Monday, July 31, 2017

IAGG 2017 Global Aging and Health

Last week, Gerontological Society of America (GSA) hosted the quadrennial International Association of Gerontology and Geriatrics (IAGG) World Congress in San Francisco. The theme of this year’s Congress, “Global Aging and Health: Bridging Science, Policy and Practice,” brought together over 6,000 scholars and practitioners from more than 75 countries to learn the latest developments in the field with a focus on improving the lives of older people. 

Global population aging is a significant trend of the 21st century, due to increased life expectancy and low birth rates.  According to the United Nations Population Fund, people aged 60+ comprise 12.3% of the global population, and will increase to 22% (or 2 billion) by 2050. 

Opening Ceremony and Lecture 
Outgoing IAGG President Heung Bong Cha presented IAGG flag to incoming IAGG President Jack Rowe, Professor of Health Policy and Aging at Columbia University and co-author of Successful Aging. 
GSA President Barbara Resnick announced that one-fifth of GSA’s membership comes from outside the USA; GSA had forgone its annual scientific meeting this year to plan for this World Congress, an eight year effort; and next year’s GSA meeting: The Purposes of Longer Lives, will be held in Boston, November 14-18, 2018.

Like GSA’s annual meeting, sessions at IAGG World Congress were identified by tracks: BS (Biological Sciences), BSS (Behavioral & Social Sciences), HS (Health Sciences/Geriatric Medicine), SRPP (Social Research, Policy & Practice) and ID (Inter-Disciplinary).
AARP CEO Jo Ann Jenkins presented her lecture, Disrupt Aging, based on her best-selling book of the same title.  She talked about our longer lives as opportunities to grow, thrive and contribute, rather than global aging as decline, burden and a crisis to be solved.  Disrupt aging is about choosing how we want to live and age.
Linda Fried, first female Dean of Columbia University’s Mailman School of Public Health, talked about Benefiting from the Third Demographic Dividend 
After noting the 10th anniversary of The Elders, a group of senior leaders brought together by Nelson Mandela to work on global solutions, she proposed creating a Third Demographic Dividend using the assets of an aging population for a better future that is win-win for all ages.  She offered Experience Corps (EC) as an evidence-based model for this win-win-win impact of an aging society.  In the early 1990s, she helped design and develop EC, an intergenerational program that placed trained older people as volunteer tutors to boost the academic performance of elementary school students while volunteers improved their own health through this meaningful activity and community engagement. EC is now an AARP program, in 22 U.S. cities. 
Chinese lion dance entertainment 
Welcome to Exhibit Hall Opening!

Dementia care

More than 47 million people worldwide have dementia, and there are 9.9 million cases every year, with age as the greatest risk factor for dementia.  By 2050, the number of people living with dementia worldwide is expected to triple to 132 million.  The prevalence of dementia is expected to place growing demands on health and long-term care providers as the world’s population ages.  Dementia is the primary medical condition associated with nursing home admissions.
Presidential Symposium: Dementia-Related Stigma – International Perspectives in Addressing the Stigma of Dementia (HS)
  • Banghwa Casado’s study on Stigma of Alzheimer’s Disease (AD) and Care-Seeking Among Korean Americans suggested that increasing AD knowledge could influence seeking AD care.
  • Sarang Kim’s research on Dementia-Related Stigma and Cultural Diversity found that dementia-related stigma in Australia is specific to age, gender and cultural background, and therefore dementia-stigma reduction strategies should be tailored specifically to these different groups.
The UK has developed interventions to address the stigma of dementia:
  • Creating Dementia-Friendly Workforce: The Role of Personal Narratives in Online Training – Murna Downs, Professor of Dementia Studies at University of Bradford, presented Improving Dementia Education and Awareness (IDEA) online training to decrease stigma and increase quality of care.  She emphasized the need to listen to people living with dementia (see BBC documentary, “Terry Pratchett – Living with Alzheimer’s) because it’s not enough to know a list of signs and symptoms.
  • Intergenerational Approach to Addressing StigmaSimon Evans, dementia researcher at University of Worcester, noted that growing awareness of dementia and its effects, along with poor prospects of a cure, has led to fears of getting this disease.  Dementia-related stigma is associated with feelings of shame, sense of dehumanization/social isolation, depression; it can lead to delayed diagnosis and treatment and increased institutionalization.  He shared how teachers introduced dementia awareness into schools through lessons in a range of subjects (assistive technology, brain, memory aging, living well with dementia), meeting people with dementia and their carers, debates, life histories, drama/art/music, singing/choir, tea parties, Dementia Ambassadors, etc.
In Stigma in Psychosocial Dementia Research, Myrra Vernooij-Dassen of Radboud University (Netherlands) observed that once diagnosed with dementia, stigma reduces the person to the disease, so the person is often seen through the filter of dementia focused on deficits rather than capacities.  As a result of stigma, losses in social functioning appear to be caused more by social dynamics than by brain injury alone.  Yet, life can continue to be meaningful after a dementia diagnosis, if people are treated with dignity—not being perceived as a burden to others, but continuing to be useful. 
Liberating the Arts from the Therapy Culture in Dementia Care (BSS) featured Cracked: A New Light on Dementia, a play from Canada-based Collective Disruption and inspired by Canadian poet-singer Leonard’s Cohen’s Anthem, suggesting that cracks make us human:
Ring the bells that still can ring
Forget your perfect offering
There is a crack in everythin’
That's how the light gets in

This theater production followed people with dementia and their families, informed by research involving people with the lived experience.  Sherry Dupuis, Professor of Recreation and Leisure Studies at the University of Waterloo and co-lead of the Partnerships in Dementia Care (PiDC) Alliance used art-based, interdisciplinary team research to challenge the dominant tragedy discourse focused on loss and deficit, which assumes a premature closure of life in dementia.  Based on actual stories told by people with dementia and their families, the play explores their real lives and possibilities for self-expression including fun and laughter.
  • Social Location of Personhood in Dementia Care, Policy and Practice  – Professors Paul Higgs and Chris Gilleard of University College London affirmed personhood in dementia (considered a change, not loss, in identity) and the shared responsibility of care to support the dignity, identity and autonomy of the person with dementia. 
  • Precarity in Late Life: Rethinking Dementia as a Frailed Old Age  - According to Amanda Grenier, Aging and Mental Health Chair at McMaster University (Canada), the idea of dementia as frailty and impairment, based on leading paradigms of activity and success, reinforce stigma. She concluded that we need to rethink dementia and frailty, in relation to “ourselves” v. “the other” (shared vulnerability), as part of the life course and human condition v. end of life experience, as part of a successful life and relational interdependence v. failure of dependence, and provision of care as shared responsibility.
  • Dementia, Class and Social Relations  – Ian Rees Jones, Cardiff University Professor and investigator of Improving the experience of Dementia and Enhancing Active Life (IDEAL) called for a political economy approach, noting studies that show a higher risk of dementia in those with lower socio-economic status, the role of social class in diagnosis and treatment of dementia. 
  • A Relational Model of Citizenship: Insights From a Study of Elder Clowning in Dementia Care in Toronto - University of Toronto researcher Pia Kontos talked about the role of red-nosed clowns  in increasing positive affect in older people, by using improvisation, humor and expressive arts (song, musical instruments, dance).  While children remain the target audience, clowning has been adapted for older people with dementia since the late 1990s.
Several years ago, I took the Massive Open Online Course (MOOC), Living with Dementia: Impact on Individuals,Caregivers, Communities and Societies, by Laura Gitlin, Director of the Center for Innovative Care in Aging at Johns Hopkins University. It was awesome to meet her in-person for updates during two symposia co-chaired by her, relating to activities for people with dementia.

Symposium: The Therapeutic Benefit of Activity in Dementia Care: Evidence Across Countries and Service Contexts (BSS) – Because challenging behavioral symptoms presented by persons with dementia often adversely affect caregivers’ well-being and there is no cure for dementia, non-pharmacological interventions like the purposeful use of activity can help maintain quality of life for the people with dementia as well as their caregivers.  One promising intervention is New Ways for Better Days: Tailored Activity Program (TAP) in Dementia Care: a home-based occupational therapy intervention that involves assessment of preserved capabilities, previous roles, habits, and interests of people with dementia; development of activities customized to individual profiles; and training families in using activities as part of their daily care routines.  TAP reduced behavioral symptoms and/or increased engagement.
  • Marcia Novelli presented on the Brazilian version of TAP in Dementia Care
  • Jose Aravena presented on Kintun, Chile's first public health strategy for dementia care that provides transportation to an adult day program with activities to improve cognitive functioning, physical abilities, social interaction and community involvement.
Symposium: Tailoring Activities for Persons With Dementia to Manage Behaviors: International Perspectives (BSS)
  • Characteristics of Activities for Persons With Dementia at the Mild, Moderate, and Severe Stages – Natalie Regier’s research attempted to develop guidelines to tailor activities based on a person’s stage of dementia, or cognitive/functional profile (help with initiation, need for cues/redirection, engagement time).  (Examples: persons with 1) mild dementia prescribed complex arts and crafts and cognitive activities, 2) moderate dementia prescribed music/entertainment, and 3) severe dementia prescribed simple physical exercises and manipulation/sensory/sorting activities.)
  • Jose Aravena and Lindy Clemson discussed use of TAP principles in Chile and Australia, respectively. 
An occupational therapist (OT) in attendance expressed his belief that activities need to be meaningful to the individual, adjusting for individual cognition.  Laura Gitlin acknowledged that tailoring activities to an individual’s preserved capacity is the gold standard, but barriers include lack of time and resources to consult with an OT, so they seek evidence to match activity with cognitive profile for struggling caregivers that might work and improve quality of life.  
Symposium: Farming for Health: Lessons Learned From Green Care Farms for Dementia Care (SRPP) featured presenters on this worldwide initiative toward small-scale, homelike care settings that focus on person-centered care, offering a combination of agricultural and care activities. Residents of green care farms (GCFs) are given the opportunity and freedom to engage in outdoor, work-related, domestic, and other kinds of activities implemented into normal daily living. GCFs exist mainly in Europe, especially in Norway and the Netherlands
  • Keith Anderson of University of Montana School of Social Work on Experiences with Green Care Farming in the U.S. (Lifeside Care Farm in Montana, a GCF introduced to U.S. by Dutchman Martin Fischer) with opportunities based on growing acceptance of creative, non-medical interventions for person-centered dementia care.
  • Ingeborg Pedersen of Norwegian University of Life Sciences on Key Components of Farm-Based Day Care Services for People with Dementia:  1) provide familiar cultural traditions and activities, 2) being in nature environments (animals, garden, freely accessible outdoor space), 3) experience everyday setting, 4) fulfill personal interests and needs, 5) promote physical activity and sleep, 6) sense of community, 7) relatives feel safe, 8) invite to intuitive activities.
  • Simone de Bruin of National Institute of Public Health and the Environment (Netherlands), session chair on GCFs (see her video, "Implementing green care farms for people with dementia" in adult day service)
  • Hilde Verbeek of Maastricht University (Netherlands) on The Physical Environment of Green Care Farms: A Comparison with Existing Nursing Homes, finding that GCFs allow residents to engage in more physical activities and social interactions than residents in traditional nursing home settings, allowing them to have better quality of life and improved health outcomes. 
The Age Stage

With sessions running from 8 am to at least 5:30 pm, I thought I’d experience death by power point … but fortunately, while moving between session venues during 30 minute breaks, I passed by The Age Stage, sectioned off by black curtains and located on the 2nd floor of Moscone West Convention Center.  GSA collaborated with IAGG Humanities and Arts Work Group to present The Age Stage, a three-day program to showcase creativity in aging. 

“If you are doing creative work, you are absolutely ageless. There is no such thing as age in creativity. It is always something new.”
—Eileen Kramer, 102 year old dancer and artist, “’Always grasp the opportunity’: confronting ageism creatively,” The Guardian (27 June 2017)

The Age Stage celebrated improvisation by featuring Quicksilver (dance and music), Songwriting Works (songwriting) and Stagebridge (theater).  
Maryland-based Arts for the Aging, Inc. (AFTA) teaching artists Nancy Havlik and violinist Anthony Hyatt co-directed Quicksilver improvisational dance and music company of older adults. 
Judith-Kate Freedman and Ash Devine from Washington State demonstrated Songwriting Works, based on the oral tradition of collective music-making. UCSF's Theresa Allison, MD, who studied the impact of Songwriting Works, found that creating and performing original songs enabled institutionalized elders to remain vibrant and creative.
Never Too Late Musical Revue by Antic Witties troupe directed by Barbara Scott of Stagebridge, founded in 1978 in Oakland and the nation’s oldest theatre company of older adults. 
New Senior Life Fashion Show featured older Koreans modeling modern dress while sashaying the runway and then dancing in K-pop style, a workout for body and brain … so fun that one could temporarily forget that South Korea has the worst senior poverty rate and elderly suicide rate. 
Choreographer Eartha Robinson and Lisa Chevalier presented Colibri Arts: Lifelong Movement and Dance, through Debbie Allen Dance Academy,
benefits memory (choreography) and blood flow (movement).  Some program participants, who began tapping their feet while seated only, were standing and grooving seven months later!
Honoring Our Elders of northern Mexico displayed 6 feet high portraits (at left) by self-taught artist J. Michael Walker.  Art Saves Lives: AIDS Health Foundation Pop-Up Gallery (at right) by older persons living with HIV/AIDS.
Based on her 30+ years as a geriatric social worker, Wendy Lustbader shared The Power of Stories about older people. 
Dancing with Crow’s Feet is a pro-aging theater piece inspired by narratives of older women.


Written and directed by Debra Campbell of Arts & AGEing Kansas City, the play used ancient folklore about crows, known for their intelligence and adaptability, to celebrate old age and crow’s feet.  Caw, caw, caw!
When words become difficult, people with dementia can express themselves through art.  Frye Museum Creative Aging Program Manager Mary Jane Knecht and Elderwise Director Cara Lauer introduced Seattle-based arts programs, In the Moment: Living Well with Dementia:
  • Elderwise arts-based adult day program (Beyond Forgetting poetry book edited by Holly Hughes)
  • here:now arts engagement for people living with dementia at Frye Museum
  • Momentia Seattle grassroots movement empowering persons with memory loss and their loved ones to remain connected and active in the community.
Seattle-based Art of Alzheimer's exhibited The Artist Within: A Different View of Dementia featuring artworks by individuals, ages 60 to 101 years old, living with dementia.  
In One Morning I Looked in the Mirror and Didn’t Recognize Myself, Helen Kivnick read from her friend Lucy Rose Fischer’s book I’m New at Being Old (2010).  After 25 years as a gerontology researcher and approaching age 60, Lucy embarked on a second career as an artist painting on glass and was featured in Twin Cities PBS documentaries, The Creative Power of Aging (2008) and Life Changing Art (2010).

Health Promotion
In Genes, Environment and Behaviors that Predict Healthy Longevity (ID)
University of Illinois Public Health Professor S. Jay Olshansky presented on The Future of Healthy Lifespan Has Arrived: “It doesn’t matter if maximum lifespan is 115, 118 or 120; the most important message is that we should not be trying to make ourselves live longer, we should only be trying to extend the period of healthy life.” 
Complimentary lunch (with sugary soft drinks!) included in session on Interprofessional Solutions for Improving Oral Health in Older Adults: Addressing Access Barriers, Creating Oral Health Champions. GSA Oral Health Workgroup Chair Stephen Shuman (pictured with screen shot of The New York Times article, “With Age Comes a Mouthful of Trouble) discussed importance of caring about oral health due to its association with quality of life (comfort, speech, chewing/food selection/food enjoyment, appearance, self-esteem/socialization), systemic health problems (malnutrition, poor diabetes control, aspiration pneumonia, bisphosphonate-related osteonecrosis, infective endocarditis) and potential implications in other diseases (cardiovascular disease, dementia).  In May 2017, Administration for Community Living launched its Oral Health website to raise public awareness for starting or enhancing an oral health program for older adults.  Oral cavity examination needs to be added to old paradigm of Head, Ears, Eyes, Nose and Throat: HEENTà HEENOT.

Keynote: Dietary Determinants of Lifelong Health (ID) moderated by Fox Wetle, founding Dean of Brown University's School of Public Health.
Stefania Maggi presented on The Mediterranean Diet: New Evidence in the Lifelong Approach to Healthy Diet.  The protective effects of the Med diet are due to a combination of factors: olive oil (MUFA), fiber, omega-3, vitamins, minerals, phytochemicals.  There is good evidence that following a Med diet can reduce risk of heart disease, diabetes, cancer, dementia, osteoporosis, frailty, all-cause mortality.  She noted that in 2010, UNESCO recognized the Med diet as an intangible Cultural Heritage in Humanity: more than just food, as it promotes social interaction with communal meals, and respect for territory and biodiversity.  
Connie Bales disclosed interests with pork, beef and dairy industries, prior to her presentation on Interventions for Obesity in Frail Older Adults: Findings and Implications.  She reported that most of the world’s population live in countries where overweight and obesity kills more people than underweight.  She observed that exercise improves fitness, muscle mass and/or strength, but makes little change to body weight; reduced calorie diets produce beneficial decreases in body fat but also reduce lean mass; best outcomes combine diet and exercise, especially aerobic and resistance training. 
Jean Woo discussed Biopsychosocial and Cultural Factors Influencing Diet and Nutrition. She found the traditional Chinese diet is comparable to the Mediterranean diet, offering similar benefits. She also noted coronary heart disease mortality in Hong Kong Chinese is about one-quarter that in the U.S.A. 
Exhibit Hall’s Innovation Theater featured a demonstration of K-YangSaeng Exercise, which was developed by Yonsei Professor Young Shin Won
consisting of breathing exercises, acupressure, flexibility exercises, internal organ stimulation from palm and underfoot stimulation exercise—intended to infuse energy into body and mind.


Age-friendly San Francisco

For the most part, I skipped programs related to San Francisco, where I can easily access them as a resident.  Exceptions were Wednesday schedule that included all-day programs: Technology and Aging: Innovation for Independence and Inclusion at Marriott Hotel and Legacy Film Festival on Aging (LFFOA) at Moscone West Center. (The three-day LFFOA takes place at New People Cinema in San Francisco, September 15-17!)
Co-Designing Technologies for Older Adults: Working with Stakeholders – Sherwin Sheik, Founder & CEO of CareLinx (online caregiver marketplace), talked about taking a holistic approach to quality of life solutions that can be adapted to the life flow of the older person, instead of the older person adapting to multiple part solutions.
LFFOA Director Sheila Malkind, with At Home With Growing Older Board President Mikiko Huang and her son Cyrus, after screening of The Sandwich Generation (2008), a documentary by filmmaker Julie Winokur about caring for her father Herb who had dementia.  One powerful part of this documentary was when the filmmaker’s husband said Herb’s "spirit to live" made his parental instincts kick in and give "whatever was needed" to keep Herb aging at home, including 24/7 caregiving. 

According to a nationwide PEW Research Center survey, nearly half (47%) of middle-aged Americans are “sandwiched” between aging parents (age 65+) and children (more young adult children are struggling to achieve financial independence). Dementia patients live longer when families delay putting them in a nursing home, and enjoy a higher quality of life (i.e., significantly less use of walking aids, more social contact, higher levels of activity and exposure to daylight, and less use of psychotropic medications) than those in nursing homes.    
San Francisco Aging Commission President Edna James visited AARP in Exhibit Hall. 
SFSU Gerontology classmate Diane Houlton with attendees from Philadelphia stand in line for lunch hosted by Mendelsohn House, affordable senior housing near Moscone Convention Center. 
Bernal Heights Senior Program Coordinator Roland Soriano and Felton Senior Director Cathy Spensley at taco bar. 
Community Living Campaign Director Marie Jobling and Deputy Kate Kuckro.

SFSU Gerontology Professor Darlene Yee-Melichar with her poster, "Developing Academic-Community Partnerships in Gerontology: From Concept to Practice." 
SFSU Gerontology Professor Emeritus Brian de Vries and graduate Sumiyo Brennan. Brian presented in two symposia: Preparations for End of Life Among LGBT Older Canadians, and Appraisals of Adversity and Resilience in LGBT Elders.

From Moscone West Center, rode “T” train (aka tortoise) to UCSF’s Memory and Aging Center in Mission Bay for Global Brain Health Institute (GBHI) event.  GBHI Executive Director Victor Valcour introduced the Atlantic Fellows for Equity in Brain Health, who participated in a 12-month residence program to engage in projects focused on the psychosocial side of dementia care, addressing the triple threat: stigma of aging + stigma of dementia + higher risk in socioeconomic disadvantaged. 
Bay Area comedic monologuist Josh Kornbluth mentioned his stepfather had Alzheimer’s disease. During his year as a GBHI Fellow at UCSF’s Memory and Aging Center, Kornbluth is helping to tell the story of dementia to the public through a series of improvs, which he will develop into a one-man show and movie, called “Don’t stop me if you’ve heard this one,” starting in September.


Social Justice & Aging in Community

Symposium: Challenging Attitudes to Ageing and Ageism (SRPP) was the first session that I attended when the World Congress began on Sunday.
  • Angela Kydd of Edinburgh Napier University spoke about Ageism in the Third Age: values associated with active and successful aging often do not extend to oldest-old (age 80+ or Fourth Age), who are associated with dependency and thus face increasing stigma and societal stereotypes.
  • Discussant Liat Ayalon of Bar-Ilan University (Israel) noted the need to view ageism in context as part of other vulnerabilities (healthism, disablism, lookism, or sexism); older adults experience multiple jeopardies (impaired health status, dementia status, sensory decline, appearance); non-ageist approach would consider diversity, individually-tailored/patient-centered care, increased knowledge and awareness; see http://notoageism.com/.
  • In Attitudes Toward Aging Among Geriatric Health Care Team: Don’t Forget the Caregiver, Mary Wyman of University of Wisconsin at Madison noted that 85% of care of older adults are provided by an informal, unpaid caregiver.
  • University of Malta's Sandra Buttigieg spoke on Professional Ageism: belief that aging means inevitable decline, and futile to invest effort in person with limited life expectancy. This negative imagery can be normalized and internalized, resulting in self-fulfilling prophecy.  Consequences of professional ageism include new/worsened disability, higher probability of death, and under/overtreatment. What can be done: make geriatric care highly relevant in medical training, reconsider care options (home-based), make treatments more appropriate to older populations, review assumptions about financial impact of aging in healthcare, use technology to deliver key skills remotely and enable home-based care, reset public mindsets about older adults.
  • In Discourse Matters in Ageism, Amanda Phelan of University College Dublin criticized the metaphor “silver tsunami” to describe population aging as impending disaster, noting language that makes older people feel like a burden.
It was disconcerting to see exhibitors of anti-aging products (mostly skin creams) at Exhibit Hall.

Symposium: We Are Now They: Old Gerontologists Living in Age-Segregated Housing (ID) – discussant Helen Kivnick and presenter Miriam Moss on Adaptation to Living in a Retirement Community (on stage), Harry Moody and Sidney Moss (seated in front row).
·         Life in a CCRC: On Not Being Invisible by Anne Wyatt Brown, author of The Big Move: Life Between the Turning Points (2016) - When caring for her ill husband in a three-level house in Florida became challenging, Anne and her husband Bertram decided to move to Roland Park Place, a continuing care retirement community (CCRC) in Baltimore—where her parents resided and not far from Johns Hopkins University, where they first met as graduate students almost 50 years earlier. She adjusted to walkers/wheelchairs and talked about advantages, such as companionship among understanding peers who provide moral support.
·         Aging Out of Place by Ruth Campbell, retired University of Michigan Social Work Professor, moved into Piedmont Gardens, a CCRC in Oakland, which she described as a stimulating and friendly community of high academic achievers, 72% female; she had a relative there, enjoys visits from her grandkids and volunteers as weekly peer counselor.

Creating Caring Communities: Social Capital Formation and Aging in Place (SRPP):  UC Berkeley Social Welfare Professor Andrew Scharlach presented on Fostering Social Capital Through the Village Model, research on the social impacts of membership in eight California villages.  During their first 36 months as Village members, respondents experienced increases in the amount of interpersonal contact, group participation, ability to get help when needed, but no change in feeling of belonging to a community.

Keynote: Social Inequality and Social Justice (BSS) - Chair Jan Baars of University of Humanistic Studies (Netherlands) with presenters:
  • Christopher Phillipson of University of Manchester (UK) on Developing a Political Economy of Ageing: New Approaches to Social Justice and Inequality, discussed the crisis in social aging (decline of welfare state, replace retirement with idea of extending working life, abandon equality as goal), failure to develop a critical response (disastrous preoccupation with active/successful aging, challenge to social solidarity by unwillingness to fund services by upper and marginalized working class, impact of “microfication” so larger issues are invisible in social gerontology) and his proposal for developing an emancipatory social science (identify ways existing social institutions systematically impose harms on people, develop credible alternatives that would mitigate harms, build “everyday utopias” for a different kind of welfare state and different ways of experiencing later life).
  • Dale Dannefer of Case Western University on Intersection of Age and Inequality: Enduring Tensions, Emerging Challenges, reminded us that the pattern of cumulative dis/advantage over the life course is not “cast in stone,” but can be addressed through deliberate social actions designed to mitigate effects at any level of society, from “micro” to “macro.” 
Symposium: Addressing the Intersectionality of Race, Gender and Immigration Status in Long-Term Care (SRPP) moderated by Chair Nancy Hooyman, University of Washington School of Social Work Dean Emeritus.  90% of Americans want to age at home, yet many rely on paid care workers because their families can’t provide the support they need.
  • Kevin Prindiville, Justice in Aging Executive Director, on Increasing Care Inequities with Age Among Historically Marginalized Populations – 6.4 million seniors live in poverty  — mostly women and people of color; influenced by systemic causes including racism, sexism, changing economy, recession, rising costs, shrinking safety net (Medicaid, Medicare, ACA, Social Security, SSI/SSP, OAA, SNAP, etc.).
  • Sarita Gupta, Jobs with Justice Executive Director and Caring Across Generations Co-Director, on Culture and System Change to Ensure Justice for Caregivers – reminded us of Mahatma Gandhi’s saying, “a nation’s culture resides in the hearts and in the soul of its people”; women’s work is invisible and undervalued, so storytelling will make eldercare visible in PBS documentary, “Care” to be broadcast in September 2017.  We need to protect what we have (safety net), create what we need (home care, universal family care in ME & MI, careforce support in NC & MN). 
  • Rocio Avila, State Policy Director at National Domestic Workers Alliance (NDWA) and We Belong Together Campaign on Immigration Enforcement: Impact on Women & Home Care Workers.  Home care workers are disproportionately immigrant women and women of color; they perform critical work yet make poverty wages (25% living below federal poverty level, over 50% rely on some form of public assistance); and are more susceptible to needing health care themselves due to the toll of caregiving work.  Trump Administration’s proposals to expand immigration detention, removal and deportation threaten immigrant women and their work in caring for older people; to repeal ACA and convert Medicaid to block grants will result in worsening insurance inequality.
  • Lourdes shared her experiences as a home care worker.
Ai-Jen Poo, NDWA Director, was listed on IAGG Program Book to present on Domestic Workers and Labor Protections, but she was a no-show with Rocio filling in her spot.

Ai-Jen Poo showed up in “Care” documentary film screening hosted by LaborFestwith panel discussion afterwards.  Panelists David Duckworth SEIU 1021, Brad Wiedmaier, SEIU Local 2015 California long term care; and Brett Miller, SEIU 1021, discussed how unions can help us take care of each other.

5 comments:

  1. What Older Americans Stand to Lose if ‘Dreamers’ Are Deported
    By NOAM SCHEIBER and RACHEL ABRAMS
    SEPT. 6, 2017
    When the Trump administration announced on Tuesday that it would end an Obama-era program that shielded young undocumented immigrants from deportation, Sherwin Sheik quickly sized up the potential toll on his business.
    Mr. Sheik is the chief executive and founder of CareLinx, which matches home care workers with patients and their families. The company relies heavily on authorized immigrant labor, making the looming demise of the program — which has transformed around 700,000 people brought to this country as children into authorized workers — a decidedly unwelcome development.
    The move, Mr. Sheik said, would compound an already “disastrous situation in terms of shortages of supply.” …
    In health care, …the economic impact could be significant, depriving patients of help they depend on and driving up costs for families and taxpayers.
    Surveys of DACA beneficiaries reveal that roughly one-fifth of them work in the health care and educational sector, suggesting a potential loss of tens of thousands of workers from in-demand job categories like home health aide and nursing assistant.
    At the same time, projections by the government and advocacy groups show that the economy will need to add hundreds of thousands of workers in these fields over the next five to 10 years simply to keep up with escalating demand, caused primarily by a rapidly aging population.
    “It’s going to have a real impact on consumers,” Paul Osterman, a professor at the Sloan School at MIT and author of a new book on long-term care workers, said of the DACA move.
    The DACA program benefits people who entered the country as children and were under age 31 as of June 2012. A 2016 survey by pro-immigration groups and a researcher at the University of California, San Diego, shows that roughly half are still in school, and more than two-thirds have earned less than a bachelor’s degree. That would make fields like home health care aide or nursing and health assistants, which don’t require a college degree, potentially attractive.
    ...The health care field’s reliance on immigrant labor makes it particularly vulnerable. According to census data Mr. Osterman analyzed, more than one-quarter of home health aides in 2015 were immigrants. The proportion in certain states is far higher, reaching nearly one-half in California and nearly two-thirds in New York.
    …As a basic matter of economics, removing tens of thousands of workers from occupations that already suffer from a serious labor shortage — the Labor Department predicts that the country will need more than 1.25 million home health aides by 2024, up from about 900,000 in 2014 — generally has one unambiguous effect: driving up costs.
    …typical home health aide made less than $25,000 in 2016, for a job that can be physically and emotionally grueling.
    The economic problem is twofold, however. First, the government, through Medicaid, often pays the salaries of home health workers, meaning that escalating wages could blow a hole in the federal budget. (Medicaid, through the decisions of the state and federal governments, effectively caps compensation for home health workers, but the caps could rise more quickly in a world of plunging labor supply.)
    Second, an acute shortage of home health workers could force many older and disabled Americans out of their homes and into care facilities, where costs are roughly two-to-three times the cost of home care for a full year. The government typically picks up that tab as well.
    Still, it is the personal toll that may be greatest: A patient’s quality of life tends to be far higher when they can continue living in their own home.
    For patients and families who rely on immigrant workers, “if that person is gone, can’t get renewed, it’s not a cute thing,” Professor Osterman said. “A home health aide is what lets you stay at home.”
    https://www.nytimes.com/2017/09/06/business/economy/daca-dreamers-home-health-care.html

    ReplyDelete
  2. Stealing Hope
    The Alzheimer's Association doesn't need to steal the one hope families have for meaningful connection in order to feed dollars into their research machine.
    by Anne Basting, ChangingAging Contributor
    Alzheimer’s Association is telling us …when we have Alzheimer’s.
    “Alzheimer’s steals your imagination piece by piece,” it says in bold white letters on the purple background.
    “But with your help, imagine how we can end it.”
    How will they “end” it? What is the plan?
    Forty-seven million people have dementia across the world. This is projected to triple by 2050. Thus far, the only decline in these numbers have been attributed to a bump in the early childhood education of the current generation of elders with the diagnosis – not any of the treatments on the market.
    Clearly, we need to invest in research to prevent and delay the symptoms. Clearly, we need to better understand how the brain works and what the mechanisms are behind the progression of symptoms. And we need to invest more than we are now.
    But for those 47 million people who currently have the symptoms, imagination is exactly what works to help them feel connected to themselves and to others around them. Imagination is a remaining strength that can be exercised like a muscle. Family members and friends who mourn the loss of shared stories of the past that connect them to the person with dementia can learn to shift toward creativity to find emotional connection, to play, to create new moments and experiences together.
    I have not agreed with the Alzheimer’s Association’s fear-based, stigma-fueling marketing campaign for many years. But this one feels particularly egregious. They don’t need to steal the one hope families have for meaningful connection in order to feed dollars into their research machine.
    I offer my revision:
    Come with me, and you’ll see, a land of pure imagination
    a place where we
    Can be free
    And feel comfort and connection.
    Imagine how we can transform dementia care by infusing creativity into our everyday exchanges, our programming. Imagine how people with dementia can draw their families and friends together again, out of their grief and fear, into the moment of shared imagination.
    Just imagine.
    https://changingaging.org/dementia/stealing-hope/

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  3. DECEMBER 1, 2017
    When his mother started losing her memories, he found a creative way to save them.
    by Ally Hirschlag
    Tony Luciani first fell in love with photography after his mother, Elia, fell and broke her hip.
    While she was recovering, it became obvious that her memory was noticeably deteriorating, so her brother suggested moving her into a retirement home. But Tony, a full-time painter who worked from home, wouldn't hear of it. He knew that he should be the one to care for her.
    Coincidentally, it was around that time that Tony bought a camera to take photos of his artwork.
    One day, he was trying out the camera, taking photos in a mirror, when his mom came up to use the bathroom. He told her, "Five more minutes," but after that turned into an hour, he noticed his mom peeking around the corner to see if he was done yet. He caught it on camera.
    "Then she jumped out in front and put her hands up in the air and started going 'blah blah blah blah!' and then waved," says Tony. "And I thought, 'Oh my god, this is so great.'"
    The collaboration between mother and son was a most symbiotic relationship. It reignited Elia's sense of purpose and Tony had an eager, full-time model at his disposal.
    "It got to the point where I’d be painting and she’d come over to me and say, 'OK, I’m bored. Let’s do some pictures,'" Tony recalls.
    The series was meant to be an homage to her life as well as the struggles of living with dementia. Her memory was leaving her, so he wanted to record as much as she could remember before it was totally lost.
    "She’d tell me these stories, and I would jot the ideas down and come up with visuals in my head," Tony says.
    "What she remembers most is when she was a little girl," he continues. "She doesn’t remember what happened 10 minutes ago, but she does remember what happened 70, 80 years ago."
    Hearing the stories of her youth was especially rewarding for Tony because when he was a kid, she had worked long hours in a sewing factory, so he didn't get to spend much time with her.
    …But despite all her language prowess, she'd never really traveled. So Tony took her on a world tour — through photos.
    While they didn't really travel to far-away places — thanks to image editing software — they may as well have, considering the fun they had getting the shots.
    "The process of getting the end results is what I remember the most," Tony says. "The laughter and the laughter and the giggling and the craziness."
    And as the photos show, his mom had a great time too.
    "She felt worthy again," Tony says. "Like her life wasn’t over. And her life isn’t over — and she’s proved that over and over again."
    While caring for his mother hasn't always been easy for Tony, what he got in return far
    Aside from a number of incredible photo series and his mom's memories beautifully immortalized, Tony has also connected with many other people who've either been caregivers or are about to become caregivers.
    …Sadly, Elia no longer remembers her son's name, but Tony is so grateful for the three years he got to spend saying goodbye to her.
    "…This is my chance to say goodbye, even though she might outlive us all."
    When children become their parents' caregivers, there can be many challenges, even if they don't have a degenerative disease like dementia. It can become easy to view them as a stressor or an inconvenience.
    Tony's experience with his mother is a testament to what happens when you don't do that. When you listen to your aging loved one and try to find a way to connect with them again, it can change everything.
    Even if you don't create art, the effort will leave you with incredible new memories — the likes of which you may have never imagined.
    http://www.upworthy.com/when-his-mother-started-losing-her-memories-he-found-a-creative-way-to-save-them

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  4. Alzheimer's illness is common in my family, I have been stressed at work for at least 16years suffered depression my thoughts were blocked. So I knew the need to keep a watch on it, that was when I began to walk several times a week, 2 miles a day and realized that was a positive thing, but it got to a point my whole body started getting weaker, I needed some help. I started up training, the trainer came to my hometown 5 times a week and he told me that would be able to help me. I agreed with him and was happy I finally found solution not until I woke up one day and couldn't walk. Tried out so many medications and diet but none of them was able to help me. In the process I knew about ZOMO, an herbal medicine for Alzheimer's disease, I followed the blog address shared; I curiously contacted him and got ZOMO. I didn’t want to be disabled at my old age, and was so hungry for more healthy days on earth. My recovery involved both medicine and diet. I never had any complications I experienced while on English medications why using ZOMO. You may contact Dr. Charanjit via his email. charantova@gmail.com or visit his blog via curetoalzheimer.blogspot.com

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  5. DOES HERBS WORK FOR DEMENTIA?

    This was the same question that prompted me to read further a testimony I saw on a blog. I would like to tell a story - hoping it will be useful to others - of my struggles and achievements with Dementia. I was diagnosed a little over 4 years ago, No doctors I met have any treatment or even suggestions apart western medications. I even sought advice on Youtube, to no avail. After using the conventional approach to medication treatment without improvement. I am glad something happens fast. There have been suicides due to people not being able to continue on living with the endless memory challenges. It is horrible. I learned about Dr. charanjit herbal medicine that works effectively for me without any negative effects. I have returned back to my normal life and I hope that the symptoms do not return again, It really helped me! If you have Dementia kindly contact Dr. Charanjit for help and necessary solution (charantova@gmail.com)

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