Showing posts with label long-term care. Show all posts
Showing posts with label long-term care. Show all posts

Sunday, October 31, 2021

Collaboration


At Contemporary Jewish Museum’s Experience Leonard Cohen (1934-2016) exhibit, 18 men in their 60s and 70s sing from tracks of I’m Your Man – each recording in their own life-size monitor (modeling physical distancing during this pandemic!), and their synchronized voices form a cappella choir. 

Well, my friends are gone and my hair is grey

I ache in the places where I used to play

And I'm crazy for love but I'm not comin' on

I'm just payin' my rent every day in the Tower of Song…

I was born like this, I had no choice

I was born with the gift of a golden voice…

--Leonard Cohen, “Tower of Song” from I’m Your Man (1988)  

Like a choir, gerontology involves collaboration of many voices for a holistic approach to optimal aging. 

Gerontology is multidisciplinary in that it combines or integrates several separate areas of study… fosters collaboration between physicians, nurses, biologists, behavioral and social scientists, psychologists, social workers, economists, policy experts, those who study the humanities and the arts, and many other scholars and researchers in aging. Geriatrics, the branch of medical science concerned with the prevention and treatment of diseases in older people, is a part of the broader field of gerontology.

Gerontologists improve the quality of life and promote the well-being of people as they age through research, education, practice, and the application of interdisciplinary knowledge of the aging process and aging populations.

--"What is gerontology?” Gerontological Society of America 

Given the dominance of the deficit-focused biomedical paradigm that views aging as a disease for allopathic treatment, collaboration with other disciplines (shout out to lawyers and occupational therapists!) allows for a more subjective approach that includes voices of older adults based on their contextualized lived experiences, strengths and what’s meaningful for them.

California Alliance for Retired Americans (CARA) hosted its 18th annual convention via Zoom. During online registration, participants selected just one of six workshop offerings (LTSS, Health Care, Affordable Housing, Climate Justice, Social Security, Nursing Home Reform), but technical difficulties with Zoom breakout rooms provided alternative opportunity to listen to all six workshop presentations with abbreviated Q&A. This workaround suited me because I wanted to learn from all six workshop presenters!

Long-Term Support & Services (LTSS)

Ramon Castellblanch, SFSU Professor Emeritus of Health Education (and a reader of my gerontology master’s thesis 😊), introduced LTSS for All! Lindsay Imai Hong, California Director of Hand in Hand Domestic Employers Network, said one in two Americans will need LTSS (broadly defined as assistance with activities of daily living, home modifications, durable medical equipment, etc.) in their lifetime. Existing public programs for financing LTSS are Medi-Cal In-Home Supportive Services (IHSS), Regional Centers for people with developmental disabilities, Veterans Affairs Aid & Attendance. Everyone else pays out of pocket, or relies on unpaid caregiving from family/friends/neighbors/charities.  

Amanda Ream, Research Director at United Domestic Workers, representing 80,000 IHSS workers in California, presented The Care Agenda solution for universal LTSS! 

Pres. Biden’s Build Back Better agenda includes “the most transformative investment in access to home care in 40 years, when these services were first authorized by Medicaid,” $150 billion (reduced from $400 billion in original proposal) to support people who need care (including 800,000 on waiting lists) and their paid caregivers. 

Nursing home reform

I am petrified to get old. This disgraceful, broken system of senior living care is something that we all need to care about. Because this is our future.—Kim Valentine, elder abuse attorney, “State health department blasted over nursing home oversight: Problems are staffing shortages, turnover, training and pandemic pressures,” CalMatters (Oct. 6, 2021)

UCSF Nursing Professor Elizabeth Halifax said California nursing homes have had a humanitarian crisis with over 60,000 cases + 10,000 deaths among residents from COVID-19. She presented Nursing Home Reform policies to address problems of inadequate/unstable staffing; poor financial transparency and lack of accountability for use of public funds; lack of enforcement of existing regulations; state failure to vet owners/require licensing; failure to empower residents; inappropriate discharges; poor access to alternative/home care; outdated/unsafe nursing home environment.

Homeless advocacy



Janny Castillo, Director of Community Outreach at St. Mary’s Center (its Geriatric Homeless Shelter was profiled in The NYTimes) and Oakland Housing Authority Commissioner, presented on Housing for All, calling social justice as wellness tool: fight to increase funding for safety net services, benefits and affordable housing; protect poor people’s basic human rights by fighting for decriminalization of those experiencing homelessness; advocate for better mental health services; participate in peer-to-peer education and advocacy.

California Master Plan for Aging (MPA) San Francisco Regional Forum: Ending Homelessness Amongst Seniors and People with Disabilities (PWD) began with recorded intro by SF Mayor London Breed: “I was raised by my grandmother and she meant everything to me. Towards the end of her life, what mattered most was that she had the care and support she needed to continue to live with dignity. Everyone should be able to live and thrive without fear of ending up alone or on the street.” (Breed’s grandmother lived out her final years at Laguna Honda nursing home, notorious for patient abuse scandal uncovered in 2019.) 

UCSF Benioff Homelessness and Housing Initiative (BHHI) Director Margot Kushel, MD delivered keynote (almost same content as her 2019 Grand Rounds), followed by all-women panel! Most importantly, this program included the voices of Del Seymour as panel moderator and Yolanda Harris as panelist, who shared their own lived experiences with homelessness.

“50 is the new 75” among homeless adults with overall poor functional status and geriatric conditions worse than those in the general population in their 70s and 80s. Dr. Kushel said the solution to homelessness is Housing First

She provided examples of collaborations between aging and homeless services for low-income population:

·       HomeSafe program involves Adult Protective Services (APS) to reduce eviction risks related to self-neglect. Some key findings from BHHI interim evaluation of HomeSafe pilot program are improved systems integration, limited usefulness of homeless risk assessment tool, and “some” clients helped to avoid homelessness.

·       PACE (Program of All-Inclusive Care for Elderly) co-located with Permanent Supportive Housing (PSH).

·       CAPABLE (Community Aging in Place—Advancing Better Living for Elders) for people located in PSH who are provided with a visiting nurse, occupational therapist, and handy person to modify home environment. 

·       Homebridge provides IHSS to PSH residents. 

·       Project Roomkey provides motel/hotel rooms to medically vulnerable homeless during COVID-19 pandemic (and prioritized older adults age 60+ with chronic conditions).   

COVID-19 vaccination rate among people experiencing homelessness was about 39% (much lower than 70% of San Franciscans) as of August, and access appeared to be a greater challenge than hesitancy. 

Del Seymour said he was a 60-year-old disabled vet when Homeless Outreach Team worker got him off streets into Navigation Center, and then next day connected to Swords to Plowshares, which gave him keys to his 1st apartment; at that time, he was his own case manager hand-carrying paperwork between agencies working in silos because Veterans Affairs (VA) did not talk to Department of Public Health (DPH), which did not talk to Human Services Agency, which did not talk to…

·       Shireen McSpadden, ED of SF Department of Homelessness & Supportive Housing (HSH), considered MPA Goal #1 as a call to action to fund housing options for older adults, also need for supports and universal design to serve PWD, focus on preventing homelessness. Of the City’s existing 22,600 affordable housing units, over 13K or 58% occupied by seniors and PWD. She emphasized need for partnerships between HSH and DAS (pilot enhanced IHSS in PSH), as well as DPH and community-based organizations, to support people to age in place in PSH.

·       Kelly Dearman, ED of SF Department of Disability & Aging Services (DAS), talked about housing-related support services (rental subsidies, housing retention support services in public housing, Home Safe-Phase 2); lowering barriers to access like pilot to tailor co-located services to streamline IHSS eligibility.

·       Yolanda Harris, SF Housing Authority Commissioner, shared her own personal housing challenges to help others navigate systems to access services.

·       Beth Stokes, ED of Episcopal Community Services (and SFSU MSW alum), which manages adult coordinated entry, said current challenge is focus on rehousing shelter-in-place (SIP) hotel guests, and need to expand referral outside SIP pool to serve more for PSH available; value of accessing services in neighborhood in which they’re from. She believes we are capable of ending homelessness because pandemic showed how quickly we can move to get people housed. She talked about PSH partnering/co-locating with health care providers onsite, providing access to wellness program, recovery and substance abuse services.

During Q&A, I re-submitted question in chat that I emailed in advance that didn’t get selected (“What metrics are used to evaluate effectiveness of contract providers? What is being done to address high turnover among staff who serve unhoused population to ensure these clients are not further traumatized when people need more stable therapeutic relationships & ensure they do not fall through the cracks?”), and surprised to receive chat comment from ol’ college classmate (“Good point…it is difficult to recruit and retain staff in SF with non-profit salaries. Staff cannot afford to live in the city”)!

Will higher salaries address root causes of staff turnover? My HR Toolkit lists these reasons for high staff turnover: overwhelming workloads, poor management, workplace bullying and toxic culture, lack of opportunities for development, and better offers elsewhere. Bullying is common in “caring” professions, and turnover makes sense for self-preservation: follow Robert I. Sutton’s No A—hole Rule, and leave toxic work environment right away! While The Atlantic’s Derek Thompson considers quitting to be a sign of optimism (“We can do better!”), still waiting to see if employers get woke to improve work culture. More power to The Revolt of the American Worker and The Great Resignation!

Day after this program, the City’s HSH decided on extension to wind down SIP hotels through September 2022, to allow more time to relocate 1,400 SIP hotel guests (majority age 50+) to PSH. Cost of running single SIP hotel room (including meals, harm reduction supplies, health services, laundry and housekeeping services) estimated at $7K per month! 

Gabor Mate’s Wisdom of Trauma (2021) documentary featured Downtown Streets Team (DST), a SF Bay Area nonprofit that claims to be “dedicated to ending homelessness” through “dignity of work” (unhoused “team members” start as “volunteers” to clean streets to “earn basic needs stipend” with potential to move up Team Lead-Manager hierarchy). Such an odd, creepy pick in light of news reports that DST executives involved in wage theft (settled), defamation, and allegations of sexual harassment and promoting drinking culture. 

Dr. Mate followed up his documentary with a series of conversations with trauma-informed providers. How Trauma Literacy Can Transform Medicine was about mind-body-spirit connection: “If you don’t know how to say no, your body will eventually say no for you…” Docs talked about high suicide rate in their profession (higher than the military, and highest rate of any profession), bullying in their medical training that resembles the military. (Recognizing the harmful effects of bullying to patient care and team dynamics, American Medical Association published Bullying in the health care workplace: A guide to prevention & mitigation.)

“the story holds the key to what’s really going on, health is social well-being…” Patient’s life story provides context and allows patient to feel heard and seen.

Narrative-based medicine (NBM) came about in response to inadequacies of the biomedical model. According to George Zaharias, NBM is “a coming together of disparate schools of thought: the medical humanities (history, philosophy, ethics, literature, literary theory, the arts, and cultural studies); primary care and patient-centred care; biopsychosocial medicine and holistic care; and psychoanalysis and the work of Michael Balint.” 

It is more important to know what sort of person has a disease than to know what sort of disease a person has.—Hippocrates, father of medicine

Chronic Pain and Trauma-Informed Healing discussion was multidisciplinary with MDs (Maté, Schubiner), life coaches (Ozanich, Rosen) and counselor (Wallin). “Wound is where the light enters the body”…reminded me of what Leonard Cohen sang in "Anthem"…

Experience Leonard Cohen included Judy Chicago’s paintings of his lyrics.

Ring the bells that still can ring

Forget your perfect offering

There is a crack, a crack in everything

That's how the light gets in

The birds they sang at the break of day

"Start again", I seem to hear them say

Don't dwell on what has passed away

Or what is yet to be…

--Leonard Cohen, “Anthem” from The Future (1992)

As gerontologist, enjoyed Experience Leonard Cohen exhibit and “10 Moments” mini-catalogue that mentioned his 2008-10 grand tour after a 15-year break as Buddhist monk. Wish it explained septuagenarian Cohen got back on tour after he experienced elder financial abuse by his long-time manager, who embezzled his retirement savings. This could have been an opportunity to raise public awareness of elder abuse and prevent such trauma from happening!

Elder Abuse Prevention                               

At bimonthly Elder Abuse Prevention (EAP) Multi-Disciplinary Team meeting, Alice Chiu, former Consumer Rights Program Director at Senior & Disability Action (SDA), was introduced as newly hired EAP Program Supervisor at Institute on Aging! At these meetings, APS workers present two cases for consultation with specific members requested: attorney, medical practitioner, ombudsman, coroner/medical examiner, law enforcement, district attorney, public guardian, psychologist, etc.

During COVID-19 pandemic, older adults have been targeted for financial scams. While perpetrators target vulnerable older adults (dependent due to cognitive/physical decline), behavioral scientists believe elder abuse prevention approaches could preemptively target populations who are cognitively vulnerable to deception and involve family caregivers in advance care planning like creating durable power of attorney. 

Medical-Legal Partnership (MLP)


HealthBegins hosted Achieving Liftoff: Building Medical-Legal Partnerships for Impact, as part of its mission to “moving upstream” by addressing structural determinants of health equity. In July 2021, HealthBegins and National Center for Medical-Legal Partnership (NCMLP) announced a new initiative to integrate MLPs into Kaiser Permanente care delivery for greater housing stability and eviction prevention. 

Bethany Hamilton, Co-Director of NCMLP at George Washington University, defined MLP as an intervention where legal and health care professionals collaborate to help patients resolve social, economic and environmental factors that contribute to health disparities and have a remedy in civil law. She said MLP is one of the only interventions that tackles individual needs and underlying policies: By detecting patterns in patients’ needs and using upstream strategies to target unhealthy policies, MLPs prevent future problems and advance health equity. 

MLPs engage in these types of Patients to Policy projects: 

1.   Use data/stories to educate decision makers about the effects of a policy

2.   Meet with agencies to propose changes to application requirements and procedures for benefits

3.   Convene community stakeholders and decision makers

4.   Challenge laws in courts!

NCMLP Toolkits:

·       A planning, implementation, and practice guide for building and sustaining a health center-based MLP 

·       VA medical-legal partnership readiness guide 

UCSF geriatrician Dr. Anne Fabiny presented on a “deeply engaged” MLP for seniors in SF VA health care system with UC Hastings School of Law. They began Transitions, Referral and Coordination (TRAC) team to care for older adults who are kept in the hospital for social, not medical, reasons because they don’t have a place to go and they end up living in the hospital more than 100 days, with the longest stay over two years!

Their strategies included implementation of standardized process for reviewing need for probate conservatorship for patients with dementia that ensures all other potential options have been explored (veterans waiting for a conservator made up some of the longest stays, now fewer patients referred for conservatorship); increased use of Geriatrics Inpatient Consultation Service for capacity assessment; forum for discussing challenging ethical issues and moral distress; and group decision making about how best to engage family members in constructive problem solving around discharge plans. (See Dr. Fabiny’s article, How an Interdisciplinary Care Team Reduces Prolonged Admissions Among Older Patients with Complex Needs.)    

Lara Eilhardt, MLP Senior Attorney with Office of General Counsel at Department of VA, talked about legal needs as a social determinant of health because civil legal issues that can affect health and housing, if left unaddressed, can increase the risk of suicide. Based on CHALENG (Community Homelessness Assessment, Local Education and Networking Groups) survey, five of the top 10 unmet needs reported by homeless veterans require legal assistance: resolve child support, prevent evictions/foreclosures, restore driver’s license, address outstanding warrants/fines, and secure discharge upgrades. VA MLP services have improved veterans’ housing stability and mental health, and decreased their PTSD symptoms and reduced their substance use spending.

Check out Free Legal Clinics with VA Facilities.

Support Veterans Medical Legal Partnerships Act of 2021

Pedestrian safety

On sunny Saturday morning, advocacy groups Walk SF + Senior & Disability Action hosted walk audit for public to provide feedback to government agencies (SF Municipal Transportation Agency, SF Recreation & Parks), on Golden Gate Park (GGP) and proposed changes to car-free routes designed to promote equal access and improve traffic safety and GGP experience for all visitors. 

Joined group with Walk SF Brian + SF Rec Brian to assess traffic along Fulton Street near 10th Avenue entrance to Golden Gate Park. Since this entrance has been closed to private cars during COVID-19 pandemic, there appears to be increased car traffic and occupied parking spaces outside entrance. But once inside refreshing GGP, less air + noise pollution from cars.

Adding more benches would make GGP more visitor friendly but alas the City has actually removed benches to discourage resting spots for unhoused people.

Here inside GGP’s car-free JFK Drive (where I paid attention to GGP shuttle for first time!), bicyclists did not observe STOP signs near pedestrian crossings. California’s Safety Stop Bill (AB 122) introduced to allow bicyclists to treat stop sign like yield sign, allowing them to proceed in intersections when clear and safe.

Before the pandemic, 75% of traffic used JFK Drive as a shortcut between places outside GGP--landing on the City's high-injury corridor with more than 100 injury collisions involving people walking/biking therein from 2015-2020. Since going car-free during the pandemic, zero collisions!

Plan for repaving this lot behind Music Concourse (which has its own 800-space underground garage that is pricey like Academy of Sciences admission tickets) to provide more parking spaces for people with disabilities. 

On busy Van Ness Ave. near SF City Hall, sign marks “someone died here”–11th pedestrian death this year, nearly half have been age 70+! Gov. Newsom vetoed Jaywalking Bill, which would have leveled playing field for pedestrians in car-centric roads. 

Healthy aging

At virtual Hawaii Book & Music Festival, Healthy Aging program offered perspectives from University of Hawaii faculty from Geriatrics, Social Work, and Microbiology! 

·       Geriatrics Professor at School of Medicine (SOM) Kamal Masaki, MD, discussed geriatric approach to care (focus on whole person, not organ systems, include physical, cognitive, psychologic, social domains; enhance independence and quality of life; preventive care; early rehab if possible; palliative care if necessary; interdisciplinary team approach). Ideally, every older adult age 65+ would see a geriatrician, except there is a shortage with only 7K geriatricians nationwide so now geriatricians mostly care for very frail elderly. Shortage of geriatricians is less in Hawaii, thanks to over 200 grads of UH geriatrics fellowship, many stay in Hawaii and serve as consultants to primary care physicians; UH SOM also requires every medical student to complete four weeks of geriatrics and palliative care training. Hawaii has nation’s highest life expectancy due to Asian ethnic groups (Chinese women live longest; Caucasians among lowest life expectancy). Women outlive men, but women age 70+ experience greater physical disability and need for assistance with activities of daily living.

·       Social Work Professor Emerita Colette Browne, DrPH, presented on older women and gender equity: advantages include longevity (nearly 70% of people age 85+ are women) and stronger social networks; disadvantages include lower income, health care and absence of LTSS. Despite improved gender parity in education, these gender inequities shape opportunities throughout their life course so women experience greater economic insecurity/risk of poverty in later life

·       Chancellor Emerita/Professor Virginia Hinshaw, PhD, presented on positive effects of aging, such as using both hemispheres of the brain (more compassion), decreased activity in amygdala (less response to fear, anger, hatred so become mellow and increasingly react to positive). She founded SOM Mini-Medical School on Healthy Aging in 2014, and now it’s available online

Col-Labor-ation => retirement?

The latest issue of Public Policy & Aging Report focuses on Retirement Structures and Processes, noting a “decoupling of retirement and full labor-force departure” associated with decreasing financial security for many older workers, particularly since Great Recession of 2008. Redefining retirement today often includes some engagement in paid work, with opportunities in the gig economy and development of encore careers. 

“My new career is doing various stuff.  What’s needed to be done today? What can I learn today? What kind of charges me up a little bit is being able to do something familiar and, at the same time, having that opportunity to learn something new.”—Chris Francis, RV worker in 400 sq. ft “house on wheels”, PBS Changing Work, Changing Workers   

According to economist Teresa Ghilarducci, the future of work is connected to future of retirement income, and many older adults are working longer to supplement eroding pensions or declining Social Security benefits, while facing discrimination; she has called for creating Older Workers’ Bureau within U.S. Department of Labor! 

Lawrence R. Samuel, author of Aging in America: A Cultural History (2018), views Boomers working as long as they can and aging in place (instead of fading into a life of leisure in a sunny retirement community) as a "wonderful development" to reintegrate older people back into the mainstream and possibly lessen ageism.

Musician-turned-social scientist Arthur C. Brooks noted that “having any job at all makes people happier” but “money as a career goal does not”; instead, he found job satisfaction comes from a good fit with your employer’s values and culture, and a sense of accomplishment. 

…all over the world job satisfaction depends on a sense of accomplishment, recognition for a job well done, and work-life balance. Teamwork, too, has a strong influence in collectivist cultures, but less so in individualist ones. The late Harvard psychologist Richard Hackman found that job satisfaction was strongly, inversely tied to leader-centricity: In one of his studies, musicians who worked in symphony orchestras, where many conductors rule with an iron fist, were 21 percent less satisfied with their growth opportunities than players in leaderless string quartets.—Arthur C. Brooks, “The Secret to Happiness at Work,” The Atlantic (Sep. 2, 2021)  

Very subjective! Brooks advises for real job satisfaction, we should pursue intrinsic goals like earned success (which employers can facilitate by giving “clear guidance and feedback, reward merit, and encourage their employers to develop new skills”) and service to others (sense of making the world a better place). For example, Brooks describes how his former student derived job satisfaction serving customers as waiter in Barcelona. (In contrast, Princeton grad Lillian Li did not derive job satisfaction from serving rude customers when she worked as waitress, but likely derived greater job satisfaction from writing about that experience in her novel, Number One Chinese Restaurant.) 

Did Danish artist Jens Haaning derive job satisfaction from his “Take the Money and Run” delivery of blank canvases to Kunsten Museum of Modern Art as part of its Work It Out exhibit, in exchange for $84K? 

Haaning insisted, “The work is that I have taken their money.”

Kunsten CEO said, “This new work reminds us that we work for money.” 

 

“Work” is any job I do, paid or unpaid, that’s important to me. It’s anything I work incredibly hard at, pour my heart and soul intoand anything that sits at the very core of who I am and have always been.

I’m a Mother, a Writer, a Musician, a Caregiver, an Athlete, and a Student.

And work doesn’t define me — I define it.

I’m a Caregiver for Seniors by day.

Although I often feel like the clean version of a professional escort service for the elderly — I love every minute of it…

Whatever daily living activities my clients need help with, I always make sure my eyes (and smile) are bright, my hair is pinned back, my scrubs are clean and crisp, and I’m ready to show up for who and what they need me to be that day.

I love helping people. I love my Caregiving job because it doesn’t feel like work to me.

--Divina Grey, “Choose a Job You Love and You’ll Never Have to Work a Day in Your Life.” —Confucius. I know what I’m doing, even if you don’t think so. Medium (Aug. 14, 2021)  

“Caregiver for Seniors” baffled me with her seemingly contradictory statements: concluding “I love my Caregiving job because it doesn’t feel like work to me” after previously defining “work is any job I do, paid or unpaid, that’s important to me.” And hope she is getting paid for job=work, for sake of funding her retirement! According to IRS, she is a “household employee” (employer controls work she does and how she does it) if she is paid more than $2,300 wages (2021), and both employer and employee obligated to pay Social Security + Medicare taxes. 

National Retirement Security Month  

Retirement security is a subject near and dear to me, as my pre-encore career was spent working in ERISA-covered retirement plans (investment management, trust administration, plan design and compliance, etc.). And I continue to live and breathe ERISA...

This month’s Women’s Institute for a Secure Retirement (WISER) conference looked at 25 Years of Improving Women’s Financial Security - Where We Stand: Possibilities & Progress

Among the ways women can improve their long-term financial security are safeguarding one’s health and employability (keeping job skills up to date, networking, scoping out opportunities, etc.).   

While other countries have social safety net programs, women in USA have borne the brunt of job losses and caregiving burden during the pandemic. Since the beginning of 2020, 4 in 10 working women age 40-65 (and especially those providing care to others) experienced job loss, reduced hours, furlough, temporary layoff, or reduced wages --this translates to lower lifetime income, less savings, and reduced Social Security benefits that undermine women’s retirement security.

In USA, retirement security is “earned” during employment through payroll taxes (Social Security + Medicare) and employer-sponsored tax-qualified plans (traditional defined benefit pensions, defined contribution plans often with 401(k) salary deferral feature).

Social Security Administration (SSA) announced that its annual cost-of-living adjustment (COLA) will increase to 5.9%, effective January 2022! 

According to Social Security and Medicare Board of Trustees’ 2021 annual reports:

·       Social Security Trust Funds are projected to become depleted in 2034, one year earlier than projected last year, with 78% of benefits payable at that time. 

·       Medicare Part A (Hospital Insurance) trust fund is projected to run out of funds in 2026 (no change from last year’s report), and pay 91% of total scheduled benefits. 

Data and projections were based on estimated effects of 2020 Recession (high unemployment) and COVID-19 pandemic on demographics (increases in deaths, decreases in births, and lower immigration rate): fewer people contributing to the funds, greater financial pressures. Call to action: Congress do something to address projected funding shortfall (e.g., increase amount of covered earnings subject to payroll tax)! To fix retirement income crisis, consider All Generations Plan (with caregivers’ credit for those who take time out of paid workforce to care for family members)! 

2021-25 OAA State Plan on Aging, went into effect Oct. 1, 2021 (aka International Day of Older Persons!) —serving as a blueprint for CA’s #OAA network to build equitable, age-friendly communities through programs, partnerships, services, outreach efforts, and advocacy! Must read!

Friday, April 30, 2021

Infrastructure

in·fra·struc·ture  (Ä­n′frÉ™-strÅ­k′chÉ™r) noun

1. An underlying base or foundation especially for an organization or system.

2. The basic facilities, services, and installations needed for the functioning of a community or society, such as transportation and communications systems, water and power lines, and public institutions including schools, post offices, and prisons.

https://www.thefreedictionary.com/infrastructure

Care infrastructure

Woo-hoo! So refreshing to learn care is included as infrastructure because care (aka “domestic work” often performed by women, unpaid/underpaid) has to get done before any other work can get done! Inspired by women, President Biden’s American Jobs Plan proposes to invest $400 billion over eight years in care infrastructure

#CareCantWaitCoalition launched $20 million campaign to push Congress to invest in care infrastructure, notably the following to care for aging adults: 

·       Invest $450 billion in Medicaid home and community-based services (HCBS) to create over one million high-quality, union protected direct care jobs, expanding HCBS to people with disabilities and aging adults, and supporting unpaid family caregivers who rejoin labor force.

·       Pass Paid Family and Medical Leave legislation to ensure all working people have access to at least 12 weeks of paid leave to address a personal or family related illness.

Aging and tax expert Howard Gleckman wants Biden to be more ambitious in pushing for a public long-term care (LTC) social insurance plan because millions of middle-income Americans are not poor enough to qualify for Medicaid yet cannot afford paid LTC.  Check out Rethinking Care for Older Adults

As part of nursing home care reform, state governments have proposed legislation to increase minimum staffing levels in nursing homes, and surprisingly, investors are demanding that for-profit nursing home operators improve staff working conditions and quality of care (increase staffing levels, boost pay, offer pandemic hazard pay and sick leave, allow staff to unionize, improve safety). 

Last month, Pivotal Ventures named Building Women's Equality through Strengthening the Care Infrastructure, led by several members of #CareCantWait Coalition, as one of ten finalists for Equality Can’t Wait Challenge. 

At Care Can’t Wait Summit, Time’s Up CEO Tina Tchen presented It’s Time to Care: The Economic Case for Investing in a Care Infrastructure (Feb. 2021).  During COVID-19 pandemic between Feb. 2020 and Feb. 2021, over 2.3 million women (compared to 1.8 million men) dropped out of the labor force, mostly due to caregiving responsibilities—wiping out a generation of economic gains; over half of these women affected were Black (600,000+) and Latina (618,000+).  

Building on American Rescue Plan and American Jobs Plan, Biden administration announced American Families Plan, the third COVID-19 recovery package released this week that proposes comprehensive family and medical leave, and extension of tax credits to lower and middle-income workers and their families in American Rescue Plan.

In a capitalist system, care is valued if monetized so many family caregivers aren’t “counted” and thus remain mostly invisible.  AARP hosted screening + discussion of Sky Blossom: Diaries of the Next Greatest Generation (2020), a documentary giving visibility to millennials who provide (unpaid) care for military veteran parents or grandparents.  Sky Blossom’s millennial caregivers included 18-year-old Kaleo and 26-year-old Kamaile, brother and sister in Kauai, prioritizing care of 80-year-old grandpa Bobby, a former Marine who developed dementia; they explain their culture of kuleana (responsibility) for “grandpa is the last we have,” after their mother died by suicide, and “school is always there” as they postpone their own plans for college and gain hands-on adulting.  AARP released companion Financial Workbook for Veteran and Military Family Caregivers: A Practical Guide Focused on Health, Housing, and Money Management (2021). 

Sky Blossom Director Richard Lui became Gen X caregiver/frequent flier, adjusting his MSNBC anchor work schedule so he could commute from NY to SF to help care for his father, a retired social worker diagnosed with Alzheimer’s disease eight years ago.  Richard’s caregiving experience then became a seven-year “selfless” exploration and genesis for his new book, Enough about Me: The Unexpected Power of Selflessness (Mar. 2021). 

Last month’s PBS documentary, Fast-Forward, followed four pairs of millennials and their boomer parents as they go through “aging boot camp” (wearing MIT-produced “aging empathy suit,” which was more like “disabling empathy suit”) that challenges them to confront changes at age 70+ (mostly physical limitations that can be socially isolating).  In this simulation, changes are abrupt, while in real life changes are gradual so we can adapt and plan for greater interdependence. 

To its credit, Next Avenue developed companion seven-day email course + digital toolkit (Assemble Your Team, Share Your Plan, Complete an Advance Directive) that considered solo agers without available family caregivers. Yet, wondered why isn’t more attention paid to so-called elder orphans/solo agers? This has been my Old Maid Project, as I want to focus on older women who are more likely to live alone than men.  

During virtual Careers in Aging Week, Susan Ryan, Senior Director of The Green House Project and host of Elevate Eldercare podcast, presented keynote Catching the Wave of Opportunity.  She shared her own career trajectory from nursing home nurse to LTC reformer after she learned about culture change/The Green House Project. 

In addition to data driving decisions in longevity economy where “demographics demand disruption,” (111 million American consumers age 50+ generate $7.6 trillion in economic activity; Karen Sands’ Gray is the New Green: Rock Your Revenues in the New Longevity Economy), COVID-19 pandemic has put aging services in the spotlight—not just about keeping infection away, but relationships matter, empower workers, wellness is biophilic, etc.

The Green House Project founder Dr. Bill Thomas is pushing deinstitutionalization further with his new Canopy model, a “middle market” offering designed to make “better homes and better communities” to bring nursing home care to people living in their own homes with access to outdoors (more in Politico article, “Will the Nursing Home of the Future be an Actual Home?”). 

Internet infrastructure

Biden’s American Jobs Plan proposes $100 billion to bring affordable internet (aka “electricity of the 21st century”) to all Americans by 2029! Digital equity took on greater importance during COVID-19, especially among older adults staying safer at home and relying on internet access for telehealth, social connection, news and health information, ordering essentials, scheduling vaccine appointments, etc. SF Age & Disability Friendly Implementation Workgroup heard from consultant Cecile Puretz about Thriving in Place-Empowered SF Technology Access Survey in progress (digital in six languages, phone, print, ASL vlog, braille). 

Meeting closed with farewell to Shireen McSpadden who is leaving SF Department of Disability and Aging Services after five years as its Executive Director to lead beleaguered SF Department of Homelessness and Supportive Housing, where she intends to bring an aging and disability lens to her new position.  More housing designed to accommodate people with disabilities, please! 

Education infrastructure:  City College, Lifelong Learning, Mills College

Educate to liberate: Lessons in community mural at City College of SF-John Adams Campus

Biden’s American Families Plan proposes $109 billion to make two years of community college free.  Since 2017, City College of SF has been tuition free to SF residents, regardless of financial need… however, now it faces proposed budget cuts jeopardizing programs that benefit many older adults such as English as Second Language (ESL) and nursing. (Last year, SF Dignity Fund and non-profits stepped in to restore Older Adult classes that were cut from City College of SF’s budget.) 

At Save City College of SF Town Hall, Senior & Disability Action (SDA) joined Gray Panthers and other advocates to protest proposed cuts to faculty and classes at City College of SF.  SDA Executive Director Jessica Lehman demonstrated how to leave a brief voice-mail message with SF Supervisors (who continue to work remotely during pandemic) and ask them to vote yes on expanding the Workforce Education Recovery Fund (WERF) to prevent massive cuts to City College of SF, which trains essential workers like nurses, paramedics, fire fighters, construction managers, plumbers, etc.

SDA member Angie Bagares shared that she supports City College of SF because it gave her an opportunity to return to school at age 58 to train as licensed vocational nurse (LVN) and graduate at age 63 with a new career—and she experienced no age discrimination.  She has encouraged people working in fast food industry to consider nursing, computer and self-defense classes at City College, as well as ballroom and Latin dancing.  Angie has given back by teaching dance at senior centers and performing at community events.   

Ten years ago, I enrolled at City College of SF to take up “hobby” classes in environmental horticulture, public health (taught by Vicki Legion, who co-authored new book, Free City! The Fight for San Francisco's City College and Education for All) and nutrition (including internship with SF Department of Aging & Adult Services!)—and this led to my return to graduate school and then giving back via my encore career in gerontology, including lots of volunteer advocacy work to promote aging in place and LTC reform!

Ken Stern, Chair of Longevity Project hosted After COVID-19 - The Future of Lifelong Learning & Workforce Development: What Should Congress Do? In pre-recorded keynote, Congresswoman Lori Trahan talked about Protecting Older Workers Against Discrimination Act (POWADA) and expanding national apprenticeships. 

Maria Flynn, President and CEO of Jobs For the Future, Inc. (JFF), called for federal support to develop information infrastructure or universal career navigation services for workers in today’s evolving labor market.  Of the 10 million jobs lost last year, up to 40% of these jobs may never come back, so displaced workers need access to information to make informed choices about their education and career pathways as they train for new opportunities. 

Chip Conley, author of Wisdom@Work: The Making of a Modern Elder (2018), talked about wisdom worker correlated with age and emotional intelligence to create psychological safety in the workplace; and half of American colleges will go out of business in ten years (as predicted by late Harvard Business Professor Clayton Christensen, and pandemic’s online learning may have accelerated this trend?), so need to repurpose campus for lifelong learning and integrate all ages. 

At Mills College Town Hall, President Beth Hillman explained reasoning behind last month’s decision to transition from College to Institute, including “deferred maintenance costs.”  As gerontologist, I wondered why Mills has not prioritized ADA required accessibility needed to attract students of diverse physical abilities? (I previously communicated my concerns when I brought LTC residents for an outing to campus Art Museum with stairs only to access back gallery; visitors unable to use stairs viewed exhibition catalogue instead.)   

Last year, I suggested that Mills join Age-Friendly University Global Network as a way of boosting enrollment and age diversity in campus life (15% of Mills students are age 23+).  Strengths: age included in diversity statement; faculty with gerontology expertise (e.g., Psychology Professors Christie Chung on memory and aging and Dean Morier on aging attitudes); lifelong learning with Alumnae Association of Mills College (AAMC) (though travel programs suspended during COVID-19 pandemic), etc.  However, the historic 135-acre campus needs to improve physical accessibility.

Forbes suggested that “Being ‘Woke’ Means Going Broke for Mills College,” which read like how higher education has turned into “coddling of the American mind” (i.e., pursuit of “social justice” over “truth,” loss of viewpoint diversity, thinking “pathologically” in terms of privilege/oppression binary with emphasis on gender/sexual orientation and race/ethnic identities, etc.).  Mills’ 36% tuition reduction in Fall 2018 was major contributor to going broke and arguably lowered prestige by appearing desperate (especially without accompanying recruitment efforts involving enthusiastic alumnae speaking to value of women-centered, liberal arts education).  I submit that being woke should consider longevity dividend/age-inclusivity by welcoming more older adults to campus to study for encore careers and/or lifelong learning! 

“Women’s colleges have traditionally reached out to populations that were excluded from other colleges.  Initially they catered primarily to well-off young women who were excluded from the institutions that only men could attend.  Today we’re seeing that it’s often first-generation and underserved students who are excluded, and these students are being drawn to and welcomed by women’s colleges.”—Linda Cohen Turner (Mills ’68), President of The College Choice, “Evolve or Die,” Mills Quarterly (Summer 2015) 

Love Zoom bookcase behind Alexa Pagonas (Mills ’91), attorney/talent manager from Beverly Hills, who asked whether Mills College Board of Trustees considered all options before extinguishing “Fires of Wisdom” (Mills anthem). 

Few weeks later, AAMC Town Hall was held to discuss options. Save Mills College Coalition retained law firm to request that California Attorney General, newly appointed Rob Bonta (former adjunct policy professor at Mills!) investigate Board of Trustees’ unlawful action to close Mills.  Attorney Julia Almanzan (Mills ’92) from Los Angeles went further in presenting UC Mills option: University of California (UC) system gets another campus without having to build it! Mills campus has historic human-scale buildings designed by Julia Morgan, stunning botanical landscape (famously photographed by Ansel Adams), but really need to improve ADA accessibility! UC Mills appears to be viable option, as this fall Mills will begin hosting 200 first-year UC Berkeley Changemaker in Oakland students of all genders (an announcement that displeased some).  

Lori Bass (Mills ’92) was on target when she said Mills is about amplifying marginalized voices! This was largely the reason why Mills was my dream college, inspired by Jade Snow Wong (JSW, 1922-2006) who wrote about her Mills experience (as transfer student after two years at SF Junior College/City College of SF) in Fifth Chinese Daughter (1950, Harper & Brothers; 1976 video for public TV) …long before Maxine Hong Kingston (The Woman Warrior, 1976) and Amy Tan (The Joy Luck Club, 1989) published stories about their Chinese immigrant family experiences.  As a daughter of Chinese immigrants, so powerful to read JSW striving to assert her independence and explore the larger world, via Mills liberal arts education with international student body.  I especially got a kick learning that JSW majored in economics and sociology with intention to become a social worker in SF Chinatown, but discovered her passion in a ceramics class taught by F. Carlton Ball.

At times, JSW appeared like The Chinese Lady, recruited by Mills President Aurelia Henry Reinhardt who “had a lifelong interest in the Oriental people” (p. 147), and befriended by Mills classmates who “were perpetually curious about her Chinese background” (p. 161).  After her Mills graduation and wartime office employment, JSW began her business making exquisite pottery in a storefront window in SF Chinatown, popular with Caucasians but considered a “mud-stirring maiden” spectacle by fellow Chinese.  Yet these experiences served her well as after publication of her first memoir at age 27, she embarked on a speaking tour throughout Asia at the invitation of U.S. State Department, and made several visits to People’s Republic of China—described in her follow-up memoir, No Chinese Stranger (1975, Harper & Row).  As JSW became a renowned ceramist and author, she also ran her namesake travel agency with her hubby and raised four children (including two daughters who are Bent Twigs aka Mills legacy).

After I arrived as an awestruck student at Mills, I excitedly contacted Constance Wong Ong (Mills ‘42), as JSW’s name appeared on Mills alumnae records, to invite her to speak on campus. And just like JSW, I used my Chinese privilege to write papers about my immigrant family, which were well-received by one English professor who encouraged me to write more and publish, but my family was too traumatized by Communist persecution so I was forbidden (silenced).  During my last semester at Mills, I enjoyed my “spring fling” internship at Harper & Row (publishers of JSW’s books!); afterwards, I studied abroad in China and Hong Kong, and made several return visits.  Fast-forward, I now facilitate amplifying voices of marginalized older adults!

Mills undergraduate senior Lila Goehring said she left Ohio as a "mild-mannered Midwestern girl" to attend Mills, where she learned that her voice matters and to take up space. While volunteering at reunion in 2019, an alum told students that they were “going to dream about this place” (Mills) for the rest of their lives.  Lila reflected on this: “you were once me and I will be one of you in 24 days, but we have to make sure that future students get to dream about his place, too.  So I urge the trustees, remember what Mills taught…” in the immortal words of former Mills Math Professor and Dean Hettie Belle Ege (1861-1942), “Remember who you are, and what you represent.”

If Mills is to continue as a degree-granting college, it needs to restore admissions staff and Alumnae Admissions Representative program outreaching to potential students of all ages. (Intergenerational activism goes beyond a teen who pays $350 for two-bedroom “senior citizen apartment” where she enjoys hanging out with her neighbors age 65+, listening to their stories and eating their home-cooked meals.) 

David Bernstein, PhD, chair of Music Department and Faculty Executive Committee, joined Mills faculty in 1989.  During his first year at Mills, he “didn’t really understand what was going on” with the 1990 student and alum protest to reverse trustees’ decision to admit men in undergraduate program (Mills graduate programs are co-ed), but then came to “understand how wonderful women’s education is” and encouraged us to gather that same momentum (many 1990 strikers resumed their activism with Save Mills Coalition/UC Mills) and “faculty would be totally behind you.” Ah, like music to the ears!

Professor Bernstein (not “Dr.” as Jill Biden, EdD calls herself) is concerned about protecting endowment that has enabled Mills Music Department to prosper with international recognition, and feels for students who are dedicated to learning at Mills.  He called out “corporate machine” that’s running (or did he say ruining?) Mills with no intellectual breadth or appreciation for the incredible legacy of Mills; with no shared governance, faculty is feeling very disenfranchised by the administration but certainly not giving up—“there’s a lot of fight in us”! He said faculty members are worried about their jobs, but as he’s further on in his career, he’s more concerned about younger colleagues finding another job during this challenging time in higher education. (Listen to Mills’ musical legacy online.) 

Gerontocracy thriller

Chris Mann does geriatric moonwalk in Ben Stiller Thriller (Parody) 

Seems like Biden is doing moonwalk: moving forward with “once-in-a-generation" investment in massive infrastructure proposal, harkening to FDR’s first 100 days to set foundation for using government to rebuild economy from ground up. 

“…a funny thing happened on the way to the old folks home, Biden…is now spearheading the most transformative administration since FDR…he got better at 78. What a mind-blowing concept that must be to the younger generation, for whom writing someone off simply because of their age is the last acceptable prejudice…

America, you’re not that young anymore…it’s time you grew up…Biden is the right man for this moment because he is old.  Been there, done that: It’s a virtue.  He’s getting things done…”—Bill Maher, “The Able Guy” (Apr. 23, 2021) 

After Justice RBG’s death at age 87 last year, Justice Stephen Breyer succeeded as oldest living Supreme Court Justice and now he is facing pressure to retire at age 82 by some Democrats who want Biden to nominate Black woman (presumably younger and liberal) to U.S. Supreme Court.  Representation of older working justices needed on Court to raise insightful questions when deciding age discrimination cases like Babb v. Wilkie.  

Virtual Hawaii

Hawaii Executive Office on Aging Director Caroline Cadirao discussed serving the needs of Hawaii’s older adults: of 1.4 million residents in Hawaii, 25% are age 60+, 87% live with one or more chronic conditions, 12% require LTC.  Nearly 12% of Hawaii households are multigenerational—source of instrumental support to age in place?

Kupuna Care services assist “frail and vulnerable older adults” to age in place. 


Last month, AARP Hawaii hosted Think of Your Future Saturday series that included consideration of LTC costs in Hawaii.  

Hawaii LTC Ombudsman (LTCO) John McDermott presented on LTC Options in Hawaii, and what to do now:

·       Make sure your doctor knows you well

·       Make your home “age friendly”

·       Prepare for the worst – tour facilities, important documents & finances in order, conversations with family, no surprises

·       Keep up with community resources

In Hawaii, there are 1,727 LTC facilities providing 12,876 beds; since COVID-19 pandemic, the number of residents occupying these beds declined due to deaths and residents moving out by family members deciding to provide care at home. 

John mentioned checking out CMS nursing home compare ratings, but they are unreliable

John’s LTCO team is responsible for making quarterly visits, investigating and resolving complaints relating to care and rights of residents in LTC facilities.  His LTCO staff consists of himself, volunteer coordinator, Oahu specialist, and part-time contracted specialists for each island county (Maui, Kauai, Hilo, Kona)—falling short of minimum staff recommendation by National Institute on Medicine, so he urged us to call Governor’s Office for funding and/or become LTCO volunteer. 

After this presentation, Hawaii Department of Health ordered Oceanside ALF on Oahu to close by today, after revoking its license due to finding of neglect by Adult Protective Services (instead of LTCO); ALF owner appealed so operations continue and will allow time for residents to find alternative housing. 

California Department of Public Health has a horrible record of allowing nursing home operators to operate while license applications are pending for many years (e.g., Brius Healthcare) and while appealing license denials (e.g., ReNew Health Group). 

Alzheimer’s diagnosis

From this month’s American Association for Geriatric Psychiatry (AAGP) webinar, Behavioral and Psychological Symptoms of Dementia: Update on Treatments, Mechanisms and Management in the Clinic and Community—Only about the half of people with Alzheimer’s disease (AD) are diagnosed, with disclosure to only 45% of caregivers and 33% of those with the disease. 

Among Medicare beneficiaries, Blacks, Latinx and Asians are less likely than whites to receive timely diagnosis of AD—possibly related to less comprehensive screenings and underrepresentation in clinical trials, so individuals and caregivers need to advocate for themselves. 

In "Neurologist Faces His Alzheimer Diagnosis Determined to Lessen Stigma Surrounding the Disease" (Apr. 28, 2021), JAMA interviewed retired neurologist Daniel Gibbs, MD, PhD (more schooling=greater cognitive reserve!) about his diagnosis of AD five years ago at age 64, and his “coming out” to reduce stigma so people can accept and deal with it openly: starting to lose his sense of smell 15 years ago was the first clue, followed by a DNA test that revealed he had two copies of APOE4 allele that put him at risk for developing AD.  When he started practicing neurology in 1989, "nothing could be done" for AD so he would avoid making a diagnosis until as late as possible.  

With scientific understanding of lifestyle modifications (aerobic exercise, MIND diet, social engagement, new learning, 7.5 hours of sleep, etc.) to minimize risk factors or slow progression of AD, Dr. Gibbs became a “zealot” for early detection of AD when interventions could help.  As a neurologist, he has been able to study his disease, which has been a coping mechanism, to intellectualize changes in his brain. During this process, he has participated in clinical trials, hopeful that discoveries of treatment or cure will benefit his children’s generation.  Look forward to learning more of his unique perspectives as neurologist + patient in his new book, A Tattoo on my Brain: A Neurologist's Personal Battle against Alzheimer's Disease (May 2021)! 

Elder abuse

Association for Gerontology Education in Social Work (AGESW) President and Wayne State Social Work Professor Tam Perry hosted Speaking Out against Anti-Asian Racism and Violence against Older Adults webinar, which was dedicated to UCLA Public Health Professor Steven P. Wallace, who co-sponsored event as Resource Centers for Minority Aging Research (RCMAR) Director but unexpectedly died two days before event. (He was noted for developing California Elder Economic Security Standard Index, which more closely measures actual cost of basic necessities of older adults, and used in California’s Master Plan on Aging!) Only age 63 at the time of his death, he did not live long enough for Social Security and Medicare benefits.

Hunter College Social Work Professor Keith Chan offered Solutions as Gerontological Social Workers…very academic, unlike controversial SF social worker/mayoral candidate Ellen Lee Zhou (SFSU MSW alum) who promoted gun ownership, police patrols and more security cameras in response to violent attacks on SF Chinese in 2019 (pre-pandemic).  As a practitioner serving older adults, I suggested follow-up program to amplify voices of older adults impacted by anti-Asian racism/violence and their perspectives on public safety solutions.

Recently, as four individuals stole from “elderly Asian” couple on their home’s front porch, their son responded by wielding machete and chased suspects who ran into getaway car in Oakland, caught on video. 

Follow-up news reports suggested unhoused people made “random” attacks on older Asians in SF, NYC, and Riverside—so careful not to conflate violence against people who are Asians with hate crimes (that require proof of intent)? Yet, could this pattern suggest “copycat” cases (to get media attention?), caught on videos in broad daylight, picking on “easy targets” who happen to be older Asians, mostly women who are smaller in size than attackers, limited English proficiency, less likely to report crimes to law enforcement, etc.

SF Board of Supervisors committed to work on action plan to prevent anti-Asian crimes by end of May. 

Reopening

Dining outdoors in parklets is cool, but SF “shared spaces” should not allow chairs to obstruct sidewalks for pedestrians including those using walkers/wheelchairs.  Dry weather allows for outdoor dining, but no April showers to bring May flowers …

Founders Sing “Just got my vaccination” (Parody, Apr. 16, 2021)