“Regarding people as having lives of equal worth means
recognizing each as having a common core of humanity. Without being open to
their humanity, it is impossible to provide good care to people…To see their
humanity, you must put yourself in their shoes. That requires a
willingness to ask people what it’s like in those shoes. It requires
curiosity about others and the world beyond…
We are in a dangerous moment because
every kind of curiosity is under attack…This is what happens when the abiding
emotions have become anger and fear. Underneath that anger and fear are often
legitimate feelings of being ignored and unheard—a sense, for many, that others
don’t care what it’s like in their shoes. So why offer curiosity to anyone
else?
Once we lose the desire to
understand—to be surprised, to listen and bear witness—we lose our humanity.
Among the most important capacities that you take with you today is your
curiosity. You must guard it, for curiosity
is the beginning of empathy. When others say that someone is evil or crazy,
or even a hero or an angel, they are usually trying to shut off curiosity.
Don’t let them. We are all capable of heroic and of evil things. No one and
nothing that you encounter in your life and career will be simply heroic or
evil. Virtue is a capacity. It can always be lost or gained. That potential is
why all of our lives are of equal worth…”
In this month’s National Resource Center for Engaging Older Adults webinar,
engAGED: Increasing Social Engagement
through Lifelong Learning, National Resource Center for Osher Lifelong
Learning Institutes (OLLI) presented OLLI members' top interest topics, in this order:
history, fine arts, current affairs, literature, religion and philosophy, and
health and wellness. With my insatiable
curiosity (like Albert Einstein, who said, “I have no special talent. I am only
passionately curious”), my idea of recreation is leisurely lifelong learning. As
I go about my existence as a lifelong learner-gerontologist, I am always
scouting for activity programming ideas to bring to older adults at their
residential community or scheduled outings.
Fine arts
Sixty Plus—OLLI at SFSU’s Theater Showcase previewed upcoming productions from local theater companies:
·
Golden Thread Productions: Founding Artistic
Director and SFSU alumna Torange Yaghiazarian introduced Melis Aker’s Field, Awakening with its main character
reuniting with friends from high school on the eve of the 2016 attempted
military coup in Turkey. Liked line,
“You get to do what you wake up for,” but trigger alert for lot of “f-ck” word
in script.
·
San Francisco Playhouse: Patron Services Manager Tiiu
Rebane sang title song from Stephen Sondheim’s Saturday in the Park with George and “Maybe this Time” from Cabaret.
She likened theater participation to an “empathy gym” to practice
compassion.
·
Bay Area Musicals: Founder and Artistic Director
Matthew McCoy discussed the role of theater to make us think, reflect and
feel. Juan Castro and Loreigna Sinclair
sang “In a Place of Miracles” and “God Help the Outcasts” from Disney’s Hunchback of Notre Dame, exploring
themes of disability, immigration, and discrimination.
(SFSU’s College of Extended Learning offers Elder College for people age 50+ who pay $55 per semester to sit in
any regular university course on a space available basis with instructor
approval. City College of San Francisco's Older Adults Program offers free, non-credit courses designed for people age 55+, which are open to all; its Free City Program recently received funding for two years to offer free summer courses.)
Outing to 42nd
Annual SF Free Folk Festival’s Jug Band Jam,
with Christopher Richard, Miller Wise and Wayne Hagen, inviting folks of all
ages to bring their own instruments to join in on jug-band classics, with
songbooks provided.
Director/Choreographer
Bruce Bierman and Musical Director Ellen Robinson brought along Stagebridge
participants to older adult communities for live performances of A Chorus Line.
In this adaptation of A Chorus Line, Stagebridge participants
audition by introducing themselves, sharing events that shaped their lives and
decisions to become dancers. Of the ten
in this ensemble, only one was male.
History/Literature
Laura Bock, author of Red Diaper Daughter: Three Generations of Rebels and Revolutionaries (2017), and friend Sally Goldin, at this
lively book reading/discussion party. As an only child, Laura wanted to pass on her family legacy by publishing her memoir
at age 70, sharing stories of her “red” grandparents who sought to overthrow
the Russian czar before immigrating to the U.S., her anarchist/communist parents
who were labor organizers, and her own life as “red diaper daughter” carrying
the tradition of activism (as she left for college, her parents advised her,
“Now, make sure you get arrested for something political, and not just for
drunkenness!”) through the 1960s civil rights and anti-war movements, 1970s
women’s liberation and disability rights, 1980s fat and LGBT liberation,
etc. A self-described "groupie," Laura has been a model for community building and interdependence—running a bed and breakfast
business in her family home; co-founding Fat Lip Readers Theater; joining/starting
support groups for fat women, coming-out, disabled lesbian, Jewish women’s
study, hard-of-hearing, old lesbian grief and loss, break-up, etc. Red Diaper Daughter is accessible via
Bookshare for people to read with eyes, ears or fingers.
Health
& wellness
Brain fitnessJune is Alzheimer’s and Brain Awareness Month, and Jewish Community Center of SF (JCCSF) hosted its 2nd Annual Brain Fitness Forum. Some highlights:
Serggio Lanata, MD, of UCSF presented Alzheimer’s
Disease Prevention: What’s the Evidence.
Caitlin Moore, PhD, founder of California Brain Health Center, presented Lifestyle
and Brain Aging: A Multimodal Approach for Optimal Brain Health.
·
Exercise:
anything better than nothing; recommend 30 minutes moderate intensity 5x/week
(can’t sing, but can comfortably talk, during activity)
·
Diet:
Mediterranean (fruits, green veg, healthy fats—nuts, seeds, avocado, dairy and
poultry once/week, wine in moderation), DASH (more grains, few times meat,
fewer fats); best diet is one can stick to, fit into lifestyle (drink greens
“quick way to choke down,” whole fruits as dessert, healthy fats like nuts and
olive oil, whole grains, limit sugar intake, stay hydrated throughout day)
·
Sleep:
6-8 hours, but more is not better; schedule bed time and wake time; no digital
screen 30 minutes before bedtime to give brain break from stimulation; if not
sleep within 20 minutes, do something mindless; address issues that interfere
with sleep—mood/worry, frequent bathroom breaks, pain (treat perception, avoid
“PM” meds)
·
Habits:
quit smoking; control heart risk factors
·
Hearing
loss: tied to memory loss, as part of brain responsible for hearing next to hippocampus (memory), tend to isolate due to
frustration in social situations; Medicare covers hearing evaluation; wear
hearing aids
·
Stay
engaged: participate in mentally and socially stimulating activities to
maintain cognitive reserve (amount of brain damage before show symptoms,
influenced by high education/IQ/complex occupation use brain), find activities
that bring passion involving emotion/spirit—don’t do crosswords if you hate to;
challenge real life—walk dog, memoir writing, gardening, volunteering, find
purpose; avoid loneliness by being proactive like organize outings
·
Compensatory
strategies for memory and attention: minimize distractions, organize/clear
clutter; buy pillbox to avoid risk of missing medication dose; use calendar to
immediately record appointments, prioritize and check off to-do list, store
frequently used items like eyeglasses and keys in memory table; keep positive
mindset; seek help from family, friends, therapist to treat anxiety and
depressed mood
·
Subjective
memory loss: talk to PCP about concerns;
early diagnosis is opportunity to treat symptoms with medication and lifestyle
modification, decide what to do with remaining years
·
Marijuana:
causes memory problems, especially avoid after age 60
JCCSF Lifelong Learning
Programs Manager Shiva Schulz introduced
Just Do It: Exercising Your Way to Brain Health presenters Larriana
Williams, CCC-SLP from ONR, Inc. and Christine Roppo Soares, LCSW from San Francisco Campus for Jewish Living.
·
Plasticity:
brain’s ability to change in response to experience continues throughout
lifespan, remap brain circuits especially after stroke (use non-dominant to
create new pathways)
·
Enriched
environments
·
Power
naps help consolidate new information
·
Focused
concentration most important, attention equivalent to endurance
·
Multi-tasking
is myth: tasks are done sequentially, not concurrently
·
Cognitive
reserve: challenge brain to learn new
·
Puzzles
and games may improve working memory, not improve brain function
·
Aerobic
activity increases blood flow, oxygenation, neural pathways
·
Just
do it: mindful movement (meditation, prayer), breathe, engage, relax, keep
healthy brain vision statement
Meet the Author Francine
Toder signing her book The Vintage Years (2013),
with husband Joe at her side, as she chats with psychologist Beth Krackov.
Game room featured tables
with Scrabble (70 years old!), Scattergories, Taboo, and jigsaw puzzle.
about how empathy works
in the brain with the potential to save the world because empathy allows us to
get along with one another. Empathy is when you imagine what it might feel
like to be in someone else’s shoes. UCSF
researcher Virginia Sturm, PhD, called empathy “the most important thing.” UCSF neuroscientist Bruce Miller, MD, discovered
that people with frontotemporal dementia (FTD) lose their empathy, so they are
often alone and isolated. When empathy
circuit is broken, we connect less especially with people outside our group;
due to divisions, we cannot work to solve problems. In contrast, people who care about and
connect to others can unite humanity.
Our empathy circuits can be strengthened—take a deep breath, imagine why
and how the other person is feeling …
Forum concluded with a
screening of the 95-minute documentary, In Search of Memory: The Neuroscientist Eric Kandel (2009). Austrian-born American
neuroscientist Kandel’s trauma as an Austrian Jew who fled from the Nazis at age
nine contributed to his curiosity about the contradictions of human behavior
and research that won the 2000 Nobel Prize in Medicine for discovering the
central role of synapses in memory and learning.
The film also showed Passover Seder with his family discussing Nobel Prize-winning physicist Isidore Isaac Rabi: when asked why he became a scientist, he replied, “My mother made me a scientist without ever knowing it. Every other child would come back from school and be asked, ‘What did you learn today?’ But my mother used to say, ‘Izzy, did you ask a good question today?’ That made the difference. Asking good questions made me into a scientist.”
Shout out to the many awesome experts who meet older adults where they are (in their residential communities) to engage in the lively exchange of ideas and information to promote health and well-being.
Serggio Lanata, MD, of UCSF Memory and Aging Center, presented on Brain Health, including ways to reduce risk of Alzheimer’s disease and related dementias:
Hearing
Jessie Johnson, Clinical
Practice Manager from Hearing and Speech Center, presented on Cognition and Hearing: Hearing loss, if
untreated, puts people at risk for dementia and social
isolation. Hearing aids and aural
rehabilitation are evidence-based treatment options for improving hearing
(sense) and listening (skill).
The film also showed Passover Seder with his family discussing Nobel Prize-winning physicist Isidore Isaac Rabi: when asked why he became a scientist, he replied, “My mother made me a scientist without ever knowing it. Every other child would come back from school and be asked, ‘What did you learn today?’ But my mother used to say, ‘Izzy, did you ask a good question today?’ That made the difference. Asking good questions made me into a scientist.”
Shout out to the many awesome experts who meet older adults where they are (in their residential communities) to engage in the lively exchange of ideas and information to promote health and well-being.
Serggio Lanata, MD, of UCSF Memory and Aging Center, presented on Brain Health, including ways to reduce risk of Alzheimer’s disease and related dementias:
· Modifiable medical factors: hypertension, hyperlipidemia, type 2 diabetes, smoking, untreated depression.
· Modifiable lifestyle factors: cognitive stimulation (diversify mental activities by exposure to new/different stimuli; engage different regions of brain—e.g., occipital lobe in back of brain processes visual information, so engage it by looking at things that are stimulating like art; temporal lobes at ear level associated with memory and hearing interpretation, so music stimulates emotion and better if you can play instrument or sing); physical activity (older adults who maintain physically active lifestyles reduce their risk of serious illness by up to 50%, compared to sedentary older adults; chart shows muscle mass and strength peak at age 30, and how an active person can minimize muscle loss and remain above disability threshold into old age); nutrition (check vitamin B12 and D levels); social engagement (lessen loneliness by connecting with other people, empathy helps); and adequate sleep.
Dr. Lanata gave way more than the usual 15-minute doctor visit, ably answering questions based on his training in biological sciences, food science and nutrition, physiology, complementary and alternative medicine, and neurology.Hearing
Jessie also presented on
Assistive Listening Devices and Hearing
Related Apps (tinnitus, sound level meter, aural rehab, communication).
California Phones Outreach
Specialist Casey Kho, MSW, presented demonstration of specialized phones to
make it easier to hear, dial and call.
These phones, as well as cellphone amplifiers, are available at no cost
through California Telephone Access Program, to California residents who have
difficulty using a standard telephone.
End-of-life
(EOL) starring medical doctors
Is the brain, which stores memory, overrated? According to Dr. Kandel, “Memory is everything. Without it we are nothing.” A related view
holds that “brain death means really dead” because without brain function, the body
eventually shuts down unless there is medical intervention.
This month I attended two short Netflix documentary screenings about EOL care
focused on palliative care doctors in San Francisco Bay Area, and attended a
presentation on advance care planning by a local patient advocate MD.
JFCS’ Seniors At Home's Palliative Care Program hosted a screening of Extremis
(2016), the Oscar and Emmy-nominated short (24 minutes) documentary about end-of-life
decision making in an intensive care unit (ICU) at Highland Hospital in Oakland. Extremis
features Jessica Zitter, MD, MPH, who practices ICU and palliative care medicine,
treating patients with no hope of getting better. She told us that she got into medicine wanting
to save lives, her medical training taught her to see patients as a collection of
organs like fixing broken machines, and hospital hierarchy was like the
military lacking reflection and humanism.
As a result, the default is to prolong life, without considering quality
of that life. She discussed need to change this culture, after she learned to
be reflective, collaborative and supportive from a nurse, chaplain and social
worker in the palliative care consult team.
She said humility and courage is needed to say what will happen to
patients and families, providing realistic information including breaking bad
news compassionately and discussing option to “pass naturally” when medicine
has no cure. Dr. Zitter is also author
of Extreme
Measures: Finding a Better Path to the End of Life (2017).
Ungerleider
Palliative Care Lecture Series at California Pacific Medical Center (CPMC) hosted
a screening of End Game
(2018), a short (40 minutes) documentary film starring UCSF palliative care doctors, Steven Pantilat, MD, and BJ Miller, MD (also former Executive Director of Zen Hospice Project’s six-bed
Guest House, which recently closed). My
favorite soundbites:
“It’s healthy
people who think about how they want to die, and sick people who think about
how they want to live.” – Dr. Pantilat
“There is nothing inherently medical about dying. It’s much larger than medicine. It’s purely human.”—Dr. Miller
“There is nothing inherently medical about dying. It’s much larger than medicine. It’s purely human.”—Dr. Miller
This screening was followed by a CPMC bioethicist moderating a panel
discussion with Dr. Pantilat (Founding Director of UCSF Palliative Care), Bridget
Sumser (UCSF palliative care clinical social worker), and Shoshana Ungerleider, MD (CPMC hospice and palliative care physician who also produced End Game and funded Extremis). As Dr. Zitter discovered, there is more to medicine than performing procedures to
prolong life; palliative care is the art and science of healing that integrates
the medical and social models of care, so honest conversations can take place enabling
patients (or their proxies) to make informed decisions about their EOL care. (Check out, “Is hospice on your bucket list?”
by Kimberly Baumgarten, RN, FCN.)
In a nutshell, know what matters in
your life and communicate with your loved ones and doctor.
At North Beach Library, NEXT Village SF hosted a presentation
on Patient Advocacy, Difficult Medical
Decisions, Advance Care Planning with Jennifer Brokaw, MD.
Dr. Brokaw worked with NEXT Village co-founder Jonee Levy during her 1-1/2
year struggle with stage 4 lung cancer through Jonee’s death in her home in
February.
During nearly 15 years
of practicing emergency medicine, Dr. Brokaw noticed patients were older and
sicker yet she was asked to “do everything” because patients did not understand
the course of their disease. With Lael Duncan, MD (now Medical Director at Coalition for Compassionate Care), Dr. Brokaw started Good Medicine Consult
& Advocacy Services in 2008--“5-1/2 years ahead of time,” before Medicare
created billing code for EOL discussions.
Dr. Brokaw led an exercise to create our own advance care
plan on 3” x 5” index card.
Side 1:
·
Appoint health care agent (HCA) who
knows you, are in touch frequently with open line of communication, knows and
honors your values and beliefs, ideal if live nearby, and comfortable in
medical setting to ask difficult questions.
·
Goals: address how you want to be
until you die
·
Values: priorities
·
Beliefs: spiritual statement that
give survivors comfort
Side 2
·
Finances: assets to pay for LTC
·
Fears: what experience that you do
not want to repeat
·
Funeral: memorial, donate body to
UCSF
Next steps: You and
2 witnesses sign card. Call HCA to talk
about your wishes. Notify Primary Care
Physician: Medicare/Medicaid will pay for advance health care discussions ($170
for 1st discussion, $80 for 2nd discussion with HCA)
Other documents:
· POLST/MOLST: medical orders that specify interventions,
signed by MD; seek national registry
· Living will: not medical order,
but expresses preferences for EOL care; co-opted by attorneys, not practical,
few are actionable, “doctors get hives from attorneys”
Why the relatively low interest in health and wellness?
In my experience, it has been easier to promote health education programs
among healthy older adults in independent living than frail, older adults in
assisted living where staff take control over many of their activities of daily
living (preparing meals, managing medications, bathing, etc.). When assisted living residents tell me they’ve
had enough health education from doctors’ visits (and one centenarian resident walked
out half-way through Extremis
documentary, complaining that it was repetitive), I have to examine programming
to ensure it’s not presenting just the medical model (defining aging like a
host of diseases to be cured), but also addressing the bigger picture of non-medical
needs that matter for a meaningful life such as purpose, truth, beauty, empathy, creativity, generativity, etc.--long live the humanities in lifelong learning!
Jahi McMath and the ongoing legal battle around brain death
ReplyDeleteBy Christopher B. Dolan on July 5, 2018
…new legal issues stemming from Jahi having been pronounced dead in California on Dec.13, 2013 and again on June 22, 2018 in New Jersey.
…Because of Jahi’s severe blood loss and heart attack, she was deprived of oxygen to her brain and suffered a catastrophic anoxic brain injury, which led to swelling of her brain. The doctors at Children’s Hospital told Nailah that Jahi had irreversible brain damage. Nailah was immediately hounded by nurses trying to get her to sign a release so that Jahi’s organs could be harvested for transplant…
On Dec. 12, 2013, Jahi was declared brain dead. Under California law, brain death occurs when there is a total and irreversible cessation of all neurological activity, including the brain stem. Nailah refused requests to remove her daughter from life support…
I agreed to write a cease and desist letter demanding the hospital stop their plans to kill Jahi…
We succeeded in establishing, for the first time, that, contrary to the doctor’s position, parents do have a say in the end of their child’s life following a brain death diagnosis... A brain death exam was done by court-ordered expert Dr. Paul Fischer…Jahi, in her weakened state was ruled brain dead. Jahi’s execution date was set only to be suspended at the last minute by a continued injunction based on the filing of an appeal of the brain death ruling from the Alameda County Superior Court.
Finally, a deal was brokered in late December to remove Jahi from the hospital. The hospital demanded the coroner take the body, so a disposition permit allowing Nailah to take Jahi’s being was required. A death certificate was required to obtain the disposition permit. Despite the acting public health officer’s initial refusal to issue a death certificate as Jahi was still on life support, we pressed forward and, under protest, obtained a death certificate.
…Jahi received intensive intervention in New Jersey and was ultimately discharged to a home environment where she lived…for more than four years.
…Dr. Alan Shewmon, published a peer-reviewed article in the Journal of Child Neurology titled “False-Positive Diagnosis of Brian Death,” which concluded Jahi was not brain dead in 2018, although in 2013 she may have appeared to have been based on testing.
…Dr. Calixto Machado, a neurologist seen as one of the premier international brain death experts, which said that electroencephalographic testing showed Jahi had brain wave activity, and MRIs of the brain showed that while severely damaged, her brain was intact. In a case of total brain death, the brain liquifies and is absorbed into the body. This did not happen in Jahi’s case.
...In a medical negligence case, judges repeatedly ruled that the facts created a triable issue of fact that Jahi was alive… Sadly, as that case was being prepared, Jahi died.
…An international debate is ongoing in the medical and scientific communities about whether brain death can be determined using antiquated testing while a patient is suffering from acute trauma…
There are forces that desperately want to defend the brain death diagnosis: health insurance companies, who do not want to pay for treatment, the multimillion dollar transplant industry (which does save lives), and doctors who think they know the best uses of medical resources.
This is a debate which needs to be done out in the open as we age and our medical resources will be taxed. Doctors should not be able to use the brain-death diagnosis to do what they think is best. This strips the rights of the patients and families. What’s next, abort children with severe birth defects who are destined to die after absorbing tremendous medical resources? Terminate the elderly suffering from severe brain damage from Alzheimer’s because they are so damaged they cannot care for themselves, know what is happening, who they are, or otherwise have a “meaningful existence” or “quality of life”?
http://www.sfexaminer.com/jahi-mcmath-ongoing-legal-battle-around-brain-death/
Find your passion? That's bad advice, scientists say.
ReplyDeleteTara Bahrampour, The Washington Post
Tuesday, July 24, 2018
"Find your passion" is a mantra dictated to everyone from college students to retirees to pretty much anyone seeking happiness.
But according to a forthcoming study from Stanford and Yale-NUS College in Singapore, it's actually bad advice - and may actually make it harder for people to figure out what they love to do.
Why? The idea of "finding" one's passion implies that people have built-in interests just waiting to be discovered, and if you can simply figure out what they are you will magically be able to embrace them, says the study, which will be published in the journal Psychological Science.
But people with that mind-set are more likely to give up on their newfound interest when they hit the inevitable roadblock, the study found. Instead, researchers say true passion develops - through being open-minded about delving into a new topic, and being willing to put some work into it.
Earlier studies had focused on people who had "fixed" versus "growth" mind-sets about intelligence - that is, whether one believes intelligence is fixed (you either have it or you don't) or it can be cultivated. In this study, researchers looked at the differences between people who believe interests are static and those who believe they can be developed with time and effort.
They conducted five experiments involving 470 participants. In one, they recruited undergraduate students who identified either as "fuzzy" (interested in the arts and humanities) or "techie" (interested in STEM topics). They had the students read two articles, one about technology and the other about literary criticism - and found that those who held a fixed mind-set about interests were less open to the article that was outside their interest area.
In another experiment, students were shown a video about black holes and the origin of the universe, which most found fascinating. But when asked to read a denser scientific article on the same topic, the students with a fixed mind-set lost interest more quickly than the ones who believed interests can be cultivated.
The study used undergraduates because "they're young and they're at a time in their life when they're being bombarded with the idea that you have to go out and find your passion," said Paul O'Keefe, assistant professor of psychology at Yale-NUS College and the paper's lead author…
Stanford psychologist Carol Dweck, a co-author of the study (and a pioneer in earlier research on fixed versus growth theories of intelligence), said her undergraduates "at first, get all starry-eyed about the idea of finding their passion, but over time they get far more excited about developing their passion and seeing it through."
If finding a calling through developing yourself sounds too vague, here's a more concrete incentive: Developing a range of interests can also boost your grades and predict future success.
That's because focusing too narrowly on one kind of interest can cause people to miss developing knowledge in other areas that could help them succeed in their field, O'Keefe said.
Students with a growth mind-set "engage in their coursework more deeply and more enthusiastically, resulting in better learning," he said. "And if [they] are more open to things outside of their previous interests, then they might be seeing more connections between what they're learning and what the other things are."
In a world that is becoming more interdisciplinary, the future will belong to those who cultivate passions in a variety of areas, such as science and the humanities, O'Keefe said.
"That's what Steve Jobs was all about - he didn't just make a computer; he made a computer that was a piece of art."
hpps://www.sfgate.com/news/article/Find-your-passion-That-s-bad-advice-scientists-13100194.php
San Francisco’s Zen Hospice Guest House closes as donations drop
ReplyDeleteMichael Cabanatuan Aug. 6, 2018
After nearly three decades of helping seriously ill people live out their final days with dignity, the Zen Hospice Project’s guesthouse may be nearing its own demise.
The project closed the internationally known guesthouse, at least temporarily, at the end of June while it holds out hope for a deep-pocketed donor — as well as reform in the health insurance industry — to help pay the bills of the beautiful Page Street Victorian, where as many as 100 people a year receive care.
“We would rather say suspended than closed,” said George Kellar, executive director of the project.
While the guest house has no current guests, Zen Hospice Project continues to operate two other programs: one that provides volunteer caregivers 13 hours a day, seven days a week at the palliative care unit at San Francisco’s Laguna Honda Hospital and a course that trains family, volunteer and professional caregivers in how to take care their patients — and themselves.
Both programs are supported entirely by donations.
But donations have declined over the past 18 months and are no longer enough to support those programs plus the guesthouse, Kellar said. The loss of an arrangement with a local hospital to reserve beds and cover costs also hurt.
Some donors, Kellar said, have instead been steering their money toward social justice causes since President Trump took office, such as immigrant legal services, voter outreach and electing more women to office.
Kellar, who declined to provide figures, called the decrease in donations “substantial.”
The guesthouse opened in Hayes Valley in 1990 during the AIDS crisis, and it aimed to provide care to those who were sick and dying when many people were afraid to help. The facility was remodeled in 2010 and reopened as a six-bed home that provides care, and especially compassion, to people at the end of their lives.
“The model of care here is very unique,” Kellar said. “It focuses on the social, emotional, spiritual and comfort needs of our caregiver families and the people they’re caring for.”
The guesthouse acted as more than a nursing facility, though it did have round-the-clock care with a nearly 1-to-1 ratio of staff to residents.
What made the place truly special, though, was its traditions, like the flower petal ceremony, where family, staff and residents would gather on the deck and sprinkle flower petals over a deceased resident on a gurney before the person departed the house one final time.
And there were other special touches: the smell of cookies baked fresh daily, the meals prepared specially for each resident, the art and music programs, the comfortable great room and relaxing deck…
“We really pay attention to the details here,” Kellar said.
Zen Hospice Project has become known around the world as a model for taking care of people in their dying days. While medical care, and especially pain management, remains important, the emphasis has been helping residents fully enjoy life.
“There is a point at which curing ends and caring takes over,” said Cassie Field, director of guesthouse caregiving services.
…visitors from around the world come for tours, often during layovers at San Francisco International Airport.
But fame doesn’t pay the bills, which come to about $850 per resident per day. Fees are charged on a sliding scale, and nobody is turned away for inability to pay, Kellar said.
A corporate donor willing to commit about $2 million a year for two or more years, he added, would allow Zen Hospice to repopulate the guesthouse while trying to persuade at least one health insurance company to cover the costs of a resident’s stay…
https://www.sfchronicle.com/bayarea/article/Demise-of-Zen-Hospice-Project-looms-as-donations-13136143.php
Retirees to Embrace Campus Life
ReplyDeleteA sold-out housing complex for senior citizens on Arizona State University’s Tempe campus sparks a conversation about whether universities are doing enough to engage with older people.
By Lindsay McKenzie
January 9, 2019
New housing under construction at Arizona State University isn't slated to be completed until 2020, but the university president has nonetheless dubbed it "the world's coolest dorm," and future residents have already secured their spots.
…they’ll be people in their 60s, 70s and up. The housing complex on the university’s Tempe campus will be a retirement community with a twist -- the residents will be able to take classes, make use of campus facilities such as the library with university-issued ID cards and immerse themselves in university life as much, or as little, as they like. They'll also be encouraged to mentor and build relationships with younger students.
“There’s no reason everyone can’t be a college student and engaged in what this community has to offer for the entirety of their lives,” ASU president Michael Crow said at a groundbreaking ceremony for the complex, called ASU Mirabella, in February 2018.
…Crow said he wants to reconceptualize "lifelong learning," a popular talking point among university leaders who promote the important role of higher education in helping adults prepare for new career opportunities. … many retirees do want to keep learning and feel engaged …fully integrated…
ASU is part of a growing trend of privately owned retirement communities being built on or near college campuses.
…some of these retirement communities may lease or buy college-owned land, such as Kendal at Oberlin, which has close ties to Oberlin College in northern Ohio, and Vi at Palo Alto near Stanford University, very few are actually situated on a campus, she said. Some communities, such as Oak Hammock at the University of Florida or University Commons at the University of Michigan, have deep connections to the universities and were even founded by former faculty. But neither community is directly managed by the universities.
Lasell College, a private institution in Auburndale, Mass., shares a 13-acre site with a retirement community called Lasell Village. To be a resident at Lasell Village, residents must commit to taking at least 450 hours of learning and fitness classes each year, including attending lectures with regular students pursuing degrees.
…older learners have a great interest in staying active, intergenerational opportunities and lifelong learning…promote “age as a function of diversity.”
…According to the National Center for Education Statistics, just 0.3 percent of students pursuing a degree are aged 65 and over. And education programs targeting those aged 55 and older rarely generate significant long-term revenues, according to Jim Fong, founding director of the University Professional and Continuing Education Association’s Center for Research and Strategy.
…As Americans' life spans increase and people stay healthier longer, universities need to adapt, said Branon, who described the challenges and opportunities of the “60-year curriculum” -- a concept coined by Gary Matkin, dean of the Division of Continuing Education at the University of California, Irvine, which describes a continuous learning program from high school to retirement -- in an op-ed column he wrote for Inside Higher Ed in November.
…specific needs of older learners -- an area of pedagogy known as gerogogy. Classes "need to be in a location that is accessible and flexible," he said. Older learners also often have a lot of experience and want that to be acknowledged. "They want a learning environment that builds upon their experience," he said.
…retired people looking for meaning and purpose and engagement…interested in areas they feel were neglected in their education
https://www.insidehighered.com/news/2019/01/09/high-demand-retirees-live-campus-arizona-state-university
British Doctors May Soon Prescribe Art, Music, Dance, Singing Lessons
ReplyDeleteCampaign is expected to launch across the entire U.K. by 2023
By Meilan Solly
November 8, 2018
In ambitious initiative unveiled this week by British Health Secretary Matt Hancock may soon enable the country’s doctors to prescribe therapeutic art- or hobby-based treatments for ailments ranging from dementia to psychosis, lung conditions and mental health issues. Writing for the Times, Kat Lay explains that this unconventional strategy, described by the U.K. government as “social prescribing,” could find patients enrolled in dance classes and singing lessons, or perhaps enjoying a personalized music playlist.
“We’ve been fostering a culture that’s popping pills and Prozac, when what we should be doing is more prevention and perspiration,” Hancock said in a Tuesday speech at the King’s Fund health care think tank. “Social prescribing can help us combat over-medicalising people.”
According to the Telegraph’s Laura Donnelly, the proposal, which arrives on the heels of a larger preventative health scheme, provides for the creation of a National Academy for Social Prescribing that will ensure general practitioners, or GPs, across the country are equipped to guide patients to an array of hobbies, sports and arts groups.
The medical benefits of engaging with the arts are well-recorded: As Lay notes, a collaboration between the Royal Philharmonic Orchestra and stroke survivors living in Hull, England, encouraged patients to play instruments, conduct and perform; 90 percent of these participants reported improvements in their physical and mental health. In Lambeth, dance lessons have been shown to improve concentration and communication skills amongst those displaying early signs of psychosis, and in Gloucestershire, hospitals have begun to refer individuals with lung conditions to singing sessions.
A similar campaign launched in Canada earlier this month…every member of the Montreal-based medical association Médecins francophones du Canada (MdFC) gained the option of handing out 50 prescriptions allowing patients…to tour Quebec’s Montreal Museum of Fine Arts for free. Normally, admission costs up to $23 Canadian dollars (roughly $18 USD). As MdFC vice president Hélène Boyer tells Kelly, the initiative builds on research suggesting museum visits raise serotonin levels to offer a quick mood-boost.
Compared to the Canadian project, the U.K. one is simultaneously more comprehensive and less fleshed-out.... British campaign will encompass multiple walks of life, from social activities such as cooking classes, playing bingo and gardening to more culturally focused ventures, including library visits and concerts.
But a key issue the proposal does not fully address is a sustained funding model to support local services, Paul Farmer, chief executive of the mental health charity Mind, points out to BBC News. Mark Rowland, chief executive of the Mental Health Foundation, adds that that accessibility is another obstacle. “Our concern is that social prescribing options including music, arts and volunteering aren't being accessed by the poorest in our community,” he says. “If we're going to make the biggest difference to prevention and recovery the government needs to show how it will reach those most at risk."
Social prescribing is intended to complement rather than replace more traditional forms of treatment…
projected to be employed across the U.K. by 2023, according to the government’s recent outline of its “loneliness strategy.”
…“We should value the arts because they’re essential to our health and wellbeing,” Hancock said…“Access to the arts improves people’s mental and physical health. It makes us happier and healthier.”
https://www.smithsonianmag.com/smart-news/british-doctors-may-soon-prescribe-art-music-dance-singing-lessons-180970750
Is Curiosity the Real Key to a Fulfilling Life?
ReplyDeleteIt very well could be
by Carol Weis, AARP, May 22, 2019
…For as long as I can remember, I've been curious about everything. I was always on some adventure and spent endless hours exploring the woods across the street or the field adjacent to our house. A tree with good climbing branches led to a vista I had yet to explore. A small path, to a stream I hadn't discovered.
I attribute my lifelong curiosity to my dad. He was a nature lover and would take us on Sunday hikes, pointing out plants we'd look up in our little wildflower book when we got home, curious to know everything about the flora we just saw. Because of him, when there's a side road that looks interesting, I'll take it. A beach at low tide produces endless curiosity about what treasures lay waiting. The sound of a bird squawking in a tree pulls my eyes in its direction to see which particular feathered creature is making that noise.
Many of us think being happy is what we want most in life. Both of my parents drilled that notion into me by repeating it over and over, “I just want you to be happy.” But psychologist Todd Kashdan, who literally wrote the book on curiosity (Curious? Discover the Missing Ingredient to a Fulfilling Life), believes it's the “central ingredient to creating a fulfilling life.” He says, “That's because curiosity — a state of active interest or genuinely wanting to know more about something — creates an openness to unfamiliar experiences, laying the groundwork for greater opportunities to experience discovery, joy and delight."
Have you ever watched the snow fall and took the time to really look at the intricacies of the flakes as they drift to the ground? Or tasted something at a party you especially liked and made a point of finding out what went into that yummy dish? Or maybe you've wondered as you're wiping off a neglected table, where exactly does all that dust come from?
A study done by a group of psychologists in the U.K. with two age groups, younger adults (ages 18-26) and older adults (ages 65-89) found that learning facts we are curious about makes us more likely to remember them. The study concluded that older adults especially benefited from the memory-enhancing effects of curiosity. The journal Psychology and Aging conducted a study of over 1,000 adults between the ages of 60 and 86. Those who were observed and rated as being more curious at the beginning of the study, were more likely to be alive at its conclusion.
For me, my curious nature led to a healing of sorts between my ex-husband and myself.
On the day of our divorce, after leaving the courthouse, curiosity led me to look into his car, parked near a pub we frequented when we were married. Curiosity also led me to peek in the pub where he sat forlornly, then pulled me in to see how he was doing, where a simple hug seemed to heal the years of angst we'd been through leading to that day.
An unexpected blessing during a challenging time.
So, embrace your curiosity. Let it lead to where it wants to take you. You never know what the outcome might be. And most likely, it will pleasantly surprise you and bring you a moment of happiness you didn't even know you needed at the time. Because, in the end, being curious is a force that drives us to learn or feel new things, a gift that follows us through our lives, recreating the joy we had as children.
That is, if we let it.
https://www.aarp.org/disrupt-aging/stories/info-2019/key-to-fulfillment.html
SIX KEYS TO A BETTER DEATH
ReplyDeleteJessica Nutik Zitter's book, Extreme Measures, includes an appendix to help readers think through and plan for what type of end-of-life care they would like to receive. Here are six key takeaways:
1 Determine your health status: Are you young and healthy, older and healthy, chronically ill, grappling with a serious diagnosis or near death? Your status might change your end-of-life care preferences.
2 Know your trajectory: Understanding the way your condition or disease typically progresses can help you think through the type of care you may need in the future.
3 Talk to your doctor: "You might need to directly ask for the truth for your doctor to give it to you," Zitter wrote. Having a full and clear picture of your diagnosis, such as what you can expect if you do—or don't—pursue possible treatments, is key to decision-making.
4 Explore your priorities: Identifying what quality of life matters to you—maintaining independence, being pain free, being alert, holding on to every second, regardless of your condition—will help you zero in on how you want to be treated at the end.
5 Decide if you want to plug in: If a range of options exists, with one end being "keep me alive at all costs" and the other being "keep me comfortable and allow me to die naturally," what's your preference?
6 Speak up: Communicate your wishes to your family and physician, but also consider creating an advance directive, a do-not-resuscitate order or a physician order for life-sustaining treatment, known as a POLST.
https://case.edu/think/spring2019/better-death.html
Assemblyman urges City College of San Francisco to save classes for older adults
ReplyDeleteNanette Asimov Dec. 13, 2019
City College of San Francisco should find a way to rescue classes on which thousands of older adults depend for their well-being, rather than to abruptly end the decades-old program, Assemblyman Phil Ting wrote in a scathing letter to Chancellor Mark Rocha.
“I urge City College to ... collaborate with other state and local agencies to continue offering these vital noncredit programs as it seeks cuts,” Ting, D-San Francisco, wrote on Wednesday. “This process should have begun years ago.”
Rocha announced in November that he was ending the Older Adults program that for years has served more than 2,000 people, many in their 70s and 80s, with free, noncredit classes: exercise, computer skills, music, drawing, theater, literature, memoir-writing and more. Held in senior centers, hospitals and at the college, the 50 noncredit classes cost less than $1 million to administer.
But the cuts are part of a massive reduction in classes at City College since Rocha’s arrival in 2017 — 634 credit and noncredit classes, or 20% of all offerings. Although City College has been in a financial crisis for nearly a decade, the state has helped keep it afloat for years, pouring an average of $39 million a year into the college between 2013 and 2017, as the college struggled to retain its accreditation and retain fleeing students.
The extra money ended as Rocha arrived and, unlike his predecessors, he has been willing to deeply cut classes and jobs to match revenue, infuriating students and faculty. Since last spring, he has identified budget deficits totaling $45 million. In a major misstep last summer, Rocha tried unsuccessfully to double executive pay, then settled on 10% raises for most administrators. Last month, he announced the elimination of 281 credit classes and 64 noncredit classes — including the Older Adults program — for next semester.
…Ting’s letter …highlighted a tension at community colleges across California as the state begins to wean them from all-inclusive “community” colleges that cater to anyone who wishes to take classes for pleasure. Instead, in 2021, the state will begin using its funding power to force colleges to prioritize graduations, transfers, certifications, and moving through college as rapidly as possible.
City College has been a hub of resistance for years, and blaming the state for City College’s money woes has become a common refrain across San Francisco, particularly around the college and at City Hall.
…Ting’s letter specifically admonishes Rocha not to fault the state for its problems.
“City College has an expense problem, not a revenue problem,” Ting wrote, reminding the chancellor — complete with a chart — how the state kept City College afloat during its accreditation crisis, provided additional millions in “enrollment incentives,” and delayed the new funding formula for years to give City College and others more time to adjust.
Yet it’s not clear that Rocha has ever blamed the state. He is the college’s first chancellor to zealously comply with the new priorities. He recently defended his class cuts in a letter to Mayor London Breed and pointed to California’s forthcoming “Student Centered Funding Formula” as the reason. The new approach begins in 2021, when 30% of state allocations to college will reward improvements in the new priorities rather than enrollment alone.
…The Older Adults program, meanwhile, despite its cost of $10,000 to $15,000 a class — roughly $750,000 a year — currently appears to have no advocate, caught between City College’s waning budget and California’s narrowing priorities.
https://www.sfchronicle.com/education/article/State-lawmaker-slams-CCSF-for-allowing-Older-14906172.php
SCENE STEALERS
ReplyDeleteLights. Camera. Senior Center?
Matthew Hoffman has become a beloved young acting coach to the retirement set. Problem is, he’s starting to get other work.
By Brooks Barnes
Dec. 22, 2019
CULVER CITY, Calif. — …Matthew Hoffman’s basic story is as old as Hollywood itself. After studying theater at the Boston Conservatory, part of Berklee College of Music, he packed a suitcase and moved to Los Angeles in 2006, determined to become a star. He got a roommate and a restaurant job and started to audition.
But then life took an unexpected turn.
Mr. Hoffman, now in his late 30s (and fussy about it because of ageism in Hollywood), has become a celebrity, if not quite the kind he had envisioned. A few years ago he started to volunteer at the senior center as a type of acting coach. He helps people in their 70s, 80s and 90s perform scenes from films like “Casablanca,” “Brokeback Mountain” and “The Wizard of Oz,” even providing wigs and costumes for special videotaped performances, which they toast with champagne flutes filled with vanilla Ensure.
The classes, known as Tuesdays With Matthew and held once a week for an hour or so, have made him an essential part of the senior community in “the heart of screenland,” as Culver City calls itself.
Nick Pietroforte, 90, a retired musician, told me that Mr. Hoffman’s sessions and blindingly bright personality “make me forget my pain.” Mr. Hoffman is greeted like royalty when he walks into the senior center: hugs, cheers, giggles.
“He makes me feel seen,” said Fran Friday, 81, a former kindergarten teacher. “Just for a little bit, I am someone.”
‘Authentic Lives’
Mr. Hoffman has also received a lot from his “scene-iors,” as he calls them, and he may start to cry if you press him about it. His showboating is a bit of a facade, a way to mask a tender heart.
“This town can be very, very, very lonely, and when things have not been going well in my life, these people have always been there for me,” he said. “They also live authentic lives. They don’t care what anyone thinks. Do. Not. Care. That gives me the courage to be my high-haired, theater-loving self.” (Which has not always been easy!)
…“If he ever left, I’d have a disaster on my hands,” Jill S. Thomsen, the recreation and community services coordinator at the center, told me one afternoon in November.
I don’t think she was exaggerating. Mr. Hoffman has long been more than a volunteer acting coach to the seniors who cycle through Ms. Thomsen’s hallways. He doubles as a friend and confidant — and a surrogate son, perhaps — helping them cope with the daily indignities of growing older. He listens to their stories and treats them like contemporaries.
“I was sick recently and missed a few weeks, and Matthew called me to check on me,” Mr. Turek said. “It made me feel like I was important enough for someone to worry about.”
…“It sounds lofty and weird, but Tuesdays has transformed me as a human being,” he said. “I discovered who I am.”
…Mr. Hoffman hit it off with some of the people he encountered at the center, and they invited him back. His visits evolved into Tuesdays With Matthew, moving locations (and days) after one participant, Mr. Pietroforte, discovered the livelier Culver City Senior Center.
After Mr. Hoffman started posting videos of special performances on YouTube as a way to raise money for Meals on Wheels, the directors of senior centers in other cities contacted him: Would he come do one of his costumes-and-props sessions there?
Last year, he agreed, traveling within California to a center in Bakersfield and one near Fresno. He found a sponsor for the Fresno trip, raising $5,166 for Meals on Wheels…
https://www.nytimes.com/2019/12/22/style/senior-center.html