outbreak while monitoring COVID-19 situation (and local news was preoccupied with ethics and bribery scandals involving SF Mayor and her ex-boyfriend who resigned as Public Works Director after his FBI arrest).  In late February, 79-year-old House Speaker Nancy Pelosi did her “Come to Chinatown” trek, and I continued medical social work outreach inside crowded single-room occupancy (SRO) hotels in Chinatown, in contrast to the nearly empty streets outside due to fears of “Chinese virusor “kung flu,” stigmatizing Chinese or Asians, who seem to all look alike to the clueless.  (WHO does not name diseases after animals and places; Spanish flu did not originate in Spain, a neutral country that made news of 1918 influenza epidemic public.)

While CDC has not recommended masks for the general public, many Chinese wear face masks out of communal concern, reducing stigma.  Particularly in East Asia, face masks are worn for protection against virus outbreaks, air pollution, cold weather—and seen as part of people’s collective responsibility--dating back to 1911 when Cambridge-educated Dr. Lien-Teh Wu of the Chinese Imperial Court designed a breakthrough “anti-plague” mask, used worldwide and forerunner of N-95 mask. Pharos Global Health Advisors recommended wearing masks to help prevent face touching (potentially blocking coronavirus from entering mucous membranes in nose, throat, and eyes to cause infection). 
Though testing has been limited due to supply shortages, California Governor Newsom declared a state of emergency on March 4 after a 75-year-old Californian man died from COVID-19 on Grand Princess cruise ship.  However, other local and state governments were “business as usual” and much slower to respond.  73-year-old President Trump and Fox News treated situation like Pandumbic.  
On March 5, I was out and about, joining Senior & Disability Action’s SRO Workgroup at a crowded City Hall demonstration for #30RightNow Rent Relief for SRO Tenants.  SF Mayor London Breed was unavailable, so her Chief of Staff Sean Elsbernd met with us.
Last summer, SRO tenant Jordan Davis went on a 21-day hunger strike that succeeded in the City budgeting $1 million to Economic Hardship Fund for Masterlease Tenants, a one-year pilot program to get City-leased SRO hotel rents down to 30% of tenants’ income.  However, there has been no implementation to date.  Sean committed to have a plan in two weeks…but SRO tenants like Jordan, who pay more than half their income towards rent, are still waiting for rent relief.  (Four days later, SF Mayor announced that City would spend $5 million for “roving cleaning teams” to better protect seniors living in SRO hotels and shelters from coronavirus.)
While visiting supervisors’ offices, Supervisor Aaron Peskin’s Chief of Staff Sunny Angulo said Supervisor was unavailable because he was on the phone negotiating to keep Princess Cruise luxury ship’s 3,000 passengers and crew—some infected with coronavirus—from docking in San Francisco.

Protecting vulnerable
After attending this crowded gathering with Senior & Disability Action, DPH announced two SF residents (including man in his 90s, with underlying health conditions) tested positive for COVID-19 and issued “aggressive recommendations” for “social distancing” meant to “disrupt normal social behavior” to reduce community spread of coronavirus:  “vulnerable populations” (age 60+ and people with heart/lung/kidney disease, diabetes, and weakened immune systems) should “stay home as much as possible,” and general public should “cut back on the time you spend with groups.” Oops!

As it turns out, we are all vulnerable because COVID-19 is equal opportunity: it does not discriminate by age, race or income/wealth.  Anecdotal evidence suggested that racial minorities and people with less wealth do not have equal access to COVID-19 testing.  California law requires equal access to healthcare services, but COVID-19 made healthcare rationing inevitable as elective surgeries were suspended.  And people who do visit hospitals for medical emergencies risk exposure to coronavirus.

Doctors from Bergamo—considered epicenter of Italy’s COVID-19 epidemic—recommended adoption of community-centered care, reserving hospitalization for severe cases (versus patient-centered care in U.S.), strict containment measures and inclusion of social scientists addressing pandemic, which is a public health and humanitarian crisis, to prevent rationing in overwhelmed hospitals with shortages (PPE, ICU beds, ventilators, etc.):
"The situation here is dismal as we operate well below our normal standard of care. Wait times for an intensive care bed are hours long. Older patients are not being resuscitated and die alone without appropriate palliative care, while the family is notified over the phone, often by a well-intentioned, exhausted, and emotionally depleted physician with no prior contact."—Physicians in Papa Giovanni XXIII Hospital in Bergamo, “Dire warning from Italian doctors: How U.S. can avoid COVID-19 disaster,” quoted from New England Journal of Medicine in SFGate, Mar. 25, 2020

SF Bay Area health departments have been reluctant to release data on race and location of COVID-19 cases, fearing this could heighten discrimination against certain communities where there might be clusters (two or more cases that appear to be connected). The first cases in the Bay Area were among ethnic Chinese residents returning from trips to China.  According to WHO and CDC, coronavirus is believed to be spread during close contact and by respiratory droplets produced when people cough, sneeze or exhale, so it was troubling when media reported spitting incidents here in streets of SF, including racially motivated spitting on a Chinese-American woman.
  
Thus far, SF has prioritized protecting the “most vulnerable” from coronavirus: older adults and people with underlying health conditions, people living in congregate settings (nursing home/assisted living facilities, cruise ships, SROs, shelters, prisons) and people experiencing homelessness (but SF police continue sweeps, forcing unhoused to “move along” instead of supporting their ability to “shelter in place”).  Risk factors like underlying health conditions and living in congregate settings are influenced by social determinants including income, education, access to wholesome food, occupational safety. COVID-19 pandemic has exposed our broken systems perpetrating health inequities, with disproportionate impacts on old people. 

Nursing homes, with their high concentration of the elderly and chronically ill, have been ground zero for coronavirus clusters.  Life Care, a for-profit nursing home in Kirkland, Washington, became the nation’s epicenter of the COVID-19 pandemic.  Despite a 5-star rating at CMS Nursing Home Compare, it reportedly held a Mardi Gras “germ fest” party leading to an outbreak that has killed at least 37 residents and visitors to date.  Since then, old people have been in the news daily in connection with COVID-19.

Ageism?
After COVID-19 outbreak at Life Care, responses to protect old people in nursing homes was quick with lockdowns, and soon Governor Newsom calling for seniors age 65+ and people with underlying medical conditions to stay home for their protection—almost like an “othering” (stigmatizing?) old people as frail and vulnerable to disease—upending #endageismsf campaign efforts to downplay “vulnerable” feature of older people?

Shortly after Governor’s directive and after one SFSU employee was diagnosed with COVID-19, SFSU President ordered that all SFSU employees meeting the Governor’s criteria “must stay off campus.”  Whoa, many SFSU faculty appear 65+! Fortunately, SFSU President had foresight to suspend face-to-face classes and transition to remote instruction effective March 16.

The Supreme Court postponed hearing cases to protect the health of justices, many of whom are most at-risk for COVID-19 given their older age and underlying health conditions.  Six of the nine justices are 65 or older, with the oldest Justice Ruth Bader Ginsburg at age 87 and survivor of multiple cancers. 
Yet, not all seniors stayed home waiting for grocery deliveries, as we saw infectious disease experts old enough and experienced (crystallized intelligence!) with HIV/AIDS pandemic to provide their calm voices of reason:  79-year-old Dr. Anthony Fauci, Director of National Institute of Allergy and Infectious Diseases (NIAID); 68-year-old Dr. Robert Redfield, Director of CDCand 63-year-old Dr. Deborah Birx, White House Coronavirus Task Force Coordinator.

While politicians spin their narratives of hope, I prefer to fast forward listening to the calm delivery of data-driven public health experts like Drs. Fauci, Mark Ghaly (California Health & Human Agency Secretary and pediatrician) and Grant Colfax (SF DPH Director and AIDS expert).  One exception was waking up to hear long-winded Governor Gavin Newsom scolding (social distance shamingyoung people (presumably under 25 with not yet fully developed brains to behave responsibly): 
“Assume that you are potentially contagious and act accordingly, socially distance yourself from others.  Just use common sense.  Be a good neighbor, be a good citizen.  Those young people still out there on the beaches thinking this is a party, time to grow up, time to wake up.  Time to recognize it’s not just about the old folks. It’s about your impact on their lives.  Don’t be selfish.  Recognize you have a responsibility to meet this moment as well.”—California Governor Gavin Newsom, Mar. 21, 2020 (video at 13:30)
  
When Kaiser Health News journalist Judith Graham asked, “Should everyone over 60 take the same coronavirus precautions?” geriatricians responded this depends on individual’s state of health; for example, St. Louis geriatrician John Morley considers increased risk if person is FRAIL (Fatigue; Resistance problems – Cannot walk up a flight of stairs; Aerobic problems – Cannot walk a block; Illnesses – Greater than 5; Loss of 5% or more of weight in six months). UCSF geriatrician Carla Perissinotto replied, “I don’t think it’s as simple as ‘Don’t go out’ for all older adults. Social contact is still really important.  If you’re healthy and over 60, with prudence, hand hygiene and being aware of your surroundings, you should still be able to go about some activities,” while maintaining a safe distance.  Hardy 102-year-old Italia Gordona, survivor of Spanish Flu, recovered from COVID-19 after her 20-day hospital stay in Italy. 


Tent encampments on Taylor Street sidewalk in bustling Tenderloin provide shelter to some of 8,000 unhoused people in SF.  Unhoused survive on streets, challenged with access to enable proper hygiene and physical distancing.  Being outdoors in Tenderloin = exposure to lots of smoking.  Scottish microbiologist claimed coronavirus transmitted via blowing out e-cig vapor = being spat on face, but UCSF docs disputed this unless the e-cig user coughs when exhaling – ahem, highly likely smokers cough to clear polluted airways! 
Mobile Health meets people where they are outside Glide in Tenderloin, helping to reduce unnecessary movements. Glide closed over one weekend for deep cleaning after suspected COVID-19 outbreak.

Patient Safety Awareness Week


Flatten the curve” efforts include hygiene and safety measures to avoid overwhelming hospitals and forcing healthcare rationing.  This year’s Patient Safety Awareness Week was observed on March 8-14, with UCSF nurses demonstrating over understaffing and lack of PPE: "When Nurses Aren't Safe, Patients Aren't Safe" rally

Bad enough that there’s a global shortage of PPE, but what about higher wages/hazard pay and benefits for frontline workers who sacrifice their own health and safety? CDC found patient safety at LifeCare was compromised by nursing home staff who worked while sick and without PPE, helping to spread coronavirus in a controlled environment.  The reality is some essential workers in the healthcare sector cannot afford to stay home if sick, especially if they do not have paid sick leave.  

Last week, SF DPH’s 780-bed Laguna Honda Hospital & Rehab Center was placed in lockdown due to COVID-19 outbreak, yet another patient safety scandal after last year’s elder abuse.  The American Bar Association warned that isolation, quarantine and lock downs may increase risk factors for elder abuse, neglect and exploitation. 

On March 13, CMS seemed to increase risk for isolation and elder abuse when it ordered nursing homes to restrict in-person visitors—including LTC ombudspeople!—and cancel communal dining and group activities.   After this, ombudspeople continued their resident advocacy work by turning to telephone and other technology, limiting their ability to investigate complaints.
  
After Patient Safety Week, California DPH appeared to add more risk to nursing home population by notifying nursing homes to prepare to accept and care for patients with coronavirus!  Los Angeles County DPH went further, telling nursing home administrators that they cannot refuse to take COVID-positive patients! California Department of Social Services officials told adult and senior-living facility inspectors not to wear gloves or masks during site visits because supplies were low and donning the equipment might unnecessarily “scare” residents! 

Housing = healthcare = privilege?
With SF’s “shelter in place” order, suddenly COVID-19 appeared not to be just about old people but all of us.  As routines were disrupted, longstanding inequities in our dysfunctional systems were exposed in this public health crisis that has forced government action to flatten the curve.  Quarantining people who have been disadvantaged by ageism, ableism, racism and poverty does not merely save lives of disenfranchised people, but prevents hospitals from being overwhelmed by catastrophic surges in emergency care (and hospitals are prohibited from denying emergency care, thanks to Emergency Medical Treatment & Labor Act of 1986).

“Shelter in place” is a privilege.  In this pandemic, suddenly government was forced to respond: Where do unhoused people “shelter in place”? What if “shelter in place” is not safe for households that experience domestic violence, exacerbated by isolation from school closures and financial stressors from being furloughed as “non-essential worker” who is unable to work from home? What supports are available for people who have mental/substance use disorders that make it challenging for them to follow “shelter in place” orders and practice good hygiene? How does one maintain physical distancing of at least 6 feet in SROs, shelters and prisons?

What do multigenerational households make of advice from UCSF pediatrician Dr. Lisa Dana: “The best way you can keep your grandparents alive is to Facetime with them or give them a call. Do not visit them. That visit could be a death sentence.” 

California Governor and SF officials began leasing vacant hotels with plans to house vulnerable people.  SF Mayor stated intention to prioritize moving seniors and people with disabilities in SROs into hotels with private bath and delivered meals.  However, SF Human Services Director’s plan to move homeless people (half of SF homeless are age 50+) into shelters was clearly at odds with SF Health Officer Dr. Tomas Aragon, who recommended moving homeless people into private rooms from a disease prevention perspective. 

Meanings
SF DPH posters provided clearer communication than City officials and other media on interventions:
·       Shelter in place” (used in SF order makes me think of alternative to evacuation during a disaster) v. stay at home (CA order used clearer language) 
·       What age is a senior? Age 60+ (SF) v. Age 65+(CA)
·       Social v. physical distancing - latter more accurately captured intention to maintain 6 feet distance
With schools closed and a statewide stay-at-home order in place except for essential workers, SF libraries have been repurposed as emergency care centers for children K to 8th grade to support first responders, healthcare workers and “essential” City employees. But what about workers who care for elderly parents at risk? 

This stay-at-home directive was nothing new for people permanently shut-in due to certain disabilities.  But now homebound clients fearful of coronavirus transmission refused assistance from home health aides—as potentially unwitting asymptomatic vectors—coming into their homes. According to CDC, nearly half of U.S. coronavirus patients in intensive care are under 65, but death rates still higher for older adults. 
Finally, during March 23 COVID-19 update, SF Mayor announced first virtual press conference to demonstrate by example social distancing—just one speaker at a time on stage, with ASL interpreter maintaining at least 6 feet distance. (CDC guidance advises 6 feet distance from other people, which is double the 3 feet distance recommended by WHO.)   Dr. Colfax provided this memorable line: “Let us stay apart as we stand together.”
“No one reached out to me and said, as a senior citizen, are you willing to take a chance for your survival in exchange for keeping the America that all America loves for your children and grandchildren? And if that’s the exchange, I’m all in.” –Texas Lt. Governor Dan Patrick, 69-year-old Boomer with heart disease, “Dan Patrick says he is willing to risk his own life to allow economy to resume,” SFGate, Mar. 24, 2020 
One has to wonder about the impact of ageism, relegating the role of older adults to stay home for their protection, and searching for deeper purpose in life like Dying4WallStreet because the "cure can't be worse than the disease"?  Essential workers are exceptions to stay-at-home order, and people of all ages need a reason to get up in the morning.  Like the 4,500 retired nurses and doctors who signed on to rejoin National Health Service (NHS) in the UK within 48 hours in response to “Your NHS Needs You” to fight COVID-19, over 25,000 healthcare professionals (including retirees within the last five years who could reinstate their licenses) applied to California Health Corps less than 24 hours after Governor Newsom’s announcement for COVID-19 emergency medical staffing roles.

Practicing wellness
I have learned from my shut-in clients how to be a great indoors person, and have practiced being an intentional shut-in, turning to my favorite solitary/wellness activities of reflective daydreaming, reading, walking, cooking, listening to music, and sometimes my own choreography.

Boomer tunes inspire coronavirus musical parodies
79-year-old Neil Diamond, who retired from touring two years ago due to Parkinson’s, made us feel better with his fire-side singing “Sweet Caroline” (1969) into Coronavirus PSA: “Hands / Washing hands / Reaching out / Don’t touch me / I won’t touch you…”  

Old people were included in lyrics of coronavirus musical parodies.
·       Boomer Frank de Lima, who brought us Stayin’ Alive (the Hawaii Missile Threat), shared his latest hit song Corona, Corona (sing to tune of Corrine, Corrina):  “Stay calm, don’t panic, gotta keep real cool/ Just take precautions, especially our tutus.”
·       MyLifeSuckers sang Self-quarantine (Diamond’s Sweet Caroline):  “Tell my parents to be good, don’t go outside/ Self-quarantine I won’t infect the neighborhood/ Self-quarantine this is for the greater good/ Self-quarantine to save our humanhood.”
·       Maria Wojciechowski sang Self-quarantine (ABBA’s Dancing Queen, 1976):  “…don’t be that guy who’s like, ‘I don’t care, I am 25’/ Time to face the music, everything’s not fine/ This is the circumstance from New York to San Fran/ It’s time to self-quarantine, or we will be worse than Italy…/Don’t take the chance, grandpa could die/ If you don’t stay the hell inside/ Flu-uu, it’s not the flu, it’s COVID-19.”
·       Zac Kessel sang I miss American life (McLean’s American Pie, 1971):  “…And as the cases climb it gives us fright/ Will all our parents be alright?/ We’ve just begun to fight the fight/ We must all stay inside/ We were singing bye bye, I miss American life… On social media they were hoping/ And the seniors we admire most/ The ones who will not read this post/ Protect them all from coast to coast/ These days we all must hide …”
·       Luke Murgatroyd sang I think we’re alone now (Tommy James & Shondells, 1967): “Not easy to hideaway for 20 nights/ But it means I won’t be deadly to the old folks that I meet and so that’s why/ I’m being alone now…”
·       Kiffness sang Yesterday (Beatles, 1965):  “I can’t even see my mom for 20 days / now I’m stuck at home with bills to pay...”

Boomers and Gen X are good at staying home, according to Holderness Family’s 1980s Guide to Quarantine (Boredom): phone, video games, hair, TV, music mix tape, dance.   


Boomer/Gen X cellist Jan Vogler and Gen Z pianist Tiffany Poon hosted 24-hour Music Never Sleeps NYC online concert with performers of all ages, which kept me up all night!  Just as musicians can perform without live audiences, so can “spectator sports”?!  
Governor Newsom announced statewide initiative, “Stay Home. Save Lives. Check In,” to urge Californians “to help combat social isolation and food insecurity among Californians who are over the age of 65– a community that is uniquely vulnerable to COVID-19.”  72-year-old Larry David urged everyone to stay home in his PSA: “You’re hurting old people like me. Well, not me... I’ll never see you.” 

Start planning for the future: getting old
“Never allow a crisis go to waste.  Start planning for the future.”—Rahm Emanuel, former Chief of Staff to President Obama (2009-10), “Rahm Emanuel reprises 'never let a crisis go to waste' catchphrase amid coronavirus pandemic,” Washington Examiner, Mar. 24, 2020 
After SF announced extension of “shelter in place” at least through May 1, I wondered about any lasting impact from this heightened awareness of our shared vulnerabilities—live long enough and we will find ourselves old in all its rich diversity of experiences.  Living in this state of emergency has forced rethinking priorities and underlying values: what is truly “essential” to quality of life, that we are all interdependent, and need to look out for one another through collective action to improve community care, strengthen our safety net and bring about systems change.  Some age-friendly developments:
·       Private sector accommodating seniors for early morning shopping hours and free delivery of prescriptions 
·       Expansion of telehealth (phone, videoconference) to Medicare patients (previously limited to only rural areas) 
·       SF government plan to house homeless, prioritizing most vulnerable seniors and people with disabilities, into vacant hotels with private bath and wrap-around services –how about next step for permanent supportive housing? 
·       SF government’s re-opening shuttered hospital, safety-net Seton Medical Center, which served mostly older and low-income patients 
·       Federal government’s coronavirus stimulus check, almost like universal basic income?
·       Less pollution (though do not agree with suspension of EPA enforcement

This year’s Social Work Month theme is Generations Strong! My planned groundbreaking research, Social Work Interventions to Ease Nursing Home Relocation Stress, came to a halt with the suspension of visits to nursing homes this month.  Given uncertainty over this pandemic’s duration, I began another research project to infuse aging content in MSW core curricula.  This is much needed when considering that only 4% of social workers have completed specialized geriatrics training even though 75% of social workers work with older adults, according to Eldercare Workforce Alliance. Hope my effort will bring MSW training close to the “weeks” of geriatrics training provided at medical schools.
“Medical schools devote months to teaching students about child physiology and disease, and years to adults, but just weeks to elders; geriatrics doesn’t even appear on the menu of required training. The National Institutes of Health mandated the inclusion of women and people of color in medical research in 1986, but it didn’t issue a similar mandate for elders until 33 years later, in 2019….
Even though older people are far more likely to die from it, until 2018, the California Department of Public Health counted flu deaths only for children and adults under 65… The problem is that when the impact of disease in a population is unknown, there’s little incentive to develop treatments tailored to that group’s needs. When the affected population is elders, the problem is especially bad: As we’ve already seen with the current crisis, many people say that elders are dying anyway and tend to blame old age itself for their deaths—not a flawed system…
Everyone can help create a less ageist culture and improve individual institutions. Aging experts like myself are (for now, digitally) collaborating to devise elder-specific protocols for managing COVID-19…”
Woo-hoo! Coronavirus Aid, Relief, and Economic Security Act (CARES Act) included reauthorization of the federal geriatrics workforce programs, the Geriatrics Workforce Enhancement Program (GWEP) and the Geriatrics Academic Career Award (GACA) at $40.7 million for five years!

COVID-19 pandemic led to cancellation of several annual gerontology/geriatrics conferences: American Association for Geriatric Psychiatry (March 13-16 in San Antonio), American Society on Aging’s Aging in America (March 24-27 in Atlanta), Oregon State University’s Gerontology Conference (April 1-2 in Corvallis), Berkeley Retirement Center’s Engage with Age (April 21), and American Geriatrics Society (May 6-9 in Long Beach).  With time saved from traveling, I am homeschooling (inspired by Dr. Colfax, whose parents wrote Homeschooling for Excellence), working remotely, enduring Zoom meetings, and keeping up with old people in daily news.